Complex support needs profile of an adult cohort with intellectual disability transitioning from state-based service provision to NDIS-funded residential support

Supporting the needs of people with intellectual and developmental disabilities 1 year into the COVID‐19 pandemic: An international, mixed methods study of nurses' perspectives

“…Nurses are an important member of the support team for people with IDD. Due to disparate nonmodifiable genetic and metabolic factors, fully modifiable chronic illnesses, and poor access to and uptake of health prevention (Cooper et al, 2015 ), people with IDD have a higher rate of multiple chronic and complex health conditions than people without IDD, which often require nursing support (Wilson et al, 2020 ). While historically most care of people with IDD took place in the family home, IDD nursing, as a nursing specialty, arose with the institutionalization movement of the first half of the 20th century, as many people with developmental disabilities were segregated away from society in large institutions with nurses delivering and overseeing care (Auberry, 2018 ; Boschma, 2020 ; O'Reilly et al, 2018 ).…”

The Financial Costs of Registered Nurse-Led Relationship-Centred Care: A Single-Case Australian Feasibility Study

“…Derek's diagnoses and support needs are extremely common among ageing adults with profound intellectual disability, a secondary disability and multiple chronic and complex health problems [25]. A recent report into deaths of people living in Australian disability services, noted case studies very similar to Derek, but with major gaps in service provision and managing deteriorating health, such as managing the risks of and responding to events where a person is choking [6].…”

“…As 'the case' was to be drawn from the accommodation services of the research partner, an arms-length purposive sampling approach was used for recruitment. A previously published collective case file audit, based upon 41 participants with intellectual disability and associated multiple chronic and complex health problems [25], was used to inform the characteristics of 'the case'. The following average characteristics from the collective case file audit were given to the research partner as the ideal inclusion criteria: male, a mean age of 54.2 years, a secondary disability, having limited living and self-care skills, a mean number of chronic illnesses of 4.2, being prescribed four, or more, medications [25] and living in a group home with 24 h staffed RN care and support.…”

“…A previously published collective case file audit, based upon 41 participants with intellectual disability and associated multiple chronic and complex health problems [25], was used to inform the characteristics of 'the case'. The following average characteristics from the collective case file audit were given to the research partner as the ideal inclusion criteria: male, a mean age of 54.2 years, a secondary disability, having limited living and self-care skills, a mean number of chronic illnesses of 4.2, being prescribed four, or more, medications [25] and living in a group home with 24 h staffed RN care and support. Once 'the case', hereafter referred to as Derek (not his real name), had been identified by the research partner, RNs working at the group home were approached by email and phone by the RN unit manager of the group home cluster where Derek lived who inquired about the RNs' interest in participating in the observational part of the research.…”

Meeting the care needs of people with intellectual and developmental disabilities and their families through the Model of Nursing Based on Activities of Living

“…In this study, for the problems of people with intellectual and developmental disabilities and their families, training on disability care was given to each family individually, and families were provided with economic, health, spiritual, and social opportunities from the relevant institutions and organizations. It is seen in the literature that nurse-led support interventions have contributed greatly to meeting the care needs of people with IDDs and their families (Ayyıldız and Ulupınar, 2019;Balcı et al, 2019;Doody et al, 2012;Gu ¨nsel, 2010;Hung et al, 2003;Lehman and Irvin, 1996;Wilson et al, 2020aWilson et al, , 2020b. The results of our study seem to be consistent with the other studies in the literature and revealed that there is a need for nurses specifically trained to provide holistic care to individuals with difficulties in cognitive functioning and complex care needs and their families and state-subsidized services and to maintain the well-being of these individuals, and intervention attempts to be carried out under the leadership of nurses should be increased.…”