Community care for patients with Alzheimer's disease and non‐demented elderly people: use and satisfaction with services and unmet needs in family caregivers

Buono, Marirosa Dello; Busato, Renata; Mazzetto, Manuela; Paccagnella, B; Aleotti, Federica; Zanetti, Orazio; Bianchetti, Angelo; Trabucchi, Marco; Leo, Diego De

doi:10.1002/(sici)1099-1166(199911)14:11<915::aid-gps36>3.3.co;2-8

Cited by 3 publications

(2 citation statements)

References 0 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Mullan (1993) found that care receivers resisted use of community services, whereas Harrison and Neufeld (1997) described the reluctance of caregivers to use community services. Several investigators have also noted the concern that caregivers express over the cost of community services (Dello-Buono et al, 1999;Liken & King, 1995;Mullan, 1993). Similarly, others who have studied use of community services have reported the problem of quality of care (Mullan, 1993;Liken & King, 1995).…”

Section: Discussionmentioning

confidence: 99%

“…Families who care for relatives with dementia have reported lacking information about services and the ability to access services, preferring services with tailored interventions, needing financial and psychological support, wanting interventions within the home, and being unsatisfied with the quality of care (Dello-Buono, Busato, Mazzetto, Paccagnella, Aleotti, Zanetti, Bianchetti, Trabucchi, & De Leo, 1999). Liken and King (1995) reported in their study of AD family caregivers' (N ¼ 32) use of home health aide services that the costs outweighed the benefits, especially when hassles, loss of control, service fit, and knowledge deficits of aides were taken into consideration.…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

Family Caregivers' Experiences with Community Services: A Qualitative Analysis

Winslow

2003

Public Health Nursing

View full text Add to dashboard Cite

Researchers of family caregiving have presented mixed results in evaluating the effectiveness of community services in reducing family caregiver stress and have indicated that many caregivers use limited services or access services late in their caregiving experience. The purpose of this study was to describe the experience of the use of community services, including benefits and barriers, by family caregivers of relatives with Alzheimer's disease or a related disorder. Community services included assistance with caregiving or related tasks and educational or emotional support that was provided by health professionals or community service providers. In this qualitative descriptive study, a convenience sample of 21 family caregivers was interviewed. Open-ended questions were used to explore the caregivers' experiences with community services. Transcribed data were analyzed using qualitative content-analysis techniques. Results indicated that family caregivers received benefits of renewal, sense of community, and new knowledge and believed that their patient benefited from the services. Barriers to service use included care receiver resistance, reluctance of the caregiver, hassles for the caregiver, concerns over quality, and concerns over finances. These findings provide direction for community nurses and other health professionals in targeting interventions that will meet the expressed needs of caregivers.

show abstract

Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Family Caregivers' Experiences with Community Services: A Qualitative Analysis

Winslow

2003

Public Health Nursing

View full text Add to dashboard Cite

show abstract

Dynamic process of family burden in dementia caregiving: a new field for psychotherapeutic interventions

et al. 2005

View full text Add to dashboard Cite

Families caring for a patient with dementia are prone to significant physical, psychological and social stress. It is now well established that the caregiver burden does not only negatively affect the caregiver's physical and mental health, but is also associated with an increase in behavioural and psychiatric symptoms of dementia. Burden determinants include the quality of the relationship between the patient and caregiver; patient variables, such as the need to manage the behavioural and psychological symptoms of dementia; and also caregiver variables, such as the satisfaction of caring, demographic characteristics and societal roles. The standardised assessment of interventions for caregivers in dementia care remains a difficult task. In recent years, family interventions that focus on the process of burden itself in relation to the caregiver's subjective experience of personal growth and enrichment have been proposed. This new approach is based on the identification of tasks and challenges faced by family members throughout the different stages of the disease. In this context, brief crisis interventions transform periods of disorganisation experienced by the family into opportunities for change, whereas rehabilitation interventions developed by professional caring networks offer a continuous assessment and advice to the family. This article provides a critical review of the consequences and determinants of caregiver burden in dementia care with special reference to the emerging notion of the caregiver's subjective experience in the context of family processes.

show abstract

The Experience of the Family Caregivers’ Role: A Qualitative Study

Lane

McKenna²,

Ryan³

et al. 2003

Res Theory Nurs Pract

View full text Add to dashboard Cite

In Ireland, there is a dearth of research exploring the perceived health and social care needs and experiences of family caregivers of older people. In response, this research study was conducted to explore the profile, role and needs of family caregivers as a means of understanding their experience of caring. The study also set out to identify coping strategies employed by caregivers and explore positive aspects of the caring relationship in relation to quality of life, information needs, day care and respite care, transport and emotional support. A multimethod approach used interviews, focus groups and postal questionnaires. In the main study a pretested questionnaire, comprising closed and open questions was used with a stratified, systematically randomized sample of caregivers in urban and rural home care settings, of which 52% of respondents to the questionnaire volunteered to partake in in-depth interviews. This article per deals predominantly with the findings arising from 10 in-depth qualitative interviews. The data yielded a rich and meaningful picture of the caregiving experience, profiling the complex nature of this diverse and multifaceted role. Findings showed that three main categories emanated from the data: the caring role-context and attitudes, the impact of caring and the need to support the carers' role. The need to develop continually an understanding of the effectiveness of specific health and social care interventions was also of paramount importance. The anticipated continuing demand for family care means that caregivers' needs and perspectives need to be integrated into future service planning and decision-making processes, in partnership with statutory and voluntary bodies. While this was the first study of its type in Ireland, the issues raised reflect the findings of other published studies and have important lessons for family carers and health care practitioners generally.

show abstract

Community care for patients with Alzheimer's disease and non‐demented elderly people: use and satisfaction with services and unmet needs in family caregivers

Cited by 3 publications

References 0 publications

Family Caregivers' Experiences with Community Services: A Qualitative Analysis

Family Caregivers' Experiences with Community Services: A Qualitative Analysis

Dynamic process of family burden in dementia caregiving: a new field for psychotherapeutic interventions

The Experience of the Family Caregivers’ Role: A Qualitative Study

Contact Info

Product

Resources

About