Communication with Breast Cancer Survivors

Clayton, Margaret F.; Dudley, William N.; Musters, Adrian

doi:10.1080/10410230701808376

Cited by 39 publications

(34 citation statements)

References 59 publications

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“…Thus, physicians’ ability to communicate helpful advice and complete information was key to patients’ comfort regarding prognosis and treatment. For cancer patients, unresolved physical problems often prompt emotional uncertainty about prognosis, [19;32;33]. Our findings support prior survivor-physician research [34;35] showing that survivors perceived optimal quality of care when they experienced satisfactory patient-centered communication with physicians.…”

Section: Discussionsupporting

confidence: 82%

Perceptions, expectations, and attitudes about communication with physicians among Chinese American and non-Hispanic white women with early stage breast cancer

Wang

Adams

Pasick

et al. 2013

Support Care Cancer

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Purpose Asian Americans have consistently reported poorer communication with physicians compared with non-Hispanic Whites (NHW). This qualitative study sought to elucidate the similarities and differences in communication with physicians between Chinese and NHW breast cancer survivors. Methods Forty-four Chinese and 28 NHW women with early-stage breast cancer (stage 0-IIa) from the Greater Bay Area Cancer Registry participated in focus group discussions or individual interviews. We oversampled Chinese women because little is known about their cancer care experiences. In both interview formats, questions explored patients’ experiences and feelings when communicating with physicians about their diagnosis, treatment, and follow-up care. Results Physician empathy at the time of diagnosis was important to both ethnic groups; however, during treatment and follow-up care, physicians’ ability to treat cancer and alleviate physical symptoms was a higher priority. NHW and US-born Chinese survivors were more likely to assert their needs, whereas Chinese immigrants accepted physician advice even when it did not alleviate physical problems (e.g., pain). Patients viewed all physicians as the primary source for information about cancer care. Many Chinese immigrants sought additional information from primary care physicians and stressed optimal communication over language concordance. Conclusions Physician empathy and precise information were important for cancer patients. Cultural differences such as the Western emphasis on individual autonomy vs. Chinese emphasis on respect and hierarchy can be the basis for the varied approaches to physician communication we observed. Interventions based on cultural understanding can foster more effective communication between immigrant patients and physicians ultimately improving patient outcomes.

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Section: Discussionsupporting

confidence: 82%

Perceptions, expectations, and attitudes about communication with physicians among Chinese American and non-Hispanic white women with early stage breast cancer

Wang

Adams

Pasick

et al. 2013

Support Care Cancer

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“…Scores on the MFSI-SF have evidence of being reliable and valid (Donovan et al, 2015; Stein et al, 2004). Reported reliabilities for scores on the total scale have ranged from .86 to .96 (Clayton, Dudley, & Musters, 2008; Roepke et al, 2009; Stein et al, 1998). Construct validity has been supported with confirmatory factor analysis of the five subscales (Stein et al, 2004); concurrent validity has been supported with significant correlations between the MFSI-SF and Profile of Mood States (POMS) fatigue scale scores in both African Americans and Caucasians (Bardwell et al, 2006) and with scores on the Fatigue Symptom Inventory (Stein et al, 2004).…”

Section: Methodsmentioning

confidence: 99%

Psychometric Evaluation of the Patient-Reported Outcomes Measurement Information System Fatigue-Short Form Across Diverse Populations

et al. 2016

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Background The need for reliable, valid tools to measure patient-reported outcomes (PROs) is critical for both research and for evaluating treatment effects in practice. The Patient Reported Outcome Measurement Information System (PROMIS) Fatigue-Short Form v1.0 –Fatigue 7a (PROMIS F-SF) has had limited psychometric evaluation in various populations. Objectives The aim of the study is to examine psychometric properties of PROMIS F-SF item responses across various populations. Methods Data from five studies with common data elements were used in this secondary analysis. Samples from patients with fibromyalgia, sickle cell disease, cardiometabolic risk, pregnancy, and healthy controls were used. Reliability was estimated using Cronbach’s alpha. Dimensionality was evaluated with confirmatory factor analysis. Concurrent validity was evaluated by examining Pearson’s correlations between scores from the PROMIS F-SF, the Multidimensional Fatigue Symptom Inventory-Short Form (MFSI-SF), and the Brief Fatigue Inventory (BFI). Discriminant validity was evaluated by examining Pearson’s correlations between scores on the PROMIS F-SF and measures of stress and depressive symptoms. Known groups validity was assessed by comparing PROMIS F-SH scores in the clinical samples to healthy controls. Results Reliability of PROMIS F-SF scores was adequate across samples, ranging from .72 in the pregnancy sample to .88 in healthy controls. Unidimensionality was supported in each sample. Concurrent validity was strong; across the groups, correlations with scores on the MFSI-SF and BFI ranged from .60–.85. Correlations of the PROMIS-SF with measures of stress and depressive mood were moderate to strong, ranging from .37–.64. PROMIS F-SF scores were significantly higher in clinical samples, compared to healthy controls. Discussion Reliability and validity of the PROMIS F-SF were acceptable. The PROMIS F-SF is a suitable measure of fatigue across the four diverse clinical populations included in the analysis.

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“…Further, the use of audio recorded data has been shown to be feasible and comprehensive, with other researchers using audio-recordings to investigate patient-provider communication processes (e.g. Brown, Butow, Boyle, & Tattersall, 2007; Clayton, Dudley, & Musters, 2008; Hausmann et al, 2011; Pollak et al, 2007). Despite the limitations associated with recording audio only, this study is the first of its kind and magnitude, and our systematic large scale examination of audio recorded communication during the provision of home hospice care has the potential to make significant contributions to the end-of-life literature and care, as well as to the development of approaches to ensure the rigor required when managing large longitudinal datasets.…”

Section: Challenge: Data Collectionmentioning

confidence: 99%

Addressing Methodological Challenges in Large Communication Data Sets: Collecting and Coding Longitudinal Interactions in Home Hospice Cancer Care

Reblin

Clayton

John

et al. 2015

Health Communication

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In this paper, we present strategies for collecting and coding a large longitudinal communication dataset collected across multiple sites, consisting of over 2000 hours of digital audio recordings from approximately 300 families. We describe our methods within the context of implementing a large-scale study of communication during cancer home hospice nurse visits, but this procedure could be adapted to communication datasets across a wide variety of settings. This research is the first study designed to capture home hospice nurse-caregiver communication, a highly understudied location and type of communication event. We present a detailed example protocol encompassing data collection in the home environment, large-scale, multi-site secure data management, the development of theoretically-based communication coding, and strategies for preventing coder drift and ensuring reliability of analyses. Although each of these challenges have the potential to undermine the utility of the data, reliability between coders is often the only issue consistently reported and addressed in the literature. Overall, our approach demonstrates rigor and provides a “how-to” example for managing large, digitally-recorded data sets from collection through analysis. These strategies can inform other large-scale health communication research.

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Communication with Breast Cancer Survivors

Cited by 39 publications

References 59 publications

Perceptions, expectations, and attitudes about communication with physicians among Chinese American and non-Hispanic white women with early stage breast cancer

Perceptions, expectations, and attitudes about communication with physicians among Chinese American and non-Hispanic white women with early stage breast cancer

Psychometric Evaluation of the Patient-Reported Outcomes Measurement Information System Fatigue-Short Form Across Diverse Populations

Addressing Methodological Challenges in Large Communication Data Sets: Collecting and Coding Longitudinal Interactions in Home Hospice Cancer Care

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