Community-Centered Family Health History: A Customized Approach to Increased Health Communication and Awareness

O’Leary, James J.; Edelson, Vaughn; Gardner, Nicora; Gepp, Alejandra; Kyler, Panelpha; Moore, Penelope; Petruccio, Claudia; Williams, Marc S.; Terry, Sharon F.; Bowen, Deborah J.

doi:10.1353/cpr.2011.0026

Cited by 7 publications

(11 citation statements)

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“…1,3 To our knowledge, KinFact is one of the first interventions to demonstrate an effective method for increasing this communication. While several interventions have been designed to increase cancer family history awareness in community settings [47][48][49] and use genetic counseling support to enhance family communication about specific genetic risks in higher risk settings, 39,50-55 we are not aware of studies assessing the gathering and sharing of cancer information in the families of primary care patients after communication skill-building intervention. As such, it may serve as the basis for future dissemination research and as a benchmark for studies aiming to improve the effectiveness of family health history interventions.…”

Section: Discussionmentioning

confidence: 99%

“…Surgeon General's Family History tool, 70 community-based workshops, 26 and other culturally adept family history campaigns. 47 Finally, as with most survey-based research, this study is limited by the measures utilized. In particular, the processes of family communication and how these relate to participants' responses to survey items might vary.…”

Section: Discussionmentioning

confidence: 99%

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The KinFact Intervention – A Randomized Controlled Trial to Increase Family Communication About Cancer History

Bodurtha

McClish

Gyure

et al. 2014

Journal of Women's Health

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Background: Knowing family history is important for understanding cancer risk, yet communication within families is suboptimal. Providing strategies to enhance communication may be useful. Methods: Four hundred ninety women were recruited from urban, safety-net, hospital-based primary care women's health clinics. Participants were randomized to receive the KinFact intervention or the control handout on lowering risks for breast/colon cancer and screening recommendations. Cancer family history was reviewed with all participants. The 20-minute KinFact intervention, based in communication and behavior theory, included reviewing individualized breast/colon cancer risks and an interactive presentation about cancer and communication. Study outcomes included whether participants reported collecting family history, shared cancer risk information with relatives, and the frequency of communication with relatives. Data were collected at baseline, 1, 6, and 14 months. Results: Overall, intervention participants were significantly more likely to gather family cancer information at follow-up (odds ratio [OR]: 2.73; 95% confidence interval [CI]: 2.01, 3.71) and to share familial cancer information with relatives (OR: 1.85; 95% CI: 1.37, 2.48). Communication frequency (1 = not at all; 4 = a lot) was significantly increased at follow-up (1.67 vs. 1.54). Differences were not modified by age, race, education, or family history. However, effects were modified by pregnancy status and genetic literacy. Intervention effects for information gathering and frequency were observed for nonpregnant women but not for pregnant women. Additionally, intervention effects were observed for information gathering in women with high genetic literacy, but not in women with low genetic literacy. Conclusions: The KinFact intervention successfully promoted family communication about cancer risk. Educating women to enhance their communication skills surrounding family history may allow them to partner more effectively with their families and ultimately their providers in discussing risks and prevention.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

The KinFact Intervention – A Randomized Controlled Trial to Increase Family Communication About Cancer History

Bodurtha

McClish

Gyure

et al. 2014

Journal of Women's Health

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“…The project models how the adaptation of resources for diverse communities can take an initiative to the national level without sacrificing the relevance or cultural competence of the materials. These results and data analysis are presented in a separate publication (O'Leary et al 2011).…”

Section: Introductionmentioning

confidence: 95%

Iona College Community Centered Family Health History Project: Lessons Learned from Student Focus Groups

Moore

Gratzer

Lieber

et al. 2011

Journal of Genetic Counseling

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The Community Centered Family Health History project was initiated to create accessible family health history tools produced by and for the community. The project goal was to promote increased community engagement in health education by encouraging conversations among family members that would translate knowledge of family health history into healthy lifestyle choices. As one of seven community partners, Iona College participated in customizing and beta-testing the Does It Run in the Family? toolkit. Twenty-nine college students were engaged to recruit three relatives related by blood to provide feedback on the utility of the toolkit. The toolkit consists of two booklets--"A Guide to Family Health History" and "A Guide to Understanding Genetics and Health"--explaining the importance of knowing and talking about health within the family as well as basics about how conditions are passed down through generations. Twenty-two of the twenty-nine students participated in focus groups to discuss their reactions to participation in the project. Students in the focus group reported that the study participants--students and their family members--found the toolkit to be user friendly and the experience a valuable one that prompted many to take positive steps toward good health.

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“…common diseases and Mendelian genetic conditions, as well as a tool for health communicating health concerns across families (Rich et al 2004, Valdez et al 2010, O'Leary et al 2011, Pyeritz 2012. Family and personal histories suggest over one-third of patients in primary care have an increased risk for disease; identifying this risk early with an effective FH may lead to enhanced risk management strategies (Rubinstein et al 2011, Orlando et al 2014.…”

Section: Introductionmentioning

confidence: 99%

Teaching the “Family History” Through Group Reflection

Molloy¹,

McGuire²,

Aluri³

et al. 2016

MedEdPublish

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Background: Family health history (FH) is a useful tool for assessing health risk and improving communication among family members, but remains underutilized in primary care practice. The goals of this study were to assess the utility of a content-driven group reflection on family history on student learning, and to equip them with tools to improve their skills in FH assessment. Methods: A 90-minute pilot Family History and Communication Reflection module was developed and made available to first and second-year medical students completing a longitudinal ambulatory clerkship; a group reflection model was used. 16 students (13% of the first year class) participated and 8 students completed the evaluation form. Results: The majority of students were satisfied with the module, would recommend the module to another student, and felt prepared or very prepared to incorporate FH assessment tools into their clinical practice. Conclusions: The pilot FH module was well-received by first-year medical students as a strategy for emphasizing the importance of assessing FH in a busy primary care setting and providing practical tools for FH. The reflective learning approach was cited as helpful for using and building upon prior clerkship experience. Family health history (FH) continues to be an important factor for understanding a patient's risk for

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Community-Centered Family Health History: A Customized Approach to Increased Health Communication and Awareness

Cited by 7 publications

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The KinFact Intervention – A Randomized Controlled Trial to Increase Family Communication About Cancer History

The KinFact Intervention – A Randomized Controlled Trial to Increase Family Communication About Cancer History

Iona College Community Centered Family Health History Project: Lessons Learned from Student Focus Groups

Teaching the “Family History” Through Group Reflection

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