Communication between patients and physicians about terminal care: A survey in Japan

Kai, Ichiro; Ohi, Gen; Yano, Eiji; Kobayashi, Yasuki; Miyama, Takeshi; Niino, Naoakira; Naka, Koh-Ichi

doi:10.1016/0277-9536(93)90235-v

Cited by 94 publications

(54 citation statements)

References 29 publications

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“…31 Many patients and caregivers want information about the likely illness trajectory, treatment options and what they may accomplish, life expectancy, likely future symptoms, and what to expect around the time of death. 8,25,60,61,88,[90][91][92][93] However, patients may experience conflict between wanting to know and fearing bad news. 61 Although most patients have high information needs, the different types of prognostic and end-of-life information may be preferred over a series of consultations or at different times, depending on the context and the patient' s stage of illness.…”

Section: Clin Ical Practice Guid Elinesmentioning

confidence: 99%

Life expectancy discussions in a multisite sample of Australian medical oncology outpatients

Zucca

Sanson‐Fisher

Waller

et al. 2015

Medical Journal of Australia

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Objectives: The study examined: 1) the proportion of patients who received their preferred level of information about life expectancy; and 2) sociodemographic, clinical and psychological factors associated with patients' perceptions of whether they received too little, too much, or the right amount of information about life expectancy. Design: Cross‐sectional survey. Setting: Eleven large Australian medical oncology treatment centres. Participants: A total of 1431 medical oncology outpatients participated (81% consent rate). Eligible patients were approached between September 2012 and May 2014. Main outcome measures: Patients indicated whether the information about life expectancy they received aligned with their preferences. Results: Almost one in four patients (24%) received too little information, 4% received too much, and 50% received all the information they wanted; 22% of patients neither wanted nor received information about life expectancy. Patients were more likely to receive too little information if they were not in remission (odds ratio [OR], 1.77), did not know their cancer stage at diagnosis (OR, 3.64), or were anxious (OR, 1.48) or depressed (OR, 1.48). Patients had greater odds of receiving too much information if they were younger (OR, 1.45), had more advanced cancer (OR, 2.01) or did not know their cancer stage at diagnosis (OR, 4.42). Conclusions: That fact that 28% of cancer patients did not receive their desired level of information about life expectancy highlights the difficulties associated with discussing this sensitive topic. To ensure that life expectancy discussions correspond with patient preferences, clinicians should routinely ask patients whether they want to know this information, in what format, and at which level of detail.

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Section: Clin Ical Practice Guid Elinesmentioning

confidence: 99%

Life expectancy discussions in a multisite sample of Australian medical oncology outpatients

Zucca

Sanson‐Fisher

Waller

et al. 2015

Medical Journal of Australia

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“…Previous studies showed that over half of advanced cancer patients prefer to stay at home and die there [1, 5,6,18,27]. Moreover, some claimed