Condition, disease, disability: how the label used to describe infertility may affect public support for fertility treatment coverage

Abstract

Purpose To assess public attitudes towards fertility treatment coverage and whether attitudes are influenced by infertility labels. Methods Cross-sectional, web survey-based experiment using a national sample of 1226 United States adults. Participants read identical descriptions about infertility, with the exception of random assignment to infertility being labeled as a "condition," "disease," or "disability." Participants then responded to questions measuring their beliefs and attitudes towards policies related to the diagnosis and treatment of infertility. We measured public support for infertility policies, public preference for infertility labels, and whether support differed by the randomly assigned label used. We also queried associations between demographic data and support for infertility policies. Results Support was higher for insurance coverage of infertility treatments (p=.014) and fertility preservation (p=.017), and infertility public assistance programs (p=.036) when infertility was described as a "disease" or "disability" compared to "condition." Participants who were younger, were planning or trying to conceive, had a family member or friend with infertility, and/ or had a more liberal political outlook were more likely to support infertility policies. A majority of participants (78%) felt the term "condition" was the best label to describe infertility, followed by "disability" (12%). The least popular label was "disease" (10%). Those preferring "condition" were older (p<.001), more likely to be non-Hispanic White (p=.046), and less likely to have an infertility diagnosis (p<.001). Conclusion While less commonly identified as the best descriptors of infertility, labeling infertility as a "disease" or "disability" may increase support for policies that improve access to infertility care Keywords Survey . Access to care . Infertility . Definitions