Comprehensive long‐term care of patients with multiple sclerosis

Scheinberg, Labe C.; Holland, Nancy J.; Kirschenbaum, Marc; Oaklander, Annelouise; Geronemus, Diann F.

doi:10.1212/wnl.31.9.1121

Cited by 9 publications

(4 citation statements)

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“…It seems essential that physicians provide patients with disease and treatment information continuously and at the time of initial diagnosis when patients might be under stress and have difficulties to absorb information [19]. Lack of knowledge or lack of any pointers to information at the time of diagnosis contributes to further feelings of abandonment, isolation and helplessness in MS patients [20].…”

Section: Discussionmentioning

confidence: 99%

Coping Strategy and Anxiety Evolution in Multiple Sclerosis Patients Initiating Interferon-Beta Treatment

Moreau¹,

Schmidt

Joyeux

et al. 2009

Eur Neurol

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This study (ACSEPT) aimed to assess anxiety evolution according to coping strategy in patients with multiple sclerosis (MS) during their first months of treatment with interferon (IFN)-β1a. Recently diagnosed relapsing-remitting MS (RRMS) patients (n = 255) were included and received standardized information on MS. At inclusion, the preferred coping mode was determined using the Coping Inventory for Stressful Situations (CISS). Anxiety and depression were assessed at inclusion and after 3 months using the Spielberger State-Trait Anxiety Inventory and the Beck Depression Inventory, respectively. At inclusion, the preferred coping strategy was task-oriented for most patients (53%), 51% were considered as anxious, and the mean Beck depression score was low. Emotion-oriented patients were more anxious and more depressed than the 2 other coping groups (task- and avoidance-oriented). During the first 3 months of IFN treatment, the anxiety level slightly decreased in the total population, more intensively in the emotion-oriented group, and there were no clinically significant changes in the Beck depression score. Anxiety and depression remained stable or decreased during the first 3 months of IFN treatment, depending on coping strategy. Identifying these coping strategies during therapy initiation may allow customized support and improve treatment adherence.

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Section: Discussionmentioning

confidence: 99%

Coping Strategy and Anxiety Evolution in Multiple Sclerosis Patients Initiating Interferon-Beta Treatment

Moreau¹,

Schmidt

Joyeux

et al. 2009

Eur Neurol

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“…The rehabilitation approach undertaken in this study was based on a model of comprehensive care [42] that considers that rehabilitation management extends beyond symptomatic treatment, and emphasizes the achievement of the besc possible quality of life for the person within the limits of the disease [43]. Although no two centers practice or deliver comprehensive care in an identical way, the literature demonstrates a commonality of practice between centers, with the key elements identified as (1) a muhidisciplinary team approach, (2) interventions tailored to meet the individual's needs, and (3) a patient-centered functional goal-setting ap-proach 115,19,20,44,451. Each of these key elements formed an integral part of the rehabilitation program undertaken by the patients in the treatment group.…”

Section: The Rehabilitation Programmentioning

confidence: 99%

The impact of inpatient rehabilitation on progressive multiple sclerosis

Freeman¹,

Langdon²,

Hobart³

et al. 1997

Annals of Neurology

214

103

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One of the primary aims of rehabilitation for patients with multiple sclerosis (MS) is to reduce their levels of disability and handicap, yet little systematic research into the outcomes of this intervention has been undertaken. This stratified, randomized, wait-list controlled study evaluated the effectiveness of a short period of multidisciplinary inpatient rehabilitation in people with MS. Sixty-six patients in the progressive phase of the disease were assessed at 0 and 6 weeks with validated measures of impairment (Expanded Disability Status Scale and Functional Systems), disability (Functional Independence Measure), and handicap (London Handicap Scale). Both groups were comparable in terms of age, sex, disease duration and severity, disability, and handicap. At the end of 6 weeks, although the level of impairment in both groups remained the same, those who participated in a short period of inpatient rehabilitation (average of 25 days) significantly improved their level of disability and handicap compared with those in the wait-list control group. Despite unchanging impairment, inpatient rehabilitation resulted in reduced disability and handicap in patients with progressive MS.

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“…However, a combination of plasmapheresis and immunosup-pressive drugs such as azathioprine and prednisone seems to be more promising (Dau et al, 1980). While no therapy is available at present that can assure the arrest of the progression of the disease process in MS, comprehensive care of the needs of MS patients can significantly increase the life expectancy and in addition can improve the quality of life for these patients (Slater, 1980a,b;Scheinberg et al, 1981). Treatment of spasticity, e.g., with the derivative of ')'-aminobutyric acid Badofen, orthopedic measures, improvement of bladder function, early treatment of infections with antibiotics, and prevention of decubitus, have to be employed constantly and if necessary should be combined with psychosocial support.…”

Section: Class I: Acquired Autoimmune (Lnflammator Y) and Infectious mentioning

confidence: 99%

Myelin

1984

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Comprehensive long‐term care of patients with multiple sclerosis

Cited by 9 publications

References 0 publications

Coping Strategy and Anxiety Evolution in Multiple Sclerosis Patients Initiating Interferon-Beta Treatment

Coping Strategy and Anxiety Evolution in Multiple Sclerosis Patients Initiating Interferon-Beta Treatment

The impact of inpatient rehabilitation on progressive multiple sclerosis

Myelin

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