Conflicts Experienced by Caregivers of Older Adults With the Health-Care System

Rajanala, Alekya; Ramirez‐Zohfeld, Vanessa; O’Conor, Rachel; Brown, Denise; Lindquist, Lee A.

doi:10.1177/2374373520921688

Cited by 10 publications

(8 citation statements)

References 18 publications

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“…In this context, they can consider their interaction with healthcare professionals (HCPs) a burden that affects their experience of being a relative [18,19,32,35,36]. These experiences relate to conflicts caused by the quality of communication between HCPs and relatives [19,32,36,37].…”

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confidence: 99%

Relatives’ negotiation power in relation to older people’s acute hospital admission: A qualitative interview study

Hoffmann

Andersen

Mogensen

et al. 2021

Scandinavian Caring Sciences

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BACKGROUNDChanges in the current welfare models, demographic challenges, increasing organisational complexity and the limited healthcare system resources all require citizens to be active and take personal responsibility for their health [1,2]. The policies and strategies of the modern healthcare system assume that patients are well informed and are able to take care of themselves [3][4][5].In this regard, according to Katrin Hjort's theory, citizens must have strong client competencies to obtain access to welfare benefits, including quality care and treatment from

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mentioning

confidence: 99%

Relatives’ negotiation power in relation to older people’s acute hospital admission: A qualitative interview study

Hoffmann

Andersen

Mogensen

et al. 2021

Scandinavian Caring Sciences

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“…27 Our research further supports this specifically on family caregiver conflicts with the healthcare system and the need to negotiate. 28 Moreover, family caregivers often lack formal training in conflict resolution.…”

Section: Introductionmentioning

confidence: 99%

NegotiAge: Development and pilot testing of an artificial intelligence‐based family caregiver negotiation program

Murawski,

Ramirez‐Zohfeld,

Mell

et al. 2024

J American Geriatrics Society

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BackgroundFamily caregivers of people with Alzheimer's disease experience conflicts as they navigate health care but lack training to resolve these disputes. We sought to develop and pilot test an artificial‐intelligence negotiation training program, NegotiAge, for family caregivers.MethodsWe convened negotiation experts, a geriatrician, a social worker, and community‐based family caregivers. Content matter experts created short videos to teach negotiation skills. Caregivers generated dialogue surrounding conflicts. Computer scientists utilized the dialogue with the Interactive Arbitration Guide Online (IAGO) platform to develop avatar‐based agents (e.g., sibling, older adult, physician) for caregivers to practice negotiating. Pilot testing was conducted with family caregivers to assess usability (USE) and satisfaction (open‐ended questions with thematic analysis).ResultsDevelopment: With NegotiAge, caregivers progress through didactic material, then receive scenarios to negotiate (e.g., physician recommends gastric tube, sibling disagrees with home support, older adult refusing support). Caregivers negotiate in real‐time with avatars who are designed to act like humans, including emotional tactics and irrational behaviors. Caregivers send/receive offers, using tactics until either mutual agreement or time expires. Immediate feedback is generated for the user to improve skills training. Pilot testing: Family caregivers (n = 12) completed the program and survey. USE questionnaire (Likert scale 1–7) subset scores revealed: (1) Useful—Mean 5.69 (SD 0.76); (2) Ease—Mean 5.24 (SD 0.96); (3) Learn—Mean 5.69 (SD 0.74); (4) Satisfy—Mean 5.62 (SD 1.10). Items that received over 80% agreements were: It helps me be more effective; It helps me be more productive; It is useful; It gives me more control over the activities in my life; It makes the things I want to accomplish easier to get done. Participants were highly satisfied and found NegotiAge fun to use (91.7%), with 100% who would recommend it to a friend.ConclusionNegotiAge is an Artificial‐Intelligent Caregiver Negotiation Program, that is usable and feasible for family caregivers to become familiar with negotiating conflicts commonly seen in health care.

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“…Caregivers may feel overwhelmed by the demands of care, with many reporting negative physical and mental effects. In one study, 53.4% of caregivers reported that they needed to provide whole-day care for older adults, and 57.7% reported that they suffered negative physical and mental effects because of caring for patients without taking care of their own health [14]. Research shows that in China, the caregiver burden for elderly patients having chronic diseases is moderate to high [15].…”

Section: Introductionmentioning

confidence: 99%

Self-efficacy and well-being in the association between caregiver burden and sleep quality among caregivers of elderly patients having multiple chronic conditions in rural China: a serial multiple mediation analysis

Zhang

Sun

Zhao

et al. 2023

Preprint

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Background Caregivers of elderly patients with multiple chronic conditions have heavy caregiver burden and poor sleep quality, which has an important impact on both caregivers and patients. This study aimed to examine among rural caregivers of elderly patients who have multiple chronic conditions in China, whether self-efficacy and well-being mediate the link between caregiver burden and sleep quality. Methods The study recruited 325 caregivers of elderly patients having multiple chronic conditions in rural China. This current study utilized several measures including the Caregiver Burden Inventory (CBI), Athens Insomnia Scale (AIS), General Self-Efficacy Scale (GSES) and Index of Well-Being (IWB) to collect data from participants. Structural equation modeling was employed to study the relationships in caregiver burden, sleep quality, self-efficacy, as well as well-being. Results Results indicate self-efficacy and well-being act as mediators in the link between caregiver burden and sleep quality, accounting for 10.94% and 15.63% of the total effect, respectively. In addition, results suggest that self-efficacy and well-being have a serial multiple mediating effect, with this mediating pathway, explaining 9.93% of the total effect. Conclusions Caregivers of elderly patients having multiple chronic conditions in rural China experience poor sleep quality due to the caregiver burden. Self-efficacy and well-being have serial mediating roles between caregiver burden and sleep quality.

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Conflicts Experienced by Caregivers of Older Adults With the Health-Care System

Cited by 10 publications

References 18 publications

Relatives’ negotiation power in relation to older people’s acute hospital admission: A qualitative interview study

Relatives’ negotiation power in relation to older people’s acute hospital admission: A qualitative interview study

NegotiAge: Development and pilot testing of an artificial intelligence‐based family caregiver negotiation program

Self-efficacy and well-being in the association between caregiver burden and sleep quality among caregivers of elderly patients having multiple chronic conditions in rural China: a serial multiple mediation analysis

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