Community advisory boards: Experiences and common practices of clinical and translational science award programs

Stewart, M. Kathryn; Boateng, Beatrice A.; Joosten, Yvonne; Burshell, Dana; Broughton, Hilary O.; Calhoun, Karen; Davis, Anna Huff; Hale, Rachel; Spencer, Nicola; Piechowski, Patricia; James, Laura P.

doi:10.1017/cts.2019.389

Cited by 28 publications

(23 citation statements)

References 9 publications

(21 reference statements)

Supporting

Mentioning

Contrasting

Order By: Relevance

“…A 2011 survey of Clinical and Translational Science Awards programs found that 89% worked with CABs, 97 and recently, common practices have been articulated. 98 Likewise, the National Cancer Institute explicitly referenced CAB development as an engagement practice in their 2016 mandate for "community outreach and engagement" within National Cancer Institute-designated cancer centers. 99 Finally, the Patient-Centered Outcomes Research Institute developed an expectation for stakeholder engagement as a central tenet of their grant making.…”

Section: Discussionmentioning

confidence: 99%

Community-Engaged Approaches for Minority Recruitment Into Clinical Research: A Scoping Review of the Literature

Wieland

Njeru

Alahdab

et al. 2021

Mayo Clinic Proceedings

View full text Add to dashboard Cite

Underrepresentation of racial and ethnic minority populations in clinical research persists in the United States, highlighting the unmet ideals of generalizability and equity of research findings and products. Previous systematic reviews exploring various facets of this phenomenon concluded that community engagement with minority groups may effectively promote recruitment and retention, but the ways in which community-engaged approaches have been used for recruitment have not been examined. We performed a scoping review of the literature to identify studies of community-engaged recruitment processes. The search resulted in 2842 articles, of which 66 met inclusion criteria. These articles demonstrated a relatively large literature base of descriptive studies conveying details of community engagement approaches to enhance recruitment of minority research participants. We summarize key aspects of current practices across the spectrum of community engagement. A gap in the literature is the relative lack of the comparative studies among different engagement strategies.

show abstract

Section: Discussionmentioning

confidence: 99%

Community-Engaged Approaches for Minority Recruitment Into Clinical Research: A Scoping Review of the Literature

Wieland

Njeru

Alahdab

et al. 2021

Mayo Clinic Proceedings

View full text Add to dashboard Cite

show abstract

“…[15] Community and stakeholder advisory councils or boards have been established as an effective strategy to develop research that is responsive and relevant to the end-users. [16] The infrastructure of a stakeholder advisory council may be an effective approach to engage persons living with dementia and family care partners in research alongside health and social care professionals. Stakeholder advisory councils that include family care partners have been shown to be effective in informing the development and implementation of interventions to support family care partners of persons living with dementia.…”

Section: Patient Centered Outcomes Research Institute (Pcori) In the mentioning

confidence: 99%

Engagement with a Diverse Stakeholder Advisory Council for Research in Dementia Care

Masoud

Glassner

Patel

et al. 2021

Preprint

View full text Add to dashboard Cite

Background The inclusion of stakeholders throughout the research process has been gaining recognition as an approach that can improve the quality and impact of research. Stakeholder engagement for dementia care research has been identified as a national priority, though evaluation of engagement strategies and their impact has been limited. In dementia care research, stakeholders can include individuals living with dementia, family care partners, and health and social care professionals in dementia care. A Stakeholder Advisory Council (SAC) was established to identify priorities for dementia care research that are most important to stakeholders. Strategies to build capacity for research and facilitate engagement among the SAC were used to identify the research priorities. This study describes the experiences of SAC members engaged in the research process. Methods To evaluate stakeholder engagement, semi-structured interviews were conducted with members of the SAC to understand their experiences and perspectives on the strategies used to facilitate engagement and build capacity for research. Interviews were recorded, transcribed, and thematically analyzed using a mixed inductive and deductive approach. Findings were presented to members of the SAC to determine whether they felt their perspectives and experiences were accurately represented. Final domains and themes presented here were approved by the SAC. Results Interviews (N=11) were conducted with members of the SAC representing each stakeholder group; persons living with dementia (n=2); family care partners (n=4), and health and social care professionals in dementia care (n=5). Ten themes were categorized into four overarching domains: accessibility, council infrastructure, values and environment, and benefits of involvement. Conclusions Findings from this qualitative study are a resource for researchers seeking to collaborate with diverse stakeholder groups to represent their perspectives in research, including individuals living with dementia. The domains and themes identified here support the inclusion of diverse stakeholders in the research process, centering engagement and capacity building strategies around individuals living with dementia.

show abstract

“…The widespread use of CABs as well as their composition, roles and responsibilities, and functions of CABs appear to reflect consensus regarding their importance and prominence in translational research. In a recent study of CTSAs utilizing CABs (Stewart et al, 2019), virtually every CAB included members "representing lay interests" (p. 220), such as community members, representatives of advocacy organizations, and patients. Approximately threequarters of CTSAs included clinicians and representatives of health-care organizations and almost one-third included government (e.g., local, state, federal) and academic representatives.…”

Section: Community Engagement and Community Advisory Boardsmentioning

confidence: 99%

The use of community advisory boards in pragmatic clinical trials: The case of the adult day services plus project

Anderson

Dabelko‐Schoeny

Koeuth

et al. 2020

Home Health Care Services Quarterly

View full text Add to dashboard Cite

Community advisory boards (CABs) have become increasingly common and important in translational research in health care including studies focusing on home and community-based services. CABs are composed of stakeholders who share interest in research projects and typically include patients/clients, practitioners, community members, policymakers, and researchers. CABs advise researchers on issues ranging from research design and recruitment to implementation and dissemination. In this article, the researchers detail their experiences with the CAB for a pragmatic clinical trail of Adult Day Services (ADS) Plus, an education and support intervention for family caregivers of older adults with dementia using adult day services. Lessons learned, guidelines, and best practices are then presented for developing and working with a CAB in healthcare research.

show abstract

Community advisory boards: Experiences and common practices of clinical and translational science award programs

Cited by 28 publications

References 9 publications

Community-Engaged Approaches for Minority Recruitment Into Clinical Research: A Scoping Review of the Literature

Community-Engaged Approaches for Minority Recruitment Into Clinical Research: A Scoping Review of the Literature

Engagement with a Diverse Stakeholder Advisory Council for Research in Dementia Care

The use of community advisory boards in pragmatic clinical trials: The case of the adult day services plus project

Contact Info

Product

Resources

About