Comparison of Patient‐ and Parent‐Reported Quality of Life for Patients Treated for Persistent Obstructive Sleep Apnea

Bergeron, Mathieu; Duggins, Angela; Cohen, Aliza P.; Ishman, Stacey L.

doi:10.1177/0194599818782415

Cited by 18 publications

(20 citation statements)

References 24 publications

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“…Moreover, parents would ideally be involved in the decision making regarding the optimal medical or surgical management of sleep disorders . Finally, OSA should not be overlooked in this population because treatment has proven to improve patient and family quality of life in both typical children and those with syndromes; the same conclusion could reasonably be extrapolated to this population …”

Section: Discussionsupporting

confidence: 80%

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Cornelia de lange manifestations in otolaryngology: A systematic review and meta‐analysis

2019

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Objectives Cornelia de Lange syndrome (CdLS) is a rare genetic disorder. Our goal was to systematically review the literature regarding otolaryngology manifestations of CdLS. Methods We systematically reviewed the PubMed, Embase, CINAHL, Scopus, and Google Scholar databases for original articles of otolaryngology manifestations for patients with CdLS. These articles were analyzed, and pooled prevalence was calculated. Results We analyzed 1,310 patients included in 35 case series and 34 case reports. Hearing loss was present for many patients (27 studies), with sensorineural hearing loss affecting 40.3% (95% confidence interval [CI]: 17.3–63.4) and conductive affecting 22.7% (95% CI: 5.7–39.7). Recurrent acute otitis media was the most frequent infectious manifestation, with 56.5% (95% CI: 34.1–78.4) in seven studies, followed by recurrent airway infections with 44.1% (95% CI: 11.0–87.1) in five studies. Forty‐nine (49.7%) percent of patients (95% CI: 25.9–73.6) in nine studies had dysphagia, and 76.6% (95% CI: 59.8–93.3) in four studies had some degree of dysphonia. Craniofacial anomalies were reported in 30 studies, with micrognathia (53.1%; 95% CI: 34.1–72.1) and high arched palate (70.6%; 95% CI: 56.5–84.8) commonly reported. Additional physical exam abnormalities reported included those involving: lips (76.8%; 95% CI: 65.3–88.4), dentition (65.1%; 95% CI: 27.2–100), mouth (85.5%; 95% CI: 76.2–93.8), and eyelashes (87.1%; 95% CI: 77.2–96.9). Sleep‐disordered breathing or obstructive sleep apnea affected 25.8% (95% CI: 11.4–40.2) of patients (7 studies). Airway anomalies were reported in 11 case reports. Conclusion This is the first comprehensive evaluation of otolaryngologic manifestations in the CdLS literature. Most reported hearing loss and craniofacial anomalies. Sleep disorders occurred in a minority of patients, whereas airway disorders were primarily reported in case reports. These conditions should be further examined given their potential life‐threatening implications. Level of Evidence 3a Laryngoscope, 130:E122–E133, 2020

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Section: Discussionsupporting

confidence: 80%

“…79,80 Finally, OSA should not be overlooked in this population because treatment has proven to improve patient and family quality of life in both typical children and those with syndromes; the same conclusion could reasonably be extrapolated to this population. 81,82…”

Section: Sleep Disordersmentioning

confidence: 99%

Cornelia de lange manifestations in otolaryngology: A systematic review and meta‐analysis

2019

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“…19,21 Because of this, the use of questionnaires to evaluate QoL has become popular in recent years. [22][23][24] Recent articles have evaluated the impact of surgery on QoL among children with SDB through questionnaires on physical, emotional, behavioral, and familial factors. 3,21,[25][26][27] There are different methods for evaluating postadenotonsillectomy QoL among children, and the obstructive sleep apnea questionnaire (OSA-18) is one of the most frequently used questionnaires worldwide.…”

Section: Introductionmentioning

confidence: 99%

Long-term Impact of Adenotonsillectomy on the Quality of Life of Children with Sleep-disordered breathing

Caixeta

Sampaio

Costa

et al. 2020

Int Arch Otorhinolaryngol

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Introduction Adenotonsillectomy is the first-line treatment for obstructive sleep apnea secondary to adenotonsillar hypertrophy in children. The physical benefits of this surgery are well known as well as its impact on the quality of life (QoL), mainly according to short-term evaluations. However, the long-term effects of this surgery are still unclear. Objective To evaluate the long-term impact of adenotonsillectomy on the QoL of children with sleep-disordered breathing (SDB). Method This was a prospective non-controlled study. Children between 3 and 13 years of age with symptoms of SDB for whom adenotonsillectomy had been indicated were included. Children with comorbities were excluded. Quality of life was evaluated using the obstructive sleep apnea questionnaire (OSA-18), which was completed prior to, 10 days, 6 months, 12 months and, at least, 18 months after the procedure. For statistical analysis, p-values lower than 0.05 were defined as statistically significant. Results A total of 31 patients were enrolled in the study. The average age was 5.2 years, and 16 patients were male. The OSA-18 scores improved after the procedure in all domains, and this result was maintained until the last evaluation, done 22 ± 3 months after the procedure. Improvement in each domain was not superior to achieved in other domains. No correlation was found between tonsil or adenoid size and OSA-18 scores. Conclusion This is the largest prospective study that evaluated the long-term effects of the surgery on the QoL of children with SDB using the OSA-18. Our results show adenotonsillectomy has a positive impact in children's QoL.

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“…Obstructive sleep apnea and hypopnea syndrome (OSAHS) is defined as a prolonged complete or partial obstruction of the upper airway that presents intermittently, disturbing the regular ventilation process during sleep 1–4 . OSAHS affects 0.7%–3% of the pediatric population, 5 creating a significant burden for patients and their families 3,6 . The most frequent symptoms in children differ from those presented in adults, and frequently are not easily identified.…”

Section: Introductionmentioning

confidence: 99%

Validation of a Spanish version of the Sleep‐Related Breathing Disorder scale of the Pediatric Sleep Questionnaire in children living in a high‐altitude city

Villalobos-Aguirre

Restrepo

Peña-Valenzuela

et al. 2020

Pediatric Pulmonology

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Objectives We aimed to validate a Spanish version of the Sleep‐Related Breathing Disorder scale of the Pediatric Sleep Questionnaire (SRBD‐PSQ) in children living in a high‐altitude Colombian city. Methods In a prospective cohort validation study, patients aged between 2 and 17 years who attended the Ear, Nose, and Throat pediatric department of our institution for symptoms related to sleep‐related breathing disorders had a baseline visit at enrollment, a second visit the day scheduled for the surgical intervention, and a follow‐up visit at least 3 months after the surgical intervention. In these three visits, we gathered the necessary data for assessing the criterion validity, construct validity, test–retest reliability, internal consistency, and sensitivity to change of the Spanish version of the SRBD‐PSQ. Results In total, 121 patients were included in the analyses. The exploratory factor analysis (generalized least squares method, varimax rotation) yielded a four‐factor structure, explaining 65.93% of the cumulative variance. The intraclass correlation coefficient (ICC) of the measurements was 0.887 (95% CI: 0.809–0.934), and the Lin concordance correlation coefficient was 0.882 (95% CI, 0.821–0.943). SRBD‐PSQ scores at baseline were significantly higher than those obtained after adenotonsillectomy surgery (median [IQR] 11.0 [9.0– 14.0] vs. 4.00 [1.50–7.0]; p < 0.0001). Cronbach's α was 0.7055 for the questionnaire as a whole. Conclusions The Spanish version of the SRBD‐PSQ has acceptable construct validity, excellent test–retest reliability and sensitivity to change, and adequate internal consistency‐reliability when used in pediatric patients living at high altitude with symptoms related to sleep‐related breathing disorders.

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Comparison of Patient‐ and Parent‐Reported Quality of Life for Patients Treated for Persistent Obstructive Sleep Apnea

Cited by 18 publications

References 24 publications

Cornelia de lange manifestations in otolaryngology: A systematic review and meta‐analysis

Cornelia de lange manifestations in otolaryngology: A systematic review and meta‐analysis

Long-term Impact of Adenotonsillectomy on the Quality of Life of Children with Sleep-disordered breathing

Validation of a Spanish version of the Sleep‐Related Breathing Disorder scale of the Pediatric Sleep Questionnaire in children living in a high‐altitude city

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