Conceptualization and measurement of quality of life as an outcome variable for health care intervention and research

Anderson, Kristen; Burckhardt, Carol S.

doi:10.1046/j.1365-2648.1999.00889.x

Cited by 184 publications

(158 citation statements)

References 44 publications

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“…A diversity of measures for this purpose had already been developed in the fields of medicine and health psychology (e.g., Anderson & Burckhardt, 1999;Diener, Emmons, & Larsen, 1985;Frisch, Clark, & Rouse, 2005;World Health Organization, 1995); thus, clinical psychologists have turned to these ready-made instruments for use in their work. However, from the current perspective, these instruments are missing something very important; namely, any link to a theory that allows the manipulation of important psychological or environmental variables in order to effect change.…”

Section: Cognitive Behavioral Therapy and Valuesmentioning

confidence: 99%

In search of meaning: Values in modern clinical behavior analysis

et al. 2009

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Skinner described behavior analysis as the field of values and purpose. However, he defined these concepts in terms of a history of reinforcement and failed to specify whether and how human and nonhuman values might differ. Human values have been seen as theoretically central within a number of nonbehavioral traditions in psychology, including humanism and positive psychology. However, these approaches have failed to provide explanations of the behaviorenvironment relations involved in valuing that might allow prediction and influence with respect to this phenomenon. Modern clinical behavior analysis in the form of acceptance and commitment therapy (ACT), however, succeeds in providing a functional definition of human values that meets this latter criterion. ACT is rooted in behavior analysis and relational frame theory (RFT) and defines values in terms of verbally established motivation. ACT empirical research into values has begun to blossom in recent years, and ACT-RFT researchers are currently investigating the concept at the most basic empirical level as well as in the applied clinical arena, heralding new interest in and insight into values within clinical behavioral psychology.

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Section: Cognitive Behavioral Therapy and Valuesmentioning

confidence: 99%

In search of meaning: Values in modern clinical behavior analysis

et al. 2009

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“…It covers a variety of domains, including physical and mental health, symptoms, functional status and the overall perception of health (1)(2)(3). It represents a clinical indicator of the patient's wellbeing, as reflected by patients' perceived health, effects of the disease and treatment consequences (4).…”

Section: Introductionmentioning

confidence: 99%

Health behavior and health-related quality of life in patients with a high risk of cardiovascular disease

Petek¹,

Petek-Ster²,

Tušek-Bunc³

2018

Slovenian Journal of Public Health

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Original scientific articleBackground: Health-related quality of life (HRQoL) is measuring a patient's experience of his health status and represents an outcome of medical interventions. Existing data proves that a healthy lifestyle is positively associated with HRQoL in all age groups. Patients with a high risk for cardiovascular disease typically led an unhealthy lifestyle combined with risk diseases. We aimed to analyse these characteristics and their reflection in HRQoL. Methods:A cross-sectional study in 36 family practices, stratified by location and size. Each practice invited 30 high-risk patients from the register. Data were obtained from medical records and patient questionnaire. The EQ-5D questionnaire and the VAS scale were used for measuring the patient's HRQoL as an independent variable.Results: 871 patients (80.6% response rate) were included in the analysis. 60.0% had 3-4 uncontrolled risk factors for CVD. The average VAS scale was 63.2 (SD 19.4). The correlation of EQ-5D was found in the number of visits in the practice (r=-0.31, p<0.001), the socioeconomic status (r=-0.25, p=0.001), age (r=-0.27, p=0.001) and healthy diet (r=0.20, p=0.006). In a multivariate model, only physical activity among lifestyle characteristics was an independent predictor of HRQoL (p=0.001, t=3.3), along with the frequency of visits (p<0.001, t=-5.3) and age (p=0.025, t=-2.2). Conclusion:This study has been performed on a specific group of patients, not being "really sick", but having less optimal lifestyle in many cases. Encouragement to improve or keep healthy lifestyle, especially physical activity, is important, not only to lower the risk for CVD, but also to improve HRQoL. Izhodišča Metode: Presečna raziskava je bila izvedena v 36 ambulantah družinske medicine, stratificiranih glede na lokacijo (mesto, podeželje) in velikost (do dva oz. več polno zaposlenih zdravnikov na lokaciji). Vsaka ambulanta je k sodelovanju povabila 30 bolnikov iz registra visoko ogroženih za nastanek bolezni srca in ožilja (BSO) po Framinghamski tabeli ogroženosti. Ustrezni podatki so bili pridobljeni iz zdravstvenih kartotek in s pomočjo vprašalnikov za bolnike. Z zdravjem povezana kakovost življenja je bila merjena s petdimenzionalnim EQ-5D vprašalnikom in z VAS lestvico kakovosti življenja, ki sta predstavljala neodvisni spremenljivki.Rezultati: V analizo je bilo vključenih 871 bolnikov (80,6 % vseh vabljenih). Od teh je 60,0 % imelo 3-4 prisotne dejavnike tveganja za nastanek BSO. Povprečna vrednost VAS lestvice je bila 63,2 (SE 0,72). Ugotovljena je bila korelacija med EQ-5D in pogostostjo obiskov bolnika v enem letu v ambulanti (r=-0,31, p<0,001), socialnoekonomskim statusom bolnika (r=-0,25, p=0,001), starostjo bolnika (r=-0,27, p=0,001) in zdravim načinom prehranjevanja (r=0,20, p=0,006). Med vsemi spremenljivkami so bili v multivariatnem modelu neodvisni napovedni dejavniki HRQoL telesna aktivnost (p=0,001, t=3,3), pogostost obiskov bolnika v ambulanti (p<0,001,3) in starost bolnika (p=0,025, t=-2,2 Petek D, Petek-Ster M, Tusek-...

