Congenital hypothyroidism: treat children but don't forget their parents

Chiovato, Luca; Bargagna, Stefania

doi:10.1530/eje.0.1410101

Cited by 10 publications

(11 citation statements)

References 24 publications

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“…Toma importancia en esta patología el concepto de "conciencia de enfermedad latente", ya que los seguimientos adecuados borran la evidencia clínica del daño posible, pero podrían no hacer desaparecer el miedo del padre a las consecuencias de la enfermedad y esto repercute en el mayor control del hijo. 4 Al estudiar las estrategias de afrontamiento, se encontró, en nuestra cohorte hipotiroidea, la tendencia a buscar mayor apoyo para afrontar situaciones en las que se presentaba una dificultad para resolver y paralizarse más frente al problema. Este hallazgo coincide con estudios previos que explican sobre la influencia de las estrategias de resolución de los padres, que moldean estrategias menos funcionales en el hijo.…”

Section: Discussionunclassified

“…2,3 Las estrategias de afrontamiento son los recursos que el individuo tiene para abordar situaciones estresantes que demanden un esfuerzo cognitivo y/o emocional. 4,5 La manera en que afronta situaciones depende de los recursos disponibles, las limitaciones del medio para el uso de tales recursos y de su capacidad para aplicarlos ante las distintas demandas del entorno. [6][7][8] Los padres de un hijo crónicamente enfermo utilizan estrategias de afrontamiento que también pueden influir en las estrategias del hijo.…”

Section: Introductionunclassified

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Estilos parentales y estrategias de afrontamiento en pacientes con hipotiroidismo congénito detectado y tratado en forma temprana

Campos

Musso

Keselman

et al. 2018

Arch Argent Pediatr

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RESUMENEl hipotiroidismo congénito (HC) como enfermedad crónica impacta en la vinculación padres-hijo y en recursos del niño para afrontar situaciones conflictivas. Objetivos. Describir estilos parentales desde la percepción del hijo con HC y sus estrategias de afrontamiento. Población y métodos. Niños de entre 9 y 10 años con HC detectado por pesquisa neonatal y adecuadamente tratado y un grupo sin HC (grupo control). Se utilizó el cuestionario argentino de afrontamiento y la escala argentina de percepción de la relación con los padres y el subtest comprensión de la Wechsler Intelligence Scale for Children III (WISC III). Se compararon los resultados con el análisis multivariante de la varianza (multivariate analysis of variance; MANOVA, por sus siglas en inglés). Resultados. Se incluyeron 60 niños con HC; percibían a su madre con una modalidad de control estricto y a su padre con más aceptación. Buscaban mayor apoyo y se paralizaban más ante situaciones conflictivas que los 60 niños sin patología. Conclusión. Estos hallazgos podrían asociarse a mayor dependencia. Deben considerarse en la atención del HC. Palabras clave: hipotiroidismo congénito, enfermedad crónica, estilos parentales, estrategias de afrontamiento.

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Section: Discussionunclassified

Section: Introductionunclassified

Estilos parentales y estrategias de afrontamiento en pacientes con hipotiroidismo congénito detectado y tratado en forma temprana

Campos

Musso

Keselman

et al. 2018

Arch Argent Pediatr

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“…[90] Léger et al [30] found the socioprofessional status of parents had a stronger impact on a child's school performance than any of the other disease or treatmentrelated factors examined. [90] Léger et al [30] found the socioprofessional status of parents had a stronger impact on a child's school performance than any of the other disease or treatmentrelated factors examined.…”

