Consistency in paired comparisons of Information Needs Questionnaires (INQ) among Hong Kong Chinese breast cancer patients

Choi, Kai Chow; So, Winnie K.W.; Li, Polly W.C.; Lau, Sinny; Lo, Joe C. K.

doi:10.1016/j.ejon.2012.04.002

Cited by 3 publications

(4 citation statements)

References 24 publications

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“…Such ceiling and cluster effects can also be found in several of the assessed studies in this review [ 14 , 18 , 24 , 26 ] and make it challenging to identify specific topics of interest. Even if high ratings for all defined topics reflect the true preferences, individual information need should guide health care professionals in delivering the most important or urgent information in the limited consultation time [ 31 ]. Therefore, studies assessing information needs should include a prioritization of the topics by the participants.…”

Section: Discussionmentioning

confidence: 99%

“…Another way to avoid ceiling effects is the use of differential scaling to rate relative levels of importance [ 30 ]. Choi et al have tested the consistency of breast cancer patients in prioritizing information needs making paired comparison judgments, another method to assess the priority of information needs [ 31 ]. However, the number of comparisons ascends considerably with a rising number of predefined topics.…”

Section: Discussionmentioning

confidence: 99%

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Studies analysing the need for health-related information in Germany - a systematic review

Pieper

Jülich

Antoine

et al. 2015

BMC Health Serv Res

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BackgroundExploring health-related information needs is necessary to better tailor information. However, there is a lack of systematic knowledge on how and in which groups information needs has been assessed, and which information needs have been identified. We aimed to assess the methodology of studies used to assess information needs, as well as the topics and extent of health-related information needs and associated factors in Germany.MethodsA systematic search was performed in Medline, Embase, Psycinfo, and all databases of the Cochrane Library. All studies investigating health-related information needs in patients, relatives, and the general population in Germany that were published between 2000 and 2012 in German or English were included. Descriptive content analysis was based on predefined categories.ResultsWe identified 19 studies. Most studies addressed cancer or rheumatic disease. Methods used were highly heterogeneous. Apart from common topics such as treatment, diagnosis, prevention and health promotion, etiology and prognosis, high interest ratings were also found in more specific topics such as complementary and alternative medicine or nutrition. Information needs were notable in all surveyed patient groups, relatives, and samples of the general population. Younger age, shorter duration of illness, poorer health status and higher anxiety and depression scores appeared to be associated with higher information needs.ConclusionKnowledge about information needs is still scarce. Assuming the importance of comprehensive information to enable people to participate in health-related decisions, further systematic research is required.Electronic supplementary materialThe online version of this article (doi:10.1186/s12913-015-1076-9) contains supplementary material, which is available to authorized users.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Studies analysing the need for health-related information in Germany - a systematic review

Pieper

Jülich

Antoine

et al. 2015

BMC Health Serv Res

View full text Add to dashboard Cite

show abstract

“…The cause of the increase in the number of circular triads was considered to be the similarity of the notation in each question item and individual differences among patients’ demographic and clinical characteristics. 44 Focusing on the similarity of the notation in each question item, it is considered that all nine items were not difficult to distinguish, because each item was created from nine different areas. Explanations were added for each question item, however, when patients provided answers, in some instances similar kanji were presented in pairs on the tablet computer, such as those for “healing” and “treatment.” In such cases, it is possible that patients may have mistaken the words for synonyms.…”

Section: Discussionmentioning

confidence: 99%

“…Regarding individual differences among patients, it has been reported that age, educational level, family history, and time since diagnosis affect the number of circular triads and the coefficient of consistency, which valuating item of consistency. 44 Patients who are highly educated or who have had a long period of time pass since diagnosis tend to be able to fully understand their own health conditions and information needs and can thus distinguish between and order the nine items. We did not examine relevance to the patient’s demographic factors when evaluating validity.…”

Section: Discussionmentioning

confidence: 99%

Development of Japanese Versions of the Control Preferences Scale and Information Needs Questionnaire: Role of Decision-Making and Information Needs for Japanese Breast Cancer Patients

Azuma¹,

Kawaguchi²,

Yamaguchi³

et al. 2021

PPA

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The importance of shared decision-making (SDM) between physicians and patients is increasingly recognized. In Japan, patients have shown more willingness to participate in treatment if medical professionals provide sufficient information; however, relationships between physicians and patients have traditionally been asymmetric, with patients accepting information from physicians without discussion. To explore the benefits of SDM in cancer treatment, including confidence in treatment decisions, satisfaction with treatment, and trust in healthcare providers, this study developed Japanese versions of the Control Preference Scale (CPS) and Information Needs Questionnaire (INQ). Patients and Methods: Reliability and validity of the CPS and INQ were tested with 49 breast cancer patients. Results: The CPS showed good test-retest reliability (kappa coefficient: 0.61, weighted kappa coefficient: 0.61, Kendall's tau coefficient: 0.61) and acceptable criterion validity. The INQ showed adequate consistency; the mean number of circular triads and coefficient of consistency were 3 (range 0-19) and 0.9 (range 0.37-1), respectively. Using the CPS and INQ to identify patients' roles in decision-making and information needs, results further suggested that breast cancer patients in Japan want to participate in SDM. Medical issues, including disease spread and cure, were found to be of high interest, while social and psychological issues, including sexual attractiveness, genetic risk, and family impact, tended to be low. Conclusion:The Japanese CPS and INQ can be used to assess patients' needs to improve care. Further, as patients' information needs change along the care trajectory, these tools should be used throughout treatment.

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Factors in the prioritization of information needs among Hong Kong Chinese breast cancer patients

Bei

Lai

Choi

et al. 2015

Asia-Pacific Journal of Oncology Nursing

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Objective:The study aims to examine the prioritization of information needs in breast cancer patients, using the Information Needs Questionnaire (INQ); and to identify the demographic and clinical characteristics associated with that prioritization.Methods:A cross-sectional exploratory study was conducted, by means of consecutive sampling. The INQ was used to examine participants’ preferences on information needs. Their demographic and clinical characteristics were collected by means of a structured questionnaire and review of medical records. Backward multivariable logistic regression analysis was performed to examine the association between prioritization of patients’ information needs and their demographic and clinical characteristics.Results:A total of 275 breast cancer patients took part in the analysis. Of the nine INQ items, most participants ranked as their top four needs information about the likelihood of a cure (79%), extent of the disease (76%), treatment options (55%), and family risk of developing breast cancer (51%). Certain demographic and clinical characteristics-religious belief, whether living alone or not, household income, educational level, and time since cancer diagnosis-influenced patients’ prioritization of information needs.Conclusion:Understanding and meeting the information needs of breast cancer patients are crucial to improving their quality of care. Different patients are likely to have different priorities in information needs according to their demographic and clinical characteristics. An awareness of these associated factors will allow better tailor-made educational interventions to be provided to meet patients’ individual needs in a more adequate way.

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Consistency in paired comparisons of Information Needs Questionnaires (INQ) among Hong Kong Chinese breast cancer patients

Cited by 3 publications

References 24 publications

Studies analysing the need for health-related information in Germany - a systematic review

Studies analysing the need for health-related information in Germany - a systematic review

Development of Japanese Versions of the Control Preferences Scale and Information Needs Questionnaire: Role of Decision-Making and Information Needs for Japanese Breast Cancer Patients

Factors in the prioritization of information needs among Hong Kong Chinese breast cancer patients

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