COMplex mental health PAThways (COMPAT) Study: A mixed methods study to inform an evidence-based service delivery model for people with complex needs: Study protocol

Saini, Pooja; Martin, Antony; McIntyre, Jason; Balmer, Anna; Burton, Sam; Roks, Hana; Sambrook, Laura; Shetty, Amrith; Nathan, Rajan

doi:10.1371/journal.pone.0264173

Cited by 1 publication

(2 citation statements)

References 37 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Six service users and four carers were interviewed about their experience of contact with relevant services and of the way treatment decisions were made. This work formed part of a larger study (Saini et al, 2022). For this paper, only those interviews where people had a diagnosis of a PD were included.…”

Section: Participantsmentioning

confidence: 99%

See 1 more Smart Citation

Perspectives of service users and carers with lived experience of a diagnosis of personality disorder: A qualitative study

Balmer

Sambrook

Roks

et al. 2023

Psychiatric Ment Health Nurs

Self Cite

View full text Add to dashboard Cite

Accessible SummaryWhat the paper adds to existing knowledge? Personality disorder is a serious mental health condition affecting up to 52% of psychiatric outpatients and 70% of inpatients and forensic patients. People with a diagnosis of personality disorder have higher morbidity and mortality than those without. Service users and carers reported a lack of training for staff in the management of individuals with a diagnosis of personality disorder, particularly with regard to self‐harm and suicidal behaviours. Staff burnout creates barriers to compassionate person‐centred care for individuals with a diagnosis of personality disorder as staff struggled to accommodate the nature of the presentation when under significant emotional, psychological and professional strain caused by understaffing and lack of support. What are the implications for practice? This paper adds new knowledge by informing services of ways to improve care provision from the perspectives of both carers and service users. A more holistic and less medicalised approach to the treatment of problems associated with a diagnosis of a personality disorder should be adopted, and personality disorder training introduced for all healthcare practitioners, to improve patient outcomes. AbstractIntroductionThere is limited understanding of the experience of people with complex mental health (CMH) needs, including those with a diagnosis of personality disorder (PD) and carers of those individuals. Little is known about carers of those in inpatient forensic settings, yet it has been identified that they may have additional needs when compared to general carers. Research highlights that community carer support services were perceived as inadequate and out‐of‐area placements were described as putting an added strain on ability to support loved ones. Understanding PD within a population of people with CMH needs and how a diagnosis described as PD impacts on care and treatment experience is vital to providing high‐quality care.AimTo evaluate the care experience of service users and carers with lived experience of a diagnosis of PD and out‐of‐area placements.MethodSemi‐structured interviews were conducted with six service users and four carers to explore the experiences and perspectives of people with a diagnosis of PD. Interviews were audio recorded and thematically analysed.ResultsFour interrelated themes were developed; Influence of a diagnosis of PD on Staff, Early and Appropriate Intervention, Recognition of the Individual and Training and Knowledge of people with a diagnosis of PD.DiscussionAnti‐stigma interventions for staff, research on care provision and structural changes to services including more evidence‐based therapy for individuals with a diagnosis of PD may help reduce disparate treatment and improve prognosis for recovery.Implications for PracticeThis paper informs services of ways to improve care provision from the perspective of carers and service users. A more holistic and less medicalised approach to the treatment of problems associated with diagnoses of PD should be adopted, and PD training for all healthcare practitioners to improve patient outcomes.

show abstract

Section: Participantsmentioning

confidence: 99%

“…Ethical approval was obtained from the NHS Health Research Authority and West Midlands—Coventry and Warwickshire Research Ethics Committee: [REC Ref: 21/WM/0020] Integrated Research Application System (IRAS) on 19 March 2021. The study was undertaken in compliance with the research protocol (Saini et al, 2022).…”

Section: Ethics Statementmentioning

confidence: 99%