Comprehensive health promotion for the pregnant woman who is disabled The role of the midwife

Carty, Elaine; Conine, Tali A.; Hall, Lorraine

doi:10.1016/0091-2182(90)90163-y

Cited by 13 publications

(9 citation statements)

References 11 publications

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“…Earlier research predominantly focused on pregnancy and RA (Carty et al, 1993;Fiddler, 1997). Research on the practical issues of childcare when a parent has arthritis, has so far been largely anecdotal (Campion, 1990;Carty et al, 1990;1993;Holroyd, 1992;Ostensen and Rugelsjoen, 1994;Unsworth, 1997;Wade et al, 1998; and qualitative in nature Grant, 2001). Barlow et al (1999) reported a survey of parents with AS together with focus groups of parents and grandparents with RA and AS.…”

Section: Introductionmentioning

confidence: 98%

Being a parent or grandparent with back pain, ankylosing spondylitis or rheumatoid arthritis: a descriptive postal survey

Grant

Foster

Wright

et al. 2004

Musculoskeletal Care

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Research that explores being a parent or grandparent with musculoskeletal problems has been fairly limited to date. The aim of this study was to describe the experience of parenting in the context of back pain (BP), ankylosing spondylitis (AS) and rheumatoid arthritis (RA), with a particular focus on the extent and nature of childcare experiences and to compare these experiences across the three groups. In addition, the possible reasons for these reported experiences, the availability of advice and support and the development of strategies for coping were explored using a cross-sectional descriptive survey. A total of 448 participants was recruited from relevant charitable organizations and the National Health Service (280 with BP, 106 with AS and 62 with RA). A combination of opportunistic and random sampling was used. Quantitative data were analysed with appropriate descriptive and inferential statistics using Statistical Package for the Social Sciences (SPSS version 10). Qualitative data were analysed using content analysis. Results indicate that a high proportion of all groups experienced a wide range of difficulties with parenting (81% BP, 77% AS, 97% RA). The most prevalent problems were similar for all three groups: lifting baby/child from the floor or cot, encouraging children/grandchildren to help with domestic chores and keeping up (in terms of energy) with children/grandchildren. However, the RA group reported having greater difficulties than the other two groups. Very little advice was offered to participants with parenting difficulties which may indicate a gap in service provision. However, a wide range of strategies for coping were described by respondents. The study highlighted a need for healthcare professionals to develop a greater awareness of parenting issues and to provide opportunities for these issues to be addressed.

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Section: Introductionmentioning

confidence: 98%

Being a parent or grandparent with back pain, ankylosing spondylitis or rheumatoid arthritis: a descriptive postal survey

Grant

Foster

Wright

et al. 2004

Musculoskeletal Care

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“…3,14−16 A stool softener/laxative such as colace or pericolace can be initiated to prevent constipation related to the iron. 14,17 Many of the medications used for pain control, spasticity control, blood pressure regulation, bladder infection prophylaxis, and depression are not suitable for use in pregnancy and should be substituted before conception. 7,11 By performing a thorough review of current medications, the provider can reduce the risk of fetal anomalies through discontinuation or substitution of some of the common antispasmodics and neuroregulators that are Food and Drug Administration category C or D in pregnancy.…”

Section: Preconception Carementioning

confidence: 99%

“…The new obstetric visit must be scheduled for 2 hours; an uncomplicated return prenatal visit may require 1 hour. 17 Movement from the wheelchair to the examination table may require a lift and/or extra personnel as well as extended time. The examination table height needs to be adjustable with extra width and safety straps or side rails available to assist with comfortable positioning for the pregnant woman with SCI.…”

Section: Pregnancymentioning

confidence: 99%

Challenges in the Management of the Pregnant Woman With Spinal Cord Injury

Camune

2013

Journal of Perinatal &Amp; Neonatal Nursing

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About 12 000 women of childbearing age sustain spinal cord injuries each year in the United States. Around 2000 of these women become pregnant in a given year, yet few providers are aware of the interprofessional team approach needed to achieve a successful pregnancy with healthy outcomes for both mother and fetus. A family-centered approach by an experienced team can make the childbearing experience both safe and optimal for the maternal-fetal dyad. The challenges related to caring for women with spinal cord injury during pregnancy, including skin breakdown, urinary tract infections, respiratory compromise, bowel motility, depression/anxiety, preterm labor, and autonomic dysreflexia, are reviewed.

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“…A woman’s desire to bear children often does not disappear after she has sustained a spinal cord injury (SCI), and women hoping to become mothers after a SCI have special health care service needs [1, 2], including accessibility of health care facilities, adjustment of assistive devices, counselling and changes in medications. Several qualitative studies from the United States (US) [3–6] suggest that the needs of these women are often not fully met.…”

Section: Introductionmentioning

confidence: 99%

“…Previous studies have shown that it is important to meet the needs of pregnant women with SCI to ensure optimal health of the mother and child, to ensure participation and quality of life, to ensure equity of service provision and to avoid discrimination [2, 10, 18–24]. …”

Section: Introductionmentioning

confidence: 99%

Perceived needs and experiences with healthcare services of women with spinal cord injury during pregnancy and childbirth — a qualitative content analysis of focus groups and individual interviews

Bertschy

Geyh

Pannek

et al. 2015

BMC Health Serv Res

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BackgroundWomen after a spinal cord injury (SCI), who decide to get pregnant and to become mothers, have special health care service needs. This study aims to identify the perceived service needs of woman with SCI during pregnancy and childbirth in Switzerland and to reconstruct their experiences of healthcare service utilization based on their accounts.MethodsA qualitative content analysis based on focus groups and individual interviews was conducted. 17 mothers with SCI who had given birth following SCI within the past 15 years participated. The data were transcribed verbatim before content analyses were carried out. Primary data was collected from August 2012 to September 2013 at the Swiss Paraplegic Research Centre, Nottwil; the University of Lausanne and at the homes of the participants.ResultsMothers reported a broad spectrum of medical needs, including the need for access to improved integrated care. They also reported difficulties finding providers with knowledge of both paraplegiology (i.e. spinal cord medicine) and gynaecology. Mothers preferred using local health care services and regular birth hospitals, and reported receiving no additional benefit from the services of specialised SCI centres during pregnancy. A pre-existing provider-patient relationship was helpful for optimizing care processes.ConclusionThis study showed that pregnant women with SCI have various perceived healthcare needs and health care service use. Effective programs to improve these women’s access to integrated care during pregnancy and childbirth and policies requiring the provision of specific pregnancy information and pre-birth services are necessary.

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Comprehensive health promotion for the pregnant woman who is disabled The role of the midwife

Cited by 13 publications

References 11 publications

Being a parent or grandparent with back pain, ankylosing spondylitis or rheumatoid arthritis: a descriptive postal survey

Being a parent or grandparent with back pain, ankylosing spondylitis or rheumatoid arthritis: a descriptive postal survey

Challenges in the Management of the Pregnant Woman With Spinal Cord Injury

Perceived needs and experiences with healthcare services of women with spinal cord injury during pregnancy and childbirth — a qualitative content analysis of focus groups and individual interviews

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