Community-Based Participatory Research in Little Haiti: Challenges and Lessons Learned

Kobetz, Erin; Menard, Janelle; Diem, Joshua; Barton, Betsy; Blanco, Jenny; Pierre, Larry; Auguste, Pascale; Etienne, Marie O.; Brewster, Cheryl

doi:10.1353/cpr.0.0072

Cited by 24 publications

(27 citation statements)

References 17 publications

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“…Yet, the documented challenges do not bring out the social or structural deterrents pertaining to the nature of the community context where the research takes place. The obstacles to 'participation' cited in the literature pertain to the research process itself, and include complaints from the community about the nature of the research process conducted on the community members rather than with them; inadequate information about results and their utility (Christopher et al, 2008); researchers 'parachuting' into communities to conduct research without providing feedback or assistance (Buchanan et al, 2007); putting ideas of community members into boxes to be examined (Minkler, 2005) and the difficulty of the research language (Kobetz et al, 2009;Weeks et al, 2010). Other issues relate to the researcher-community interaction.…”

Section: Cbpr and Related Conceptsmentioning

confidence: 99%

Community-based participatory research in complex settings: clean mind-dirty hands

Makhoul

Nakkash

Harpham

et al. 2013

Health Promotion International

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SUMMARYDespite the abundance of the literature which discusses factors supporting or inhibiting effective participation of community members in community-based research, there is a paucity of publications analysing challenges to participation in complex settings. This manuscript describes an intervention built on researcher-community partnership amid complex social conditions which challenged participation of community members at different stages of the research process. The research took place in a Palestinian refugee camp in Beirut, Lebanon and 1 of 12 in Lebanon which suffer from deteriorating social, economic and physical conditions perpetuated by state-imposed restrictions. The research team developed a community coalition which was involved in all stages of planning, designing, implementation and dissemination. In all those stages the aim was to maintain rigorous research, to follow a 'clean mind' approach to research, but maintain principles of community participation which necessitate 'a dirty hand'. Despite commitment to the principles of community-based participatory research, participation of community members (including youth, parents and teachers) was affected to a great extent by the social, physical and structural conditions of the community context. Characteristics of the context where research is conducted and how it affects community members should not be overlooked since multiple factors beyond the researchers' control could interfere with the rigour of scientific research. Researchers need to develop a plan for participation with the community from the beginning with an understanding of the community forces that affect meaningful participation and address possible deterrence.

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Section: Cbpr and Related Conceptsmentioning

confidence: 99%

Community-based participatory research in complex settings: clean mind-dirty hands

Makhoul

Nakkash

Harpham

et al. 2013

Health Promotion International

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“…Therefore, engaging the community in each step of the scientific enquiry helps to facilitate positive change (Green & Mercer 2001), and brings in a diverse group of stakeholders to co-own a solution that matters and makes sense to them. Hence, implementation will more likely be sustained (Kobetz et al 2009;Martinez, Carter-Pokras & Broan 2009;Minkler 2005;Okubo & Weidman 2000). In addition, given the complexity of health determinants and the disparities experienced …”

Section: Background Researchmentioning

confidence: 99%

Sustaining Community-University Partnerships: Lessons learned from a participatory research project with elderly Chinese

Dong

Chang

Simon³

et al. 2011

Gateways

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The strength of community-engaged research has been well documented in public health literature. It is recognised as a useful approach for eliminating health disparities by linking research and practice. While the framework of community-engaged research encompasses a broad range of research collaborations, community-based participatory research (CBPR) places most emphasis on involving the community as a full, equitable partner throughout the collaboration. Despite growing interest in and demand for community-university partnerships, less attention is given to the issue of partnership sustainability. The purpose of this article is to present the challenges faced in sustaining a community-university partnership when conducting a CBPR project with an elderly Chinese population in Chicago’s Chinatown. Lessons and strategies learned from the cultural and linguistic complexities of the Chinese community are also detailed. In addition, based on a well-accepted sustainability conceptual framework, we reflect on the initial stage, mid-term actions and long-term goals of developing partnership sustainability. Working with the Chinese community required trust and respect for its unique cultural values and diversity. The cultural, social and environmental contexts within which the partnership operated served as critical forces for long-term sustainability: a culturally sensitive approach is instrumental in sustaining community-university partnership. Also discussed are the significant implications for evidence-based, impact-driven partnerships to develop culturally appropriate strategies to meet the needs of diverse populations. Keywords Community-based participatory research, community health partnerships, health promotion, Chinese Americans, ageing

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“…We focused on building long-term relationships in the community through educational service projects and participatory research (Juliá and Kondrat 2005;Kobetz et al 2009;Vandebroek 2013). Crosscultural experiential educational sessions were organized and led by experts from Jamaica, Ghana, and the United States.…”

Section: Methodsmentioning

confidence: 99%

Participatory Ethnomedicinal Cancer Research with Fante-Akan Herbalists in Rural Ghana

Ragosta¹,

Harris²,

Gyakari

et al. 2015

EBL

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An ethnomedicinal study was initiated with herbalists in coastal Central Region Ghana to explore how cancer is defined, diagnosed, and treated within a traditional Fante-Akan context. The participatory, service-oriented investigation included international collaboration with herbalists and traditional plant experts. On-site meetings informed community leaders and members of project intent and methods, guided protocol, and gauged critical support. To provide immediate educational and economic opportunities, hands-on activities with villagers transferred academic and applied skills. Ethnographic interviews and voucher specimen collections were conducted with seven herbalists. Plant samples were dried and housed locally in a community herbarium cabinet constructed in Kormantse. Ten cancer ethnopharmacopoeia plants were identified, most of which are species considered native to tropical Africa. Fante Akan herbalists listed various types of cancers they treat with herbal remedies, along with ethnomedicinal descriptions of disease etiology, diagnoses, and treatments. The most common cancer type mentioned was “breast cancer.” Topical application was the most often cited method of administering remedies. Researchers established key contacts in the Kormantse, Salt Pond, and Elmina communities, and identified local and international research collaborators for a proposed interdisciplinary project focused on longitudinal case studies with herbalists, patients, and medical physicians.

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Community-Based Participatory Research in Little Haiti: Challenges and Lessons Learned

Abstract: Partnerships are fostered over time through demonstrated mutual commitment to improving health and building community capacity. Communities must play an active role throughout the research process to ensure that studies are culturally relevant, and ensuing intervention, sustainable.

Cited by 24 publications

References 17 publications

Community-based participatory research in complex settings: clean mind-dirty hands

Community-based participatory research in complex settings: clean mind-dirty hands

Sustaining Community-University Partnerships: Lessons learned from a participatory research project with elderly Chinese

Participatory Ethnomedicinal Cancer Research with Fante-Akan Herbalists in Rural Ghana

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