Comparison Of Clinical Changes Before And After Transition To Adult Care In Patients With Cystic Fibrosis

Champion, Elizabeth A.; Dellon, Elisabeth P.

doi:10.1164/ajrccm-conference.2011.183.1_meetingabstracts.a5726

Cited by 3 publications

(1 citation statement)

References 0 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…More than 48% of CF patients in the USA are age 18 years or older, and this number is increasing 4. For young adults with CF, the transition from paediatric to adult care should be a triumphant milestone; however, time of transfer has been associated with morbidities such as loss of pulmonary function, decrease in body mass index (BMI) and hospitalisations 5 6. Increased morbidity in young adults with chronic disease is not unique to CF; similar trends occur in youth with other chronic health conditions and reflect challenges of self-care and treatment adherence 7–15…”

Section: Introductionmentioning

confidence: 99%

Improving transition from paediatric to adult cystic fibrosis care: programme implementation and evaluation

et al. 2014

View full text Add to dashboard Cite

Background The paradigm of cystic fibrosis (CF) care has changed as effective therapies extend the lives of patients well into adulthood. Preparing for and maintaining high quality CF care into the adult healthcare setting is critical for prolonged survival. Unfortunately, this transfer process from the paediatric to the adult CF centre is met with a variety of challenges. Objective and methods The objective of this quality improvement (QI) project was to develop, implement and evaluate a theory-based programme for transition from paediatric to adult CF care. In a multi-phase process, the paediatric and adult programmes developed a transition curriculum, addressed care standards and standardised patient transfer protocols. We evaluated the impact of this process through staff surveys, review of field notes from QI meetings, tracking transfers and responses of patients to the Transition Readiness Assessment Questionnaire (TRAQ) at the start of the programme and 18 months after initiation. Results The collaboration between the paediatric and adult teams continued through quarterly meetings over the past 4 years. This has provided a forum that sustained our transition programme, harmonised care across CF centres and addressed other needs of our CF centre. Discussion of transition with families in the paediatric centre increased twofold (35% to 73% p<0.001), and resulted in a trend towards improved patient TRAQ self-advocacy scores and decreased in-hospital transfer. Conclusions We successfully created a curriculum and process for transition from paediatric to adult CF care at our centres. This collaboration shapes the communication between our paediatric and adult CF care teams and enables ongoing feedback among patients, families and providers. The impact of our transition programme on long-term patient morbidity will require future evaluation.

show abstract

Section: Introductionmentioning

confidence: 99%