Communication Challenges and Strategies of U.S. Health Professionals Caring for Seriously Ill South Asian Patients and Their Families

Khosla, Nidhi; Washington, Karla T.; Shaunfield, Sara; Aslakson, Rebecca

doi:10.1089/jpm.2016.0167

Cited by 20 publications

(56 citation statements)

References 21 publications

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“…We also showed that network structure and composition, including density, closeness, and proportion kin, were associated with health discussions among South Asians and their network members. Our data lend additional empiric support to prior studies showing that South Asian immigrants rely on close family members for health information and advice [ 45 ]. How these health discussions influence behaviors or health outcomes is an area that has yet to be explored.…”

Section: Discussionsupporting

confidence: 84%

Personal social networks and organizational affiliation of South Asians in the United States

et al. 2018

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BackgroundUnderstanding the social lives of South Asian immigrants in the United States (U.S) and their influence on health can inform interpersonal and community-level health interventions for this growing community. This paper describe the rationale, survey design, measurement, and network properties of 700 South Asian individuals in the Mediators of Atherosclerosis in South Asians Living in America (MASALA) social networks ancillary study.MethodsMASALA is a community-based cohort, established in 2010, to understand risk factors for cardiovascular disease among South Asians living in the U.S. Survey data collection on personal social networks occurred between 2014 and 2017. Network measurements included size, composition, density, and organizational affiliations. Data on participants’ self-rated health and social support functions and health-related discussions among network members were also collected.ResultsParticipants’ age ranged from 44 to 84 (average 59 years), and 57% were men. South Asians had large (size=5.6, SD=2.6), kin-centered (proportion kin=0.71, SD=0.28), and dense networks. Affiliation with religious and spiritual organizations was perceived as beneficial to health. Emotional closeness with network members was positively associated with participants’ self-rated health (p-value <0.001), and networks with higher density and more kin were significantly associated with health-related discussions.DiscussionThe MASALA networks study advances research on the cultural patterning of social relationships and sources of social support in South Asians living in the U.S. Future analyses will examine how personal social networks and organizational affiliations influence South Asians’ health behaviors and outcomes.Trial registrationClinicalTrials.gov identifier: NCT02268513Electronic supplementary materialThe online version of this article (10.1186/s12889-018-5128-z) contains supplementary material, which is available to authorized users.

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Section: Discussionsupporting

confidence: 84%

Personal social networks and organizational affiliation of South Asians in the United States

et al. 2018

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“…Often, caregivers used to ignore their own physical health and struggled with normal life due to the demands of their role as caregivers (Chattoo and Ahmad, 2008; Shanmugasundaram, 2015; Somerville, 2001). Religious beliefs were found to be a common coping resource used by family caregivers (Khosla et al, 2017; Kristiansen et al, 2014; Somerville, 2001).…”

Section: Resultsmentioning

confidence: 99%

Palliative care for older South Asian migrants: A systematic review

et al. 2019

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AbstractObjectiveSouth Asian migrants have a higher burden of life-threatening diseases and chronic diseases compared to other ethnic groups. Yet, knowledge gaps remain around their palliative care needs in the host countries. The aim of the review was to present results from a systematic literature review of available international evidence on experiences with and perspectives on palliative care among older South Asian migrants, relatives, and healthcare providers.MethodsA systematic review in accordance with PRISMA guidelines was conducted in February 2018, searching PubMed, CINAHL, PsychINFO, and EMBASE databases. PROSPERO #CRD42018093464. Studies included empirical research, providing international evidence on experiences and perspectives on palliative care of South Asian migrants and were published between 2000 and 2018. Thematic synthesis was used to analyze data.ResultsA total of 30 articles were included: qualitative (24), quantitative (5), and mixed methods (1). Three main themes were discovered: 1) palliative care practice within the family, 2) trust as a precondition of palliative care, and 3) the importance of knowledge and cultural competency. All the themes, to a greater or lesser extent, are related to access to and use of palliative care services by South Asian migrant families.Significance of resultsInvolvement of family members in palliative care decision making could improve the satisfaction of South Asian migrant families toward the service. For example, Advanced Care Planning involving family members could be a possible way to engage family members in palliative care decision making. Supportive interventions, e.g. providing knowledge, aimed at patients and their family members might improve knowledge and increase awareness among South Asian migrant families of palliative care. Knowledge gained from this review could be implemented with other ethnic minority groups.

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“…Indirect communication approaches also have been found to be the preferred EOL care discussion strategy among various ethnic groups, such as Southeast Asians. 13,24,25 In a systematic review of indirect patient communication about EOL, the authors found that this approach was a "gentle way of 'pushing at the door' of the topics-which some patients take up and some deflect." 26 Building advance care planning inquiry into the check-in procedures builds indirect communication into health-care systems.…”

Section: Discussionmentioning

confidence: 99%

Please Ask Gently: Using Culturally Targeted Communication Strategies to Initiate End-of-Life Care Discussions With Older Chinese Americans

Chi

Cataldo

et al. 2018

Am J Hosp Palliat Care

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Assessing readiness should be an essential and necessary action for early EOL care discussions. Culturally targeted assessment of older Chinese Americans includes using indirect communication approaches to initiate an EOL care discussion to determine their readiness. In addition to health-care system integration, providers should implement and evaluate proposed EOL discussion initiation prompts with their older Chinese American patients.

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Communication Challenges and Strategies of U.S. Health Professionals Caring for Seriously Ill South Asian Patients and Their Families

Cited by 20 publications

References 21 publications

Personal social networks and organizational affiliation of South Asians in the United States

Personal social networks and organizational affiliation of South Asians in the United States

Palliative care for older South Asian migrants: A systematic review

Please Ask Gently: Using Culturally Targeted Communication Strategies to Initiate End-of-Life Care Discussions With Older Chinese Americans

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