Section: Social Genetic and Environmental Factorsmentioning

confidence: 99%

Congenital Hypothyroidism

Rovet

Daneman

2003

Pediatric Drugs

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Because thyroid hormone is essential for normal brain development, children born with congenital hypothyroidism who lack thyroid hormone during a circumscribed period of early development are at risk of brain damage and mental retardation. Since the advent of newborn screening programs in the 1980s, the diagnosis and treatment of this condition are now provided in the first 2-3 weeks of birth in most regions. While this is usually sufficient to prevent mental retardation, the children so identified attain mildly reduced IQs from expectation, and may still experience subtle and specific neurocognitive deficits. Their particular deficits are related to the brief period of thyroid hormone insufficiency they undergo, especially factors reflecting the severity of hypothyroidism at the time of diagnosis, the duration of hypothyroidism in infancy, and thyroid hormones at time of testing. In this article, we review the specific kinds of deficits demonstrated by children with congenital hypothyroidism who were diagnosed by screening and treated early, as well as the factors associated with their disease and its management that contribute to these deficits. The disease-related factors that will be reviewed will include the etiology of hypothyroidism and severity of disease at the time of diagnosis, while the treatment-related factors will include age at onset of therapy, starting and subsequent dose levels, compliance, and treatment-adequacy issues. Also examined will be the effects of hormone levels at the time of testing. In addition, the role of moderating variables such as social, genetic, and environmental influences, as well as the child's gender, will be discussed. Furthermore, several new issues including the quality of subsequent management, ultimate outcome, and pregnancy will be additionally reviewed. In conclusion, while outcome in congenital hypothyroidism is substantially improved by screening, affected children do still experience mild neuropsychologic deficits. To reduce the impact of persisting deficits, further research is needed to determine the optimal starting dose for the different etiologies, guidelines for subsequent management, and alternative therapies. Moreover, now that the original samples are reaching adulthood and, in females, childbearing age, further research is also needed regarding treatment during pregnancy in women with congenital hypothyroidism, as is research to determine how this population ultimately fares in adulthood.

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“…Therefore, it is important to take into consideration the parents' attitudes towards their children's disease (19). However, the parents' point of view regarding their children's emotions and behaviour has not been thoroughly studied.…”

Section: Introductionmentioning

confidence: 99%

Psychological and behavioural aspects in children and adolescents with congenital hypothyroidism diagnosed by neonatal screening: comparison between parents' and children's perceptions

Bisacchi¹,

Bal²,

Nardi³

et al. 2011

European Journal of Endocrinology

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Objective: To compare the psychological adjustment and behaviour of congenital hypothyroidism (CH) children and their parents with a control group. Study design: A cross-sectional study was carried out with 84 CH subjects diagnosed by neonatal screening (range 2.7-18.6 years), subdivided into four age groups: group 1 (2-5 years); group 2 (6-10 years); group 3 (11-13 years); and group 4 (14-18 years) and was compared with an age-matched control group. Patients were assessed using two questionnaires: Child Behaviour Checklist for parents and Youth Self-Report for children over 11 years of age. Results: In groups 1, 3 and 4, total score (TS), internalising score (ISZproblems within the self) and externalising score (ESZconflicts with other people) as reported by parents were not significantly different in CH patients and in controls. In group 2, parents of CH children showed values of TS (P!0.05), IS (P!0.05), ES (P!0.05) and scores on other scales significantly higher than controls. In self-reports of groups 3 and 4, the behavioural scales were not significantly different in CH patients and in controls. Conclusions: Paediatricians should be informed about the increased risk of the development of behavioural problems at primary school age in CH patients. At this age special attention should be paid to parental worries and anxiety. However, it can be reassuring for the patients and parents to know that the problems may be related to CH, and that they may spontaneously disappear.

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Congenital hypothyroidism: treat children but don't forget their parents

Cited by 10 publications

References 24 publications

Estilos parentales y estrategias de afrontamiento en pacientes con hipotiroidismo congénito detectado y tratado en forma temprana

Estilos parentales y estrategias de afrontamiento en pacientes con hipotiroidismo congénito detectado y tratado en forma temprana

Congenital Hypothyroidism

Psychological and behavioural aspects in children and adolescents with congenital hypothyroidism diagnosed by neonatal screening: comparison between parents' and children's perceptions

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