Comparison of the Dermatology Life Quality Index and the Children's Dermatology Life Quality Index in assessment of quality of life in patients with psoriasis aged 16–17 years

Geel, M.J. van; Maatkamp, M.; Oostveen, A.M.; Jong, E.M.G.J. de; Finlay, Andrew Y.; Kerkhof, P.C.M. van de; Seyger, M.M.B.

doi:10.1111/bjd.14163

Cited by 34 publications

(23 citation statements)

References 20 publications

(69 reference statements)

Supporting

Mentioning

Contrasting

Order By: Relevance

“…This difference was attributed to the difference in one question topic between the two tools -the DLQI question concerned sexual difficulties scored low (not impacting the HRQL), while the CDLQI question focused on sleep impairment scored high (having a greater impact on HRQL). These authors suggested that the ideal solution would be to use an agespecific HRQL tool, such as the Skindex-Teen, or to develop a psoriasis-specific tool for this population of 16-to 17-year-olds [39] .…”

Section: Dermatology-specific Hrql Measurement Toolsmentioning

confidence: 99%

Systematic Review of Health-Related Quality of Life in Adolescents with Psoriasis

et al. 2016

View full text Add to dashboard Cite

Background: Many cases of psoriasis begin in adolescence. The affected adolescents face the combined physical and psychosocial challenges of their disease-free peers with the added complexity of a visible disease. Objective: To review the impact of psoriasis on the health-related quality of life (HRQL) in adolescents as compared to their peers with other chronic diseases and to determine the best tools to measure HRQL in this population. Methods: A systematic literature review was completed using PubMed. Results: 256 publications were screened for inclusion, 37 were relevant to objectives and included in the systematic review. Most studies are pediatric psoriasis studies with an adolescent subgroup, very few are dedicated to solely addressing HRQL in adolescents with psoriasis. Adolescents with psoriasis face both the challenges similar to an adult psoriasis population in addition to the complexities inherent to healthy adolescents. Studies often use a general pediatric HRQL measure, PedsQL 4.0, or a dermatology-specific measure adapted from an adult questionnaire. Only one psoriasis-specific measurement tool exists, and it is specifically for scalp psoriasis. Conclusion: Both dermatologists and primary care physicians should treat the visible cutaneous lesions and disease comorbidities and address the psychosocial impact of psoriasis in their adolescent patients. Use of both a general and dermatology-specific HRQL questionnaire may allow physicians to better identify the impact of the disease and recognize improvement or impairment over time.

show abstract

Section: Dermatology-specific Hrql Measurement Toolsmentioning

confidence: 99%

Systematic Review of Health-Related Quality of Life in Adolescents with Psoriasis

et al. 2016

View full text Add to dashboard Cite

show abstract

“…As the QoL impacts experienced by people aged 16-17 may differ from those experienced by children or adults, QoL measures designed for use in this age range may have advantages over both child-and adult-specific measures. 179 Although AD is Quality of life measurement in atopic dermatitis relatively uncommon in the elderly, the numbers of elderly patients with AD are gradually increasing in industrialized countries, associated with an ageing society. 180 There may be specific ways in which elderly people are affected by AD that result in specific needs: prospective research is required to address this.…”

Section: Discussionmentioning

confidence: 99%

Quality of life measurement in atopic dermatitis. Position paper of the European Academy of Dermatology and Venereology (EADV) Task Force on quality of life

Chernyshov

Tómas-Aragonés

Manolache³

et al. 2017

Acad Dermatol Venereol

Self Cite

View full text Add to dashboard Cite

There is a need for researchers to have easy reference to the wide spectrum of different types of quality of life (QoL) instruments that can be used in atopic dermatitis (AD). Previous reviews on QoL in AD do not cover the full spectrum of QoL measures used in studies on AD. This study, on behalf of the European Academy of Dermatology and Venereology (EADV) Task Force on QoL, contains information on instruments available for health-related QoL and family QoL assessment in AD including information on validation, experience of QoL assessment in AD for different purposes, peculiarities of QoL assessment in different age groups, expert analysis of available instruments including data on limitations of their use and recommendations of the Task Force.

show abstract

“…It received a "fair" COSMIN rating because investigators did not establish a priori hypotheses or adequately describe the DLQI's measurement properties. Combining ratings from Oostveen et al [21], de Jager et al [22], and van Geel et al [23], hypothesis testing for the CDLQI-Dutch version achieved a final measurement quality rating of "positive" with a "limited" level of evidence.…”

Section: Cdlqi-dutch Versionmentioning

confidence: 99%

“…Van Geel et al [23] revealed strong correlations between the CDLQI-Dutch version and the Dermatology Life Quality Index (DLQI), resulting in a "positive" measurement quality rating for hypothesis testing. It received a "fair" COSMIN rating because investigators did not establish a priori hypotheses or adequately describe the DLQI's measurement properties.…”

Section: Cdlqi-dutch Versionmentioning

confidence: 99%

Patient-Reported Outcome Measures for Pediatric Psoriasis: A Systematic Review and Critical Appraisal from International Dermatology Outcome Measures (IDEOM)

et al. 2018

View full text Add to dashboard Cite

Childhood onset psoriasis has a profound impact on the development and quality of life of pediatric patients. Consequently, validated patient-reported outcome measures (PROMs) for pediatric psoriasis are vital to patient care. We sought to critically appraise the literature on the measurement properties of PROMs used in the pediatric psoriasis population. We performed a 2-stage systematic literature synthesis in MEDLINE (1950–2017) and EMBASE (1947–2017) to identify PROMs and studies evaluating their measurement properties. Analysis of studies followed the COnsensus-based Standards for the selection of health Measurement INstruments (COSMIN) methodology to inform a best evidence synthesis. From 1,128 articles, we identified 29 PROMs. Subsequently, we identified 8 studies evaluating the measurement properties of 7 instruments. Among these instruments, the Simplified Psoriasis Index (SPI) achieved a positive rating for criterion validity, the Dutch version of the Children’s Dermatology Life Quality Index (CDLQI) achieved a positive rating for hypothesis testing, and the Swedish version of the CDLQI achieved a negative rating for hypothesis testing. All other assessed measurement properties received indeterminate or unknown ratings due to flaws in study design. PROMs are paramount to the management of pediatric psoriasis. This synthesis emphasizes the critical need for additional studies to further describe the measurement properties of PROMs used in pediatric psoriasis and identify validated, standardized measures for use in clinical practice and research.

show abstract

Comparison of the Dermatology Life Quality Index and the Children's Dermatology Life Quality Index in assessment of quality of life in patients with psoriasis aged 16–17 years

Cited by 34 publications

References 20 publications

Systematic Review of Health-Related Quality of Life in Adolescents with Psoriasis

Systematic Review of Health-Related Quality of Life in Adolescents with Psoriasis

Quality of life measurement in atopic dermatitis. Position paper of the European Academy of Dermatology and Venereology (EADV) Task Force on quality of life

Patient-Reported Outcome Measures for Pediatric Psoriasis: A Systematic Review and Critical Appraisal from International Dermatology Outcome Measures (IDEOM)

Contact Info

Product

Resources

About