Compassionate communities: end-of-life care as everyone's responsibility

Kellehear, Allan

doi:10.1093/qjmed/hct200

Cited by 206 publications

(224 citation statements)

References 3 publications

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“…55 This area of activity is often called health promoting palliative care, a concept that originated in Australia from the work of Kellehear. [56][57][58][59][60] It is in line with the framework presented by Ottawa Charter on Health Promotion. 61 Another related term is ''the public health approach to palliative care,'' 59,62 with an international network of partners dedicated to promotion of this.…”

Section: Palliative Care Campaigns S-31supporting

confidence: 72%

The Impact of Public Health Awareness Campaigns on the Awareness and Quality of Palliative Care

Seymour

2018

Journal of Palliative Medicine

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Objective: The right to health includes a right of access to good quality palliative care, but inequalities persist. Raising awareness is a key plank of the public health approach to palliative care, but involves consideration of subjects most of us prefer not to address. This review addresses the question: ''do public health awareness campaigns effectively improve the awareness and quality of palliative care''? Background: The evidence shows that public awareness campaigns can improve awareness of palliative care and probably improve quality of care, but there is a lack of evidence about the latter. Methods: Rapid review and synthesis. Results: A comprehensive public awareness campaign about palliative care (including advance care planning and end-of-life decision making) should be based on clear and shared terminology, use well piloted materials, and the full range of mass media to suit different ages, cultures, and religious/spiritual perspectives. Arts and humanities have a role to play in allowing individuals and communities to express experiences of illness, death, and grief and encourage conversation and thoughtful reflection. There is evidence about key factors for success: targeting, networking, and use of specific, measurable, achievable, realistic time-bound objectives; continuous evaluation; and complementarity to national and international policy. Discussion: Campaigns should be located within the framework of public health promotion and the synergy between short national mass media campaigns and longer term local community action initiatives carefully considered. National and local projects to raise awareness should identify and address any barriers at the level of individuals, communities, and systems of care, for example, literacy skills and unequal access to resources.

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Section: Palliative Care Campaigns S-31supporting

confidence: 72%

The Impact of Public Health Awareness Campaigns on the Awareness and Quality of Palliative Care

Seymour

2018

Journal of Palliative Medicine

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“…There are advantages associated with tailoring a service to an individual as well as to a community or group, as shown by user satisfaction [14] and wellbeing [1617]. Examples of actions that are helpful in pursuing this aim include defining a clear target group [18], creating connections between different sectors [19], and between members of a community and practitioners [2021].…”

Section: Resultsmentioning

confidence: 99%

Service Integration Across Sectors in Europe: Literature and Practice

Duijn

Zonneveld²,

Montero³

et al. 2018

Int J Integr Care

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Introduction:To meet the needs of vulnerable people, the integration of services across different sectors is important. This paper presents a preliminary review of service integration across sectors in Europe. Examples of service integration between social services, health, employment and/or education were studied. A further aim of the study was to improve conceptual clarity regarding service integration across sectors, using Minkman’s Developmental Model for Integrated Care (DMIC) as an analytical framework.Methods:The study methods comprised a literature review (34 articles) and a survey of practice examples across Europe (44 practices). This paper is based on a more comprehensive study published in 2016.Results:The study demonstrates that although the focus of integration across sectors is often on social services and health care, other arrangements are also frequently in place. The review shows that integration may be either tailored to a particular target group or designed for communities in general. Although systems to monitor and evaluate social service integration are often present, they are not yet fully developed. The study also highlights the importance of good leadership and organizational support in integrated service delivery.Discussion:The study shows that the DMIC can work as a conceptual framework for the analysis of service integration across sectors. However, as this is an exploratory study, further in-depth case studies are required to deepen our understanding of the processes involved in service integration across sectors.

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“…Furthermore, two-way communication with family, informal carers and the broader community, is an important requisite of the growing ''compassionate community'' approach to palliative care. 33 Indeed, while we want to improve EOL symptom assessment in acute hospitals, it is just as important to avoid unnecessary hospitalization at EOL if the person with dementia had indicated that this is their wish.…”

Section: Discussionmentioning

confidence: 99%