Complementary and Alternative Medicine Use in Patients With Hidradenitis Suppurativa

Price, Kyla N.; Thompson, Alexander; Rizvi, Omar; Hendricks, Aleksi J.; Alavi, Afsáneh; Hsiao, Jennifer L.; Shi, Vivian Y.

doi:10.1001/jamadermatol.2019.4595

Cited by 20 publications

(31 citation statements)

References 7 publications

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“…A recent study showed that in a cohort of 303 HS patients, 255 patients (84.2%) reported CAM use. The most common reasons for CAM use were reported as “frustration with conventional treatment” and desire to try “new” or “more natural” treatments 42 . Commonly used CAM products reported by patients included turmeric/curcumin, magnesium sulfate salt bath, and zinc, and patients perceived marijuana, magnesium sulfate bath, and topical cannabidiol oil to be the most helpful.…”

Section: Treatment Optionsmentioning

confidence: 99%

“…Commonly used CAM products reported by patients included turmeric/curcumin, magnesium sulfate salt bath, and zinc, and patients perceived marijuana, magnesium sulfate bath, and topical cannabidiol oil to be the most helpful. Of the 255 patients who used CAM, 183 said they would recommend CAM use to others, and 166 reported at least mild success with CAM use 42 . However, despite achieving even mild success with CAM use, it is important to note that only 69.4% reported having informed their HS care provider about CAM use 42 .…”

Section: Treatment Optionsmentioning

confidence: 99%

“…Of the 255 patients who used CAM, 183 said they would recommend CAM use to others, and 166 reported at least mild success with CAM use 42 . However, despite achieving even mild success with CAM use, it is important to note that only 69.4% reported having informed their HS care provider about CAM use 42 . Previous studies have shown that patients’ perspectives of how their clinicians would react to their CAM use were generally the most important factor in their openness to discuss their use with physicians 43 .…”

Section: Treatment Optionsmentioning

confidence: 99%

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The most recent advances in understanding and managing hidradenitis suppurativa

2020

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Hidradenitis suppurativa (HS) is a chronic, inflammatory, recurrent, and debilitating skin disease of the hair follicle unit that typically develops after puberty. HS has a significant negative impact on both the quality of life (QOL) of patients affected by this disease as well as family members and caregivers. However, the pathogenesis of HS is multifactorial and still remains to be fully elucidated, which makes the development of treatments difficult. The last 10 years have seen a surge in HS research, and many new findings have come to light, yet much more remains to be elucidated. Physicians must employ a multidisciplinary approach to maximally address all facets of HS. Clinical characteristics of the disease that differ between females and males as well as across different races and ethnic groups must be considered. Targeted topical, oral, and injectable therapies continue to be developed for HS as a greater understanding of the pathogenesis is reached. However, randomized controlled trials regarding dietary factors that may contribute to HS are needed to meet our patients’ growing concerns and questions about the role of diet in HS pathogenesis. Finally, improved outcome measures are needed to standardize HS severity and grading between physicians and clinical trials, and a more diverse representation of HS populations is needed in clinical trials.

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Section: Treatment Optionsmentioning

confidence: 99%

Section: Treatment Optionsmentioning

confidence: 99%

Section: Treatment Optionsmentioning

confidence: 99%

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The most recent advances in understanding and managing hidradenitis suppurativa

2020

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“…Battlefield acupuncture is another form of CAM that has demonstrated benefit in pain management and contributed to a reported 77% reduction in injectable opioid use 5 . The comfort level among HS providers in recommending dietary changes and bathing techniques parallels the high utilization of these CAM modalities among patients 1 …”

Section: Discussion/conclusionmentioning

confidence: 99%

“…sulfate (Epsom salt) bath followed by dietary supplements including zinc, vitamin D, vitamin C, vitamin B12, and fish oil. 1 The North American clinical management guidelines for HS describes zinc supplementation, vitamin D supplementation, brewer's yeast avoidance, and dairy avoidance as potential alternative interventions, though there remains insufficient evidence to support routine use. 3 Despite widespread patient utilization of CAM, there remains a paucity of literature examining health care provider opinions of CAM for HS.…”

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confidence: 99%

Physician perspectives on complementary and alternative medicine in hidradenitis suppurativa

Price

Collier

Grogan

et al. 2021

Dermatologic Therapy

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Hidradenitis suppurativa (HS) is a chronic and often debilitating inflammatory condition characterized by frequent nodules, abscesses, sinus tracts, and scars impacting the intertriginous areas. Many patients with HS often report limited treatment success and symptom coverage with conventional therapies. Recent studies have reported the widespread use of complementary and alternative medicine (CAM) among patients with HS. In this study, our aim was to examine current physician practice patterns, opinions, and comfort with recommending CAM. Our results indicate that provider comfort and opinions on CAM varied based on the provider's experiences, demographics, and the CAM modality itself. Overall, nearly two-thirds (n = 30, 61.2%) of respondents agreed that CAM and conventional medicine were more effective together than either alone. Meanwhile, 44.9% (n = 22) of respondents routinely recommend CAM while 64.6% (n = 31) of respondents reported that they are routinely asked about CAM. The majority (n = 41, 83.7%) of respondents indicated a lack of scientific evidence in the medical literature as a barrier to recommending CAM along with efficacy concerns (n = 34, 69.4%) and ability to recommend reputable CAM products (n = 32, 65.3%) and practitioners (n = 32, 65.3%). Future investigations are warranted to establish a better understanding of the efficacy and benefit of CAM methods in conjunction with conventional methods.

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Lifestyle modifications and complementary treatments for hidradenitis suppurativa

Rick

Shih

et al. 2022

Dermatological Reviews

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Background: Hidradenitis suppurativa (HS) is a chronic inflammatory dermatosis with recurrent painful nodules and abscesses affecting the intertriginous areas.Patients often experience a significant negative impact on quality of life from associated pain, discharge, odor, scarring, and social stigma. Even with complex medical regimens, patients may report inadequate disease control. Lifestyle changes and complementary and alternative medicines (CAM) are used by a majority of HS patients. Conventional medicines and lifestyle and CAM modalities strategically incorporated together can increase treatment satisfaction and success.Objective: We aim to highlight lifestyle and CAM treatment modalities to use alongside conventional treatment plans for HS patients. Findings: Lifestyle modifications for HS patients include weight loss, reducing skin friction, smoking cessation, and stress reduction. Dietary modifications for HS patients include limiting foods containing dairy, Brewer's yeast, and simple carbohydrates, appropriate caloric reduction, and consuming foods in the Mediterranean diet. The CAM modalities studied in HS are vitamin D, niacinamide, vitamin B12, zinc, and magnesium. Potential CAM modalities for HS include probiotics, cannabinoids, turmeric, bathing regimens, and acupuncture. Conclusion: This review is a guide for clinicians to provide evidence-based care for HS patients seeking non-pharmacologic treatment modalities such as weight loss, clothing choices, dietary changes, and use of supplements and complementary medicine. Lifestyle and CAM modalities may be used in parallel with conventional medicines to synergistically improve patient disease outcomes.

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Complementary and Alternative Medicine Use in Patients With Hidradenitis Suppurativa

Cited by 20 publications

References 7 publications

The most recent advances in understanding and managing hidradenitis suppurativa

The most recent advances in understanding and managing hidradenitis suppurativa

Physician perspectives on complementary and alternative medicine in hidradenitis suppurativa

Lifestyle modifications and complementary treatments for hidradenitis suppurativa

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