Community care for patients with Alzheimer's disease and non-demented elderly people: use and satisfaction with services and unmet needs in family caregivers

Buono, Marirosa Dello; Busato, Renata; Mazzetto, Manuela; Paccagnella, B; Aleotti, Federica; Zanetti, Orazio; Bianchetti, Angelo; Trabucchi, Marco; Leo, Diego De

doi:10.1002/(sici)1099-1166(199911)14:11<915::aid-gps36>3.0.co;2-h

Cited by 53 publications

(35 citation statements)

References 20 publications

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“…Some of the reasons for not attending day centres include a lack of information, the unavailability of transport and the absence of an individually tailored approach (Dello-Buono et al, 1999). Judkins and Roberto (2001) also found that some people with Alzheimer's disease attending day care feared they would not be returning home.…”

mentioning

confidence: 99%

Domiciliary and day care services: Why do people with dementia refuse?

Durand¹,

James

Ravishankar³

et al. 2009

Aging & Mental Health

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mentioning

confidence: 99%

Domiciliary and day care services: Why do people with dementia refuse?

Durand¹,

James

Ravishankar³

et al. 2009

Aging & Mental Health

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“…This need can only be met with good communication skills from professionals. The system at the moment meets the needs of these families poorly 25 – 28…”

Section: Discussionmentioning

confidence: 99%

The use of legal guardians and financial powers of attorney among home-dwellers with Alzheimer’s disease living with their spousal caregivers

Raivio¹,

Mäki‐Petäjä‐Leinonen

Laakkonen³

et al. 2008

J Med Ethics

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We conducted a cross-sectional survey of a random sample of 1943 spouses of home-dwellers with Alzheimer's disease (AD) to examine the prevalence of court-appointed guardians or financial powers of attorney for persons with AD, related factors and the need for information about these issues among caregiving families. The questionnaire consisted questions on variables of demographic characteristics, disability, symptoms and care needs of the person with dementia, the strain of caregiving, the use of court-appointed legal guardians or powers of attorney, as well as discussions about these issues -- and the need for them -- with a doctor. The response rate was 77% and the mean ages of those with AD and caregivers were 80.2 and 78.2 years, respectively. The use of legal guardians was rare (4.3%), while the use of financial powers of attorney was more common (37.8%). Only 9.9% of the couples had discussed these issues with their doctor, whereas 47.9% expressed a need for it. The factors associated with the use of these legal arrangements were related to the severity of dementia, including experiencing dementia symptoms for more than 3 years, poor functioning, incontinence and behavioural symptoms. There is a clear need for information on medico-legal issues related to dementia among caregivers of AD patients. If held soon after the diagnosis, such discussions could support the autonomy of these persons in spite of AD and enable them to plan for the future as they wish.

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“…In research into community services for patients who are cared for at home, more consideration of the unmet needs of family caregivers is called for (dello Buono et al 1999). Unmet needs are defined as dissatisfaction with a special service or wishes about more or different support (dello Buono et al 1999) and therefore conform to the term quality wishes in our study.…”

Section: Structural Quality (S): Non-personal Factors (S I); Person-rmentioning

confidence: 99%

“…Unmet needs are defined as dissatisfaction with a special service or wishes about more or different support (dello Buono et al 1999) and therefore conform to the term quality wishes in our study. To meet these wishes is very important because consideration of the family caregivers' quality requirements reduces the barrier to utilization (Winslow 2003).…”

Section: Structural Quality (S): Non-personal Factors (S I); Person-rmentioning

confidence: 99%

Counselling for dementia caregivers—predictors for utilization and expected quality from a family caregiver’s point of view

Gräßel

Luttenberger

Trilling³

et al. 2010

Eur J Ageing

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Caregiver counselling has proved to be effective in reducing the burden of family caregivers of dementia patients. Nevertheless, little is known about the influencing factors for utilization and quality expectations of family caregivers. In this article, we address the following questions on the theoretical base of the Andersen/ Newman model: Which variables of the care situation, the caregivers and their attitudes act as predictors for the utilization of caregiver counselling? What are the views of caregivers about the quality of caregiver counselling? The cross-sectional study was carried out as an anonymous written survey of family caregivers of dementia patients in four regions, both urban and rural, of Germany. Quantitative and qualitative data from 404 family caregivers were analysed using binary logistic regression analysis and qualitative content analysis, respectively. The only significant predictor for utilization is the assessment of how helpful caregiver counselling is for the individual care situation. In the sensitivity analysis 'accessibility of caregiver counselling' was additionally predictive for usage. Family caregivers most frequently expressed a wish for advice about further 'support offers' by qualified counsellors. In order to increase the rate of utilization, family caregivers must be convinced of the relevant advantages of using caregiver counselling. Counselling services should provide information about further support offers and give practical help in filling out application forms.

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Community care for patients with Alzheimer's disease and non-demented elderly people: use and satisfaction with services and unmet needs in family caregivers

Cited by 53 publications

References 20 publications

Domiciliary and day care services: Why do people with dementia refuse?

Domiciliary and day care services: Why do people with dementia refuse?

The use of legal guardians and financial powers of attorney among home-dwellers with Alzheimer’s disease living with their spousal caregivers

Counselling for dementia caregivers—predictors for utilization and expected quality from a family caregiver’s point of view

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