Connecting Implementation Science, Community-Engaged Research, and Health Promotion to Address Cancer Inequities in Massachusetts: The UMB/DF-HCC U54 Outreach Core

Ramanadhan, Shoba; Donaldson, S. Tiffany; Siqueira, Carlos Eduardo; Rackard-James, Charlotte; Miller, E. Stan; Tappin, Jamiah; Tracy, Natalicia; Minsky, Sara; Maldonado-Campos, Aileene A.; Bruff, Carmenza; Mahtani, Sitara; Teixeira, Marina; Viswanath, Vish

doi:10.1177/08901171211062800

Cited by 6 publications

(3 citation statements)

References 13 publications

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“…The 5Ws is also adaptable to all types of mixed method data collection and analysis to operationalize the 5Ws framework and provide the insights necessary to plan, implement, and share impactful community-based health research. As a result, the 5Ws framework can be an effective tool in community-engaged HIV research with Black cisgender women and youth in the US South and contributing to emerging community-engaged research in the study of dissemination and implementation science (Khazanie et al, 2022; Ramanadhan et al, 2022; Schlechter et al, 2021).…”

Section: Discussionmentioning

confidence: 99%

Using an Equity in Research Framework to Develop a Community-Engaged Intervention to Improve Preexposure Uptake Among Black Women Living in the United States South

Randolph,

Jeter,

Johnson

2024

J Assoc Nurses AIDS Care

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In the U.S. South, over half of new HIV diagnoses occur among Black Americans with research lagging for women who face increased HIV rates and low PrEP uptake, among other health inequities. Community engaged research is a promising method for reversing these trends with established best practices for building infrastructure, implementing research, and translating evidence-based interventions into clinical and community settings. Using the 5Ws of Racial Equity in Research Framework (5Ws) as a racial equity lens, the following paper models a review of a salon-based intervention to improve PrEP awareness and uptake among Black women that was co-developed with beauty salons, stylists, and Black women through an established community advisory council. In this paper we demonstrate how the 5Ws framework was applied to review processes, practices, and outcomes from a community-engaged research approach. The benefits of and challenges to successful collaboration are discussed with insights for future research and community impact.

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Section: Discussionmentioning

confidence: 99%

Using an Equity in Research Framework to Develop a Community-Engaged Intervention to Improve Preexposure Uptake Among Black Women Living in the United States South

Randolph,

Jeter,

Johnson

2024

J Assoc Nurses AIDS Care

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“…There is a need to go beyond traditional definitions of sustainability, to expand the construct to include more diverse voices and perspectives to advance understanding of what is needed to maximize the long-term delivery and benefits of EBIs among under-resourced communities. For any implementation effort, including but not limited to sustainability, a focus on health equity should center and uplift community values (25)(26)(27). Efforts to sustain EBIs should take into consideration the transformative nature of community engagement and its strong potential to lead toward social justice, particularly when involving the redistribution of power, resources, and decision-making (28,29).…”

Section: Challenges and Considerations In Promoting Sustainability An...mentioning

confidence: 99%

Making the connection between health equity and sustainability

Shelton,

Hailemariam,

Iwelunmor

2023

Front. Public Health

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Sustainability and health inequities are key challenges in public health and healthcare. Research suggests that only about half of evidence-based interventions (EBIs) are sustained over time, and settings and populations experiencing systemic and structural barriers to health (e.g., poverty, racism, stigma, and discrimination) experience even greater challenges to sustainability. In this article, we argue that an enhanced focus on sustainability in the field of implementation science is critical in order to maximize the long-term health benefits and broader societal impacts of EBIs for all populations and settings. From an equity perspective, a focus on sustainability is particularly critical to prioritize among population sub-groups that have not historically received the benefits of health-related EBIs. We discuss how a health equity framing is essential to sustaining EBIs in under-resourced communities, and requires moving away from a deficit mindset that focuses on why EBIs are challenging to sustain, to one that focuses more on identifying and nurturing existing assets within individuals and communities to increase the likelihood that EBIs are sustained. We conclude with a discussion of future directions as well as recommendations and resources (e.g., frameworks, tools) to advance and make progress toward sustainability from a health equity mindset, including: (1) Actively planning early for sustainability alongside key partners; (2) Tracking progress toward enhancing sustainability and being accountable in doing so equitably for all settings and populations; and (3) Focusing on both equity and engagement early and often throughout the research process and all implementation phases.

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“…This is evidenced by an increasing number of perspective pieces and commentaries highlighting the potential bene ts of this integration to both research and practice, outlining examples of federal efforts to support this research, and offering of potential frameworks to accomplish that integration (9-13). There have also been a few published case studies documenting interventions that worked to integrate engagement in D&I research for a diverse range of health and related outcomes including violence, heart disease, and cancer (14)(15)(16). It is suggested that this integration of engagement methods and approaches into D&I research can lead to improved health outcomes, but this has yet to be documented in most cases (17).…”

mentioning

confidence: 99%

Community and Partner Engagement in Dissemination and Implementation Research at the National Institutes of Health: An Analysis of Recently Funded Studies and Opportunities to Advance the Field

Villalobos¹,

Blachman-Demner

Percy-Laurry

et al. 2023

Preprint

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Background: As the focus has grown in recent years on both engaged research and dissemination and implementation (D&I) research, so too has federal funding to support these areas. The purpose of this analysis is to provide an overall perspective about the range of practices and approaches being used to engage partners in D&I research, with special attention to disparities-relevant research, and to identify gaps and opportunities in research funded by the U.S. National Institutes of Health (NIH) in this space. Methods: This analysis examined a portfolio of active D&I research grants funded in fiscal years 2020 and 2021 across the NIH. Grant applications were deductively coded and summary statistics were calculated. Cross-tabulations were used to identify trends by engagement and disparities foci. Results: There were 103 grants included in the portfolio, of which 87% contained some form of community or partner engagement, and 50% of engaged grants were relevant to health disparities. Engagement was planned across the research continuum with each study engaging on average 2.5 different partner types. Consultation was the most common level of engagement (56%) while partnership was the least common (3%). On average, each study used 2.2 engagement strategies. Only 16% of grants indicated formally measuring engagement. Compared to non-disparities studies, disparities-relevant studies were about twice as likely to engage partners at the higher levels of partnership or collaboration and were also more likely to be conducted in community settings (26% vs. 5%). Conclusions: Based on this portfolio analysis, D&I research appears to regularly integrate engagement approaches and strategies, though opportunities to deepen engagement and diversify who is engaged remain. This manuscript outlines several gaps in the portfolio and describes opportunities for increasing engagement to improve the quality of D&I research and application to advancing health equity. In addition, opportunities for leveraging the consistent and systematic application of engagement approaches and strategies to advance the science of engagement are discussed.

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Connecting Implementation Science, Community-Engaged Research, and Health Promotion to Address Cancer Inequities in Massachusetts: The UMB/DF-HCC U54 Outreach Core

Cited by 6 publications

References 13 publications

Using an Equity in Research Framework to Develop a Community-Engaged Intervention to Improve Preexposure Uptake Among Black Women Living in the United States South

Using an Equity in Research Framework to Develop a Community-Engaged Intervention to Improve Preexposure Uptake Among Black Women Living in the United States South

Making the connection between health equity and sustainability

Community and Partner Engagement in Dissemination and Implementation Research at the National Institutes of Health: An Analysis of Recently Funded Studies and Opportunities to Advance the Field

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