Comparison of health-related quality of life measures for chronic renal failure: quality of well-being scale, short-form-6D, and the kidney disease quality of life instrument

Saban, Karen L.; Stroupe, Kevin T.; Bryant, Fred B.; Reda, Domenic J.; Browning, Margaret M.; Hynes, Denise M.

doi:10.1007/s11136-008-9387-5

Cited by 21 publications

(15 citation statements)

References 61 publications

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“…All kidney disease subscales are scored on a 0 to 100 scale, with higher numbers representing better HRQOL. The 11 kidney disease-specific subscales can be averaged to form the Kidney Disease Component Summary (KDCS) [21,41-44]. The KDQOL-SF has been widely used in several studies of patients with kidney disease, including the ongoing, international DOPPS [21,45-50], and has demonstrated good test-retest reliability on most dimensions [2,22].…”

Section: Methodsmentioning

confidence: 99%

Measurement invariance of the kidney disease and quality of life instrument (KDQOL-SF) across Veterans and non-Veterans

Saban

Bryant

Reda

et al. 2010

Health Qual Life Outcomes

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BackgroundStudies have demonstrated that perceived health-related quality of life (HRQOL) of patients receiving hemodialysis is significantly impaired. Since HRQOL outcome data are often used to compare groups to determine health care effectiveness it is imperative that measures of HRQOL are valid. However, valid HRQOL comparisons between groups can only be made if instrument invariance is demonstrated. The Kidney Disease Quality of Life-Short Form (KDQOL-SF) is a widely used HRQOL measure for patients with chronic kidney disease (CKD) however, it has not been validated in the Veteran population. Therefore, the purpose of this study was to examine the measurement invariance of the KDQOL-SF across Veterans and non-Veterans with CKD.MethodsData for this study were from two large prospective observational studies of patients receiving hemodialysis: 1) Veteran End-Stage Renal Disease Study (VETERAN) (N = 314) and 2) Dialysis Outcomes and Practice Patterns Study (DOPPS) (N = 3,300). Health-related quality of life was measured with the KDQOL-SF, which consists of the SF-36 and the Kidney Disease Component Summary (KDCS). Single-group confirmatory factor analysis was used to evaluate the goodness-of-fit of the hypothesized measurement model for responses to the subscales of the KDCS and SF-36 instruments when analyzed together; and given acceptable goodness-of-fit in each group, multigroup CFA was used to compare the structure of this factor model in the two samples. Pattern of factor loadings (configural invariance), the magnitude of factor loadings (metric invariance), and the magnitude of item intercepts (scalar invariance) were assessed as well as the degree to which factors have the same variances, covariances, and means across groups (structural invariance).ResultsCFA demonstrated that the hypothesized two-factor model (KDCS and SF-36) fit the data of both the Veteran and DOPPS samples well, supporting configural invariance. Multigroup CFA results concerning metric and scalar invariance suggested partial strict invariance for the SF-36, but only weak invariance for the KDCS. Structural invariance was not supported.ConclusionsResults suggest that Veterans may interpret the KDQOL-SF differently than non-Veterans. Further evaluation of measurement invariance of the KDQOL-SF between Veterans and non-Veterans is needed using large, randomly selected samples before comparisons between these two groups using the KDQOL-SF can be done reliably.

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Section: Methodsmentioning

confidence: 99%

Measurement invariance of the kidney disease and quality of life instrument (KDQOL-SF) across Veterans and non-Veterans

Saban

Bryant

Reda

et al. 2010

Health Qual Life Outcomes

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“…Haemodialysis is not a cure for chronic kidney disease but helps to prolong and improve a patient's life (6). However, patients on haemodialysis often experience complications such as cardiovascular disease which decrease their QOL.…”

Section: Introductionmentioning

confidence: 99%

Assessment of the quality of life in patients on haemodialysis in Iraq

Alhajim¹

2017

East Mediterr Health J

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Évaluation de la qualité de vie des patients sous hémodialyse en IraqRÉSUMÉ L'existence d'une maladie rénale chronique nécessite la mise en place d'une thérapie de remplacement rénal à vie, ce qui peut grandement impacter la qualité de vie des patients. La présente étude transversale avait pour objectif d'évaluer la qualité de vie des patients sous hémodialyse, ainsi que les facteurs de détérioration de la qualité de vie, à l'unité de dialyse de l'hôpital général de Bassora. Au total, 104 patients atteints de maladie rénale en phase terminale et sous hémodialyse ont été inclus à l'étude. Les données ont été collectées à l'aide du questionnaire d'évaluation de la qualité de vie de l'Organisation mondiale de la Santé. Des données sociodémographiques et cliniques ont également été recueillies. Sur les 104 patients, 57 % étaient des hommes, 73 % étaient âgés de plus de 45 ans, 87 % étaient issus de milieux socio-économiques moyen et faible, 70 % étaient sous dialyse depuis plus d'un an, 74 % disposaient d'un abord vasculaire de type fistule artério-veineuse, 34 % souffraient de diabète et 48 % avaient contracté le virus de l'hépatite. Tous les domaines de la qualité de vie (santé physique, psychologique, relations sociales et environnement) étaient affectés, le domaine physique étant celui le plus impacté. Un âge plus avancé, un statut socio-économique inférieur, une durée prolongée de la dialyse, un abord vasculaire par cathéter central, le fait d'être diabétique et d'avoir une sérologie positive au virus de l'hépatite étaient associés de façon significative à une diminution de la qualité de vie (p < 0,05). ABSTRACT Chronic kidney disease requires life-long renal replacement therapy, which can greatly impair the quality of life (QOL) of patients. This cross-sectional study aimed to assess the QOL of patients on haemodialysis, and the factors affecting it, at the dialysis unit of Basra General Hospital. A total of 104 patients with end-stage renal disease on haemodialysis were included. Data were collected using the World Health Organization QOL questionnaire. Sociodemographic and clinical data were also collected. Of the 104 patients, 57% were male, 73% were older than 45 years, 87% were of middle and low socioeconomic status, 70% had been on dialysis for more than 1 year, 74% had arteriovenous fistula vascular access, 34% had diabetes and 48% were positive for hepatitis virus. All domains of QOL (physical health, psychological, social relationships and environment) were affected; the physical domain was the most severely affected. Older age, lower socioeconomic status, longer duration of dialysis, central line vascular access, having diabetes and positive hepatitis serology were significantly associated with lower QOL (P < 0.05). ‫العراق‬ ‫يف‬ ‫الكلوي‬ ‫الغسيل‬ ‫ملرىض‬ ‫احلياة‬ ‫جودة‬ ‫تقييم‬

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“…QOL is an important indicator of health and well-being. It determines the effectiveness of treatment and helps in policy developments [20]. Furthermore, it is used for evaluating the overall well-being of individuals and communities.…”

Section: Introductionmentioning

confidence: 99%

Quality of Life Among Thalassemia Children Patients in the Gaza Strip

Aljeesh

2016

AJNS

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Abstract:This study aimed to assess the quality of life of children (3-12 years) diagnosed with Thalassemia in Gaza Strip.A descriptive, analytical, cross-sectional design was used. All children 3-12 years old who were diagnosed with thalassemia and live in GS were included in the study (75 cases) with response rate (81.3%). Participants were interviewed by the researcher and completed the questionnaire which focused on quality of life of chronic diseases and included five domains. These domains are physical health, psychological health, social relationships, environment health and personal safety. Validity and reliability of the instrument were tested and the total instrument reliability test (Cronbach's Alpha) was 0.767. The scores for the study domains ranged between 2.81 for personal security domain and 3.66 for environmental health domain. Moreover, the study domains did not show statistically significant difference when compared by sex, living places, monthly income the relationship between parents and recurrent hospitalization. The findings of this study suggest the need of children diagnosed with thalassemia for support in all study domains. Health professionals need to work to minimize the disease's burdens. The current study calls the attention of health policy makers for new policies and new roles for the community health nurses and social workers. The study also revealed that there is a bad need to pay more attention when caring and dealing with thalassemia patients. Special food supplementation should be available in order to improve their physical health, more psychological support from their families and the society is needed. In addition, there is a need to provide safe environment and to enhance personal safety of these children.

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Comparison of health-related quality of life measures for chronic renal failure: quality of well-being scale, short-form-6D, and the kidney disease quality of life instrument

Abstract: The three HRQOL measures addressed different underlying HRQOL constructs in this sample. The QWB-SA was significantly different from the SF-6D and KDCS.

Cited by 21 publications

References 61 publications

Measurement invariance of the kidney disease and quality of life instrument (KDQOL-SF) across Veterans and non-Veterans

Measurement invariance of the kidney disease and quality of life instrument (KDQOL-SF) across Veterans and non-Veterans

Assessment of the quality of life in patients on haemodialysis in Iraq

Quality of Life Among Thalassemia Children Patients in the Gaza Strip

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