2014
DOI: 10.1016/j.jpainsymman.2013.02.021
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Concepts and Definitions for “Actively Dying,” “End of Life,” “Terminally Ill,” “Terminal Care,” and “Transition of Care”: A Systematic Review

Abstract: Context The terms “actively dying,” “end of life,” “terminally ill,” “terminal care,” and “transition of care” are commonly used but rarely and inconsistently defined. Objectives We conducted a systematic review to examine the concepts and definitions for these terms. Methods We searched MEDLINE, PsycINFO, Embase, and CINAHL for published peer-reviewed articles from 1948 to 2012 that conceptualized, defined, or examined these terms. Two researchers independently reviewed each citation for inclusion and the… Show more

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Cited by 273 publications
(186 citation statements)
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References 27 publications
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“…(106) As in many aspects of palliative care, precise definitions for specific terms are needed. (107109) ESAS-r has contributed to improving the clarity for several items. However, some terms such as depression and well being may benefit from further research to examine their construct validity.…”
Section: Future Developmentsmentioning
confidence: 99%
“…(106) As in many aspects of palliative care, precise definitions for specific terms are needed. (107109) ESAS-r has contributed to improving the clarity for several items. However, some terms such as depression and well being may benefit from further research to examine their construct validity.…”
Section: Future Developmentsmentioning
confidence: 99%
“…16 A systematic review of the literature clarified that both of these terms refer to patients with “months or less of life expectancy,” which represent the target population of this review. 17 …”
Section: Principles Of Prognosticationmentioning
confidence: 99%
“…Several studies examining disease trajectory have shown that cancer patients develop increasing symptom burden and decreasing function over the last few months to weeks of life (47). However, there has been a paucity of studies examining the symptom burden in dying cancer patients (i.e., days of life expectancy) (811), and no studies in APCUs where patients receive intensive management focusing on quality of life.…”
Section: Introductionmentioning
confidence: 99%