Community Survey of Carer's: Individual epilepsy guidelines (IEG) for rescue medication

Abstract

This survey indicates that the IEG was a useful resource assisting carers with the management of emergency seizure events in the community.

Service Responses to People with Intellectual Disabilities and Epilepsy: A Systematic Review

“…One study evaluated individual epilepsy guidelines (IEGs) which gave directions for administering emergency medication for people with intellectual disabilities and refractory epilepsy living in the community (Cole et al . ). These were produced in response to concerns that in community settings many carers had difficulty recognizing when rectal diazepam should be administered.…”

Quality of life in epileptic patients in doctor′s perspective

“…All these guidelines prevent the carers from getting worsening their QOL in improving the QOL of epileptics. [15] Simultaneous information and counseling for both epileptics and their careers also rendered more significant influence in bettering the QOL instead of giving guidelines for either of them separately.…”

Ambulatory Care of Children Treated with Anticonvulsants - Pitfalls after Discharge from Hospital

“…Thus in most families with no rescue medication at hand, any such recommendation had most likely been forgotten to be included by the physician. Guidelines for patients and their families can give information on rescue medications [ 7 ] and thus also ascertain that parents are aware of the need to have such medications available. The knowledge defi cits of parents regarding safety precautions for swimming, climbing and cycling, are cause for concern due to the resulting risk of severe harm and even death [ 5 , 14 , 27 ] .…”