Communication vulnerable patients in the pediatric ICU: Enhancing care through augmentative and alternative communication

Costello, John M.; Patak, Lance; Pritchard, Jennifer

doi:10.3233/prm-2010-0140

Cited by 47 publications

(30 citation statements)

References 11 publications

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“…3,4 Different definitions of communication vulnerable people have been proposed in the literature. 5,6 We define them as those who struggle to communicate in a particular environment due to a medical condition. They experience difficulties in expressing their needs and/or in understanding information.…”

Section: Introductionmentioning

confidence: 99%

Using Talking Mats to support conversations with communication vulnerable people: A scoping review

Stans

Dalemans

Witte

et al. 2019

TAD

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The objective was twofold: to provide an overview of the objectives, target groups and settings for which Talking Mats has been used (Part 1), and an overview of empirical scientific knowledge on the use of Talking Mats (Part 2). MethodsIn this scoping review scientific and grey literature was searched in PubMed, Cinahl, Psychinfo, Google, and Google Scholar. Articles that described characteristics of Talking Mats or its use were included. For Part 2, additional selection criteria were applied to focus on empirical scientific knowledge. ResultsThe search yielded 73 publications in Part 1, 12 of which were included in Part 2. Talking Mats was used for functional objectives (e.g. goal setting) and to improve communication and involvement. Part 2 showed that Talking Mats had positive influences on technical communication, effectiveness of conversations, and involvement and decision making in conversations. However, the level of research evidence is limited. ConclusionsTalking Mats can be used to support conversations between professionals and communication vulnerable people. More research is needed to study the views of people who are communication vulnerable and to study the effects of Talking Mats. ConclusionTalking Mats can be used to support communication and involvement and for functional objectives during the healthcare process. The empirical studies showed that Talking Mats had a positive influence on several communication aspects and involvement in conversations for people with aphasia, learning disabilities, H T T M tween communication vulnerable people and professionals or caregivers. However, the body of scientific knowledge about Talking Mats is limited, due to the designs of the studies and the limited number of studies per target group. Establishing evidence-based recommendations for using Talking Mats in daily practice requires more scientific knowledge.

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Section: Introductionmentioning

confidence: 99%

Using Talking Mats to support conversations with communication vulnerable people: A scoping review

Stans

Dalemans

Witte

et al. 2019

TAD

View full text Add to dashboard Cite

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“…Patients who require AAC supports during a hospitalization may benefit from multiple tools and strategies to adequately ensure access to supports throughout the day . Depending on the patient's medical status, strength and coordination abilities, speech and language skills, and various other factors (Table ), certain strategies may be warranted simultaneously or in succession throughout the recovery continuum.…”

Section: Methodsmentioning

confidence: 81%

“…Patients were referred to an SLP for an AAC consult by providers if they were determined to have possible communication vulnerability during their inpatient stay. Communication vulnerability is defined as a diminished capacity in expressive and/or receptive communication abilities and includes baseline vulnerabilities or acute onset vulnerability, such as a new tracheostomy . A feature‐matched assessment (described further in Table ) was performed by an SLP during the initial assessment encounter to identify the most appropriate recommendations to enhance the patient's communication.…”

Section: Methodsmentioning

confidence: 99%

“…The process of performing a feature‐matched assessment includes identifying the individual's unique needs and skills and matching them to available and appropriate communication strategies . Bedside feature‐matched assessments are dynamic in nature and may occur across the recovery continuum, including times when patients may be sedated or intubated, given patients' changing needs and medical status …”

Section: Methodsmentioning

confidence: 99%

“…The Joint Commission acknowledged communication interventions as a critical factor in care, paramount to preserving the patient's basic human right to effective communication and genuine interactions with families, loved ones, and care providers. Research has shown that the inability to communicate effectively is a leading cause of adverse medical errors and sentinel events, and a reduced ability to communicate has been shown to negatively affect a patient's mood, anxiety, fear, and connectedness . Common strategies, including lip reading, gestures, and head nods may result in time‐consuming and incorrect interpretation of messages .…”

Section: Introductionmentioning

confidence: 99%

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Preoperative augmentative and alternative communication enhancement in pediatric tracheostomy

et al. 2019

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Objectives/Hypothesis Describe augmentative communication tools and strategies used by pediatric patients referred to inpatient speech‐language pathologists prior to tracheostomy placement. Study Design Retrospective review. Methods A review of patients who underwent initial tracheostomy placement from 2013‐2016 was conducted at a tertiary pediatric center. Eligible patients were those who were referred to a specialized speech‐language pathologist prior to the date of the tracheostomy placement to support communication abilities. Patients were identified by surgical procedural and billing codes. Data collected included patient demographics, speech and language disorders, and interventions performed. Chart review and cross analysis of billing data for types of assessment and intervention procedures were conducted by two speech‐language pathologists for consensus agreement. Results Forty‐six patients (aged 1 month–27 years, mean = 12.9 years) were included in the study. Average time between the bedside communication assessment and tracheostomy procedure date was 17 days. Baseline speech‐language disorders were identified in 11 patients (24%). Thirty‐eight (83%) patients were nonspeaking at the time of consultation. Thirty‐two (70%) patients utilized an electronic communication tool, and 36 (78%) utilized low‐technology communication strategies during the preoperative period. A total of 32 (70%) patients were documented as using no‐technology or speech‐enhancement strategies during the acute hospitalization. Conclusions Multidisciplinary tracheostomy teams should consider consultation to speech‐language pathologists for patients prior to tracheostomy placement to assess for utility of high‐technology, low‐technology, and no‐technology augmentative and alternative communication strategies. Level of Evidence 4 Laryngoscope, 130:1817–1822, 2020

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Pain communication in children with autism spectrum disorder: A scoping review

Johnson,

van Zijl,

Kuyler

2023

Paediatric and Neonatal Pain

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Children with autism spectrum disorder (ASD) experience social interaction and communication challenges and often display repetitive, restricted patterns of behavior, activities, and interests. The concept of pain is regarded as one of the most complex human stressors due to its subjective and personal nature and the influences of multiple internal and external factors. Due to the complexity of this disorder, it remains concerning how children with ASD communicate their pain and how observers (i.e., parents, carers, and health care practitioners) respond to these children's pain communication. This scoping review aimed to identify how children with ASD communicate or express their pain. Ten studies met the inclusion criteria for further data extraction. Through reflexive thematic analysis, two main themes were identified: verbal and nonverbal responses used by children with ASD to communicate their pain that could influence pain assessment and management strategies. This review highlighted that children with ASD utilized various verbal and nonverbal methods to communicate their pain experiences and that these methods differed compared to children without disabilities. Furthermore, this review emphasizes the importance of holistic pain assessment strategies as well as additional pictorial support for children with ASD. This review recommends that future research should focus on understanding how the inclusion of different stakeholders in pain assessment for children with ASD, can contribute to holistic pain assessment.

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Communication vulnerable patients in the pediatric ICU: Enhancing care through augmentative and alternative communication

Cited by 47 publications

References 11 publications

Using Talking Mats to support conversations with communication vulnerable people: A scoping review

Using Talking Mats to support conversations with communication vulnerable people: A scoping review

Preoperative augmentative and alternative communication enhancement in pediatric tracheostomy

Pain communication in children with autism spectrum disorder: A scoping review

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