Comparing the quality of life of adults with and without intellectual disability

Simões, Cristina; Santos, Sofía

doi:10.1111/jir.12256

Cited by 52 publications

(41 citation statements)

References 45 publications

(141 reference statements)

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“…Hensel et al (2002) determined that, according to scores obtained on Comprehensive Quality of Life Scale, TD persons had higher average values compared to participants with ID in the following domains: Health, Productivity, Place in community and Emotional well-being. The same tendency of results which indicate better QoL in TD persons compared to persons with ID, was also confirmed in a study which included more than a thousand persons (N=1264) with mild and moderate ID, aged between 18 and 66 (Simões & Santos, 2016). Scores indicating better QoL in TD participants were determined in both QoL total score and scores of six life domains (Personal development, Self-determination, Interpersonal relations, Social inclusion, Rights, Material well-being).…”

Section: Discussionsupporting

confidence: 60%

Quality of life in adults with intellectual disabilities: Objective indicators

Kaljača¹,

Dučić²,

Đorđić³

2018

Spec eduk i rehabilitacija

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compared to male participants with ID, TD men had a higher total score (p=0.001), and better results in Health (p=0.021) and Productivity (p=0.000) domains. This result was also confirmed in female participants with the addition of TD women being significantly more successful in Intimacy (p=0.027) domain compared to women with ID. Statistically significant correlations among seven domains of QoL objective indictors in persons with ID were positive, ranging from moderate to high. The obtained results indicate the domains which require more intensive support so that people with ID could have the opportunity to achieve QoL which meets the standards of the community they belong to.

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Section: Discussionsupporting

confidence: 60%

Quality of life in adults with intellectual disabilities: Objective indicators

Kaljača¹,

Dučić²,

Đorđić³

2018

Spec eduk i rehabilitacija

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“…With ageing and to attain good QoL, (lifelong) support for people with intellectual disability must change in nature and frequency (Simões & Santos, ). Support influences QoL outcomes in many complex ways.…”

Section: Where Does Support Fit In? a Programme Logic Modelmentioning

confidence: 99%

How to improve the quality of life of elderly people with intellectual disability: A systematic literature review of support strategies

Schepens

Puyenbroeck

Maes

2018

Research Intellect Disabil

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Background The increased life expectancy of people with intellectual disability intensifies the need for age‐specific support. Research on effects of support strategies on quality of life (QoL) of these people remains scattered. Methods A systematic search of peer‐reviewed publications since 1995 was performed, with participants having intellectual disability and being aged ≥50 years. Studies include experimental, observational and exploratory designs, analysing links between support strategies and QoL outcomes. The present authors adopted a narrative approach. Results The present authors found 73 articles, assessed their quality, thematically categorized interventions into 12 themes, and listed them with their stated relationships to QoL. Conclusions The studies indicated the importance of funding, provision and organization of services/personnel, education, and cooperation among different support systems. The provision of good housing or activities, support when these provisions change, provision of (mental) health care, dementia care and end‐of‐life care, life story work, future planning and support for (I)ADLs are crucial.

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“…The present authors studied quality of life (i.e. as an outcome of quality of health care) using the eight quality of life domains of Schalock et al (), because they are most frequently cited in literature and are multidimensional (Simões & Santos, ). They were specifically developed for people with intellectual disability and include the following: (a) emotional well‐being, (b) interpersonal relations, (c) material well‐being, (d) personal development, (e) physical well‐being, (f) self‐determination, (g) social inclusion and (h) rights.…”

Section: Introductionmentioning

confidence: 99%

Quality of health care according to people with Down syndrome, their parents and support staff—A qualitative exploration

Mareeuw

Coppus

Delnoij

et al. 2019

Research Intellect Disabil

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Background People with Down syndrome (PDS) have complex healthcare needs. Little is known about the quality of health care for PDS, let alone how it is appraised by PDS and their caregivers. This study explores the perspectives of PDS, their parents and support staff regarding quality in health care for PDS. Method The present authors conducted semi‐structured interviews with 18 PDS and 15 parents, and focus groups with 35 support staff members (of PDS residing in assisted living facilities) in the Netherlands. Results According to the participants, healthcare quality entails well‐coordinated health care aligned with other support and care systems, a person‐centred and holistic approach, including respect, trust and provider–patient communication adapted to the abilities of PDS. Conclusions Our findings may be used to improve health care for PDS, and provide insight into how health care could match the specific needs of PDS.

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Comparing the quality of life of adults with and without intellectual disability

Abstract: The gaps among both groups of participants should be addressed in service provision and policies. Taking into account the research findings, the personalised supports should enable the full inclusion and participation of adults with ID in community-based settings.

Cited by 52 publications

References 45 publications

Quality of life in adults with intellectual disabilities: Objective indicators

Quality of life in adults with intellectual disabilities: Objective indicators

How to improve the quality of life of elderly people with intellectual disability: A systematic literature review of support strategies

Quality of health care according to people with Down syndrome, their parents and support staff—A qualitative exploration

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