Community perceptions about dementia in southwestern Uganda

Owokuhaisa, Judith; Rukundo, Godfrey Zari; Wakida, Edith K.; Obua, Celestino; Buss, Stephanie S.

doi:10.1186/s12877-020-01543-6

Cited by 17 publications

(27 citation statements)

References 26 publications

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“…Our ndings that early signs of dementia are confused with superstitious beliefs such as witchcraft is aligned with other dementia studies in southwestern Uganda, Tanzania and South Africa [34][35][36]. Notable, however, during the interviews was an obvious level of discomfort by the participants when narrating their experiences during the implementation phase.…”

Section: Discussionsupporting

confidence: 87%

Lay Health Workers in Community-based Care and Management of Dementia: a ‘Pre’ and ‘Post’ Pilot Intervention Study in Southwestern Uganda

Karungi

Wakida

Rukundo

et al. 2021

Preprint

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Background: The global need for efficient and cost-effective use of healthcare resources in low-income countries has led to the introduction of lay health workers (LHWs) as a link of the community to the formal health care services, especially in remote areas. As such, the LHWs perform a variety of tasks such as patient care, education, support for care delivery, and social support across all disease types. However, little is known about their ability to support dementia care and management in the community. Purpose: The goal of the pilot intervention study was to evaluate the ability of LHWs in rural southwestern Uganda to support community-based care and management for people with dementia. Methods: This was a ‘pre’ and ‘post’ pilot intervention study which involved a qualitative assessment of LHWs’ knowledge on community-based management and care for people with dementia. The pilot intervention focused on four core competency domains in the WHO dementia toolkit. It began with a five-day training of the LHWs, followed by eight weeks of implementation of knowledge and skills gained during the training, and an evaluation of their experiences. Analysis focused on apriori themes i.e., needs assessment, early detection and management, community engagement, and support for people with dementia; as well as evaluation of the eight-weeks implementation. Results: Before the training, the LHWs did not know much about dementia and provided no dementia-specific support in the community. Activities were limited to general support, including sanitation, nutrition, and health education. After the training, LHWs had a basic understanding of dementia and began sensitizing their communities. They provided dementia-specific support, although they had challenges in differentiating the signs of early dementia from superstitious beliefs. They felt more comfortable in handling people with dementia and reported a notable change in the attitude of family members towards people with symptoms of dementia. Conclusion: Results from the pilot intervention study showed that, with enhanced capacity, LHWs may be able to support community-based management for people with dementia. A larger study is needed to confirm these findings and further assess effectiveness of the LHWs’ skills.

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Section: Discussionsupporting

confidence: 87%

Lay Health Workers in Community-based Care and Management of Dementia: a ‘Pre’ and ‘Post’ Pilot Intervention Study in Southwestern Uganda

Karungi

Wakida

Rukundo

et al. 2021

Preprint

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“…Financial stress was compounded by the inability to work due to increasing caregiver requirements in the home [32,33]. Providing care was described by participants in one study as all-encompassing, stating that "ogoye gima katho malo" (nothing can continue) when a child is sick [34].…”

Section: The Economic Burden Of Carementioning

confidence: 99%

The needs, challenges, and burden experienced by informal caregivers in Uganda: a scoping review

Komuhangi

Jenkins

Nakaggwa

et al. 2022

Discov Soc Sci Health

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Background The impact of informal caregiving is increasingly recognised as an important but often particularly neglected area of research in low and middle income countries. It is important to understand not only the effect of care on patient outcomes, but also the impact of caring on caregivers’ health and wellbeing. Methods Guided by the Arksey and O’Malley (Res Methodol 8:19–32, 2005) framework, this scoping review sought to collate and chart existing research on the needs, burdens and challenges experienced by caregivers in Uganda. Results The results of this review indicate that research focusing on the needs of caregivers for individuals with communicable disease, particularly HIV, has been well developed in Uganda, however, there is a lack of research on caregiving related to non-communicable diseases. Research has been dominated by small qualitative studies that are informative for understanding roles, burdens and contextually-specific aspects of care, but there is a need for larger studies that develop and test interventions designed to support the needs of caregivers. Conclusions Recurrent themes identified within this review, such as challenges in providing physical support and accessing treatment services, financial costs of care, psychological and mental health impacts and the experience of stigma, should help to inform well targeted and contextually-appropriate future research and interventions.

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“… 46 Alzheimer’s disease and its related dementias (AD/ADRD). We realized 08 publications from the MADRI trainees in this area: (i) PMC7544160; (ii) PMC7379317; 47 (iii) PMC7268702; 48 (iv) PMC7206770; 49 (v) PMC6935120; 50 (vi) PMC7158106; 51 (vii) PMC7011370. 52 Spin-off publications.…”

Section: Resultsmentioning

confidence: 99%

Mbarara University Research Training Initiative: Experiences and Accomplishments of the MEPI Junior D43 TW010128 Award in Uganda

Wakida¹,

Atuhaire²,

Karungi³

et al. 2021

AMEP

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Objective In 2015, Mbarara University of Science and Technology was awarded the Mbarara University Research Training Initiative (MURTI) under grant number D43 TW010128 to build capacity of junior faculty to become the next generation of researchers in Africa. In this paper, we document the experiences and achievements of the research capacity building efforts at MUST. Methods We conducted a descriptive evaluation study which involved document review and in-depth interviews. We used “Reach” and ‘Effectiveness’ from the RE-AIM framework to guide the document review, and the organizational theory of implementation effectiveness to guide the in-depth interviews. Results In the MURTI program, we conducted 17 short courses between August 2015 and July 2021, a total of 6597 attendances were recorded. The most attended courses were responsible conduct of research (n = 826), qualitative research methods (n = 744), and data management (n = 613). Thirty-three fellows were recruited and funded to conduct mentored research leading to 48 publications and 14 extramural grant applications were yielded. From the in-depth interviews, the participants appreciated the research training program, the enhanced research skills attained, and the institutional capacity built. They attributed the success of the program to the training approach of using short courses, readiness of the junior faculty to change, and the supportive environment by the mentors and trainers in the program. Conclusion The D43 TW010128 research training grant-built capacity for the junior faculty at MUST, enhanced their research skills, promoted research capacity institutionally and provided career development for the junior faculty. This was possible due to the positive attitude of the junior faculty (organizational readiness) to change and the supportive environment (mentors and trainers) during implementation of the grant. These two factors provided a favorable institutional climate that guaranteed success of the funding goals.

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Community perceptions about dementia in southwestern Uganda

Cited by 17 publications

References 26 publications

Lay Health Workers in Community-based Care and Management of Dementia: a ‘Pre’ and ‘Post’ Pilot Intervention Study in Southwestern Uganda

Lay Health Workers in Community-based Care and Management of Dementia: a ‘Pre’ and ‘Post’ Pilot Intervention Study in Southwestern Uganda

The needs, challenges, and burden experienced by informal caregivers in Uganda: a scoping review

Mbarara University Research Training Initiative: Experiences and Accomplishments of the MEPI Junior D43 TW010128 Award in Uganda

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