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“…Por QV entende-se uma percepção subjetiva de felicidade ou satisfação com a vida em termos de esferas de importância para o indivíduo. Sociólogos e psicólogos contemporâneos têm definido QV como o conjunto de aspirações ou expectativas em relação à vida e a possibilidade de concretização destas 1 .…”

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Qualidade de vida e epilepsia: perspectivas futuras e ações práticas para a pessoa com epilepsia

Alonso

Westphal-Guitti

Fernandes

et al. 2010

J. epilepsy clin. neurophysiol.

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RESUMOIntrodução: O evento de Qualidade de Vida (QV) promovido pela ABE teve por objetivo reunir profissionais da área e traçar um breve panorama dos estudos da literatura e da situação dos estudos em nosso país. Metodologia: Temas como instrumentos utilizados mundialmente na avaliação da QV das pessoas com epilepsia (PCE), validações realizadas no Brasil, fatores que afetam a QV nas epilepsias e aspectos da família foram amplamente discutidos. Resultados: Frequência e gravidade das crises, depressão, ansiedade, efeitos adversos das medicações, tratamento cirúrgico, bem como fatores psicossociais (estigma, isolamento social, ausência de suporte) exercem influência marcante sobre a QV. Conclusão: Ações práticas futuras requerem a realização de estudos brasileiros multicêntricos.Unitermos: Epilepsias, qualidade de vida; validação de instrumentos, fatores que afetam a QV, funcionamento familiar. ABSTRACT Epilepsy and quality of life symposium: Future perspectives and practice actions to people with epilepsyIntroduction: Participants at a workshop sponsored by Associação Brasileira de Epilepsia (ABE) in Brazil, November, 2009 determined the importance of quality of life (QOL) studies. The goal of the symposium was to increase awareness among health care professionals of the importance of QOL reseaches. Methods: QOL concepts, instruments validation to Brazil, the impact of seizures and influencing factors in QOL were discussed. Results: Seizures severity and frequency, depression, anxiety, adverse drug effects, surgical treatment, and psychosocial factors affecting QOL of people with epilepsy (PWE). The final section looked at the important role of family burden. Conclusion: Future multicentric researches in Brazil will allow to understand the implication of seizures in PWE, and to provide tolls to prevent and diminish the negative impact of epilepsy in QOL.

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Conceptualization and measurement of quality of life as an outcome variable for health care intervention and research

Cited by 184 publications

References 44 publications

In search of meaning: Values in modern clinical behavior analysis

In search of meaning: Values in modern clinical behavior analysis

Health behavior and health-related quality of life in patients with a high risk of cardiovascular disease

Qualidade de vida e epilepsia: perspectivas futuras e ações práticas para a pessoa com epilepsia

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