Community Representatives’ Involvement in Clinical and Translational Science Awardee Activities

Wilkins, Consuelo H.; Spofford, Mark; Williams, Neely; McKeever, Corliss; Allen, Shauntice; Brown, Jen; Opp, Jennifer; Richmond, Alan; Strelnick, A. Hal

doi:10.1111/cts.12072

Cited by 52 publications

(55 citation statements)

References 10 publications

(18 reference statements)

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“…19 It also shows the efficacy of drawing on community partners’ own skill sets to strengthen the collaboration, providing opportunities for leadership, which are often limited in such engagements. 23 …”

Section: Discussionmentioning

confidence: 99%

Facilitating Meaningful Engagement on Community Advisory Committees in Patient-Centered Outcome Research

Kelly¹,

Wang²,

Lucas³

et al. 2017

Progress in Community Health Partnerships

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Background Reflecting on the processes and practices used to engage community stakeholders in patient-centered outcome research strengthens participation at the project level and contributes more broadly to developing knowledge about effective participatory processes and methods. Objectives We conducted a process evaluation of ongoing activities of a Patient Advisory Committee (PAC) formed around the development of an individualized decision-aid for older women with early-stage breast cancer. Methods In-depth qualitative interviews were conducted with PAC members to obtain their input on the effectiveness of the project’s participatory approach and identify barriers to participation. Results and lessons learned Although there was general support for the aims of the study, patient knowledge gaps and meeting facilitation style limited participation. Members made suggestions on improving collaboration within the group, that, when implemented, resulted in increased participation and revitalized interest in the project. Conclusion Results suggest that engaging committee members in a process of evaluation and collective reflection during a research collaboration can break down barriers to collaboration, build relationships, create opportunities for co-learning and strengthen researchers’ capacity to engage meaningfully with stakeholders.

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Section: Discussionmentioning

confidence: 99%

Facilitating Meaningful Engagement on Community Advisory Committees in Patient-Centered Outcome Research

Kelly¹,

Wang²,

Lucas³

et al. 2017

Progress in Community Health Partnerships

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“…However, depending on the study, the function of a CAB is vastly different. In some cases, they meet infrequently and their involvement is limited (Wilkins et al, 2013). In contrast, some studies work intensively with a CAB, with the CAB having more authority in determining the next research agenda, almost like a community partner in a CBPR model (Cooper, 2015).…”

Section: Discussionmentioning

confidence: 99%

Guidelines for research recruitment of underserved populations (EERC)

Matsuda

Brooks

Beeber

2016

Applied Nursing Research

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Purpose Despite concerted efforts to establish health equity, significant disparities persist. One roadblock to eliminating health disparities is the inadequate recruitment of underserved populations, which prevents researchers from creating culturally-tailored interventions. To further develop the science of recruitment, we argue that a systematic approach should be applied to research participant recruitment. Given the lack of practical and comprehensive recruitment conceptual frameworks or guidelines in the literature, the authors propose newly synthesized guidelines for research recruitment of underserved populations: EERC (evaluate, engage, reflect, and carefully match). Methods The EERC guidelines are delineated, and the application of these guidelines is illustrated through a study recently conducted by the authors. Results The guidelines consist of the following four components: 1. Evaluate the composition of the research team; 2. Engage fully with the community by working with key informants and cultural insiders; 3. Reflect the unique cultural characteristics of the community in the research conduct; and 4. Carefully use a matching technique. The application component of the article demonstrates concrete examples of how the guidelines can enhance research recruitment for an underserved population. Conclusion The authors intend these guidelines to be broadly applicable for research teams regardless of research design or characteristics of the underserved population. Application of these guidelines in nursing and health science will contribute to increasing research recruitment of underserved populations, with the goal of reducing health disparities and achieving health equity for all persons.

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“…These awards were initiated and tied to a significant funding stream, to provide training and research support for up to 60 medical schools for translational science—from proof‐of‐concept studies, to efficacy and effectiveness studies, to behavioral research and community engagement. However, a recent study among community engagement stakeholders expressed skepticism about the current role of the community in the CTSA program because the requirement for engaging the community has been removed from the most recent funding announcement, and other studies have found a reduced role for the community in CTSA leadership activities …”

Section: Addressing Persistent Chronic Disease Prevalence Through Commentioning

confidence: 99%

Multimorbidity, chronic disease, and community health science

DeHaven

2016

Evaluation Clinical Practice

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Community Representatives’ Involvement in Clinical and Translational Science Awardee Activities

Cited by 52 publications

References 10 publications

Facilitating Meaningful Engagement on Community Advisory Committees in Patient-Centered Outcome Research

Facilitating Meaningful Engagement on Community Advisory Committees in Patient-Centered Outcome Research

Guidelines for research recruitment of underserved populations (EERC)

Multimorbidity, chronic disease, and community health science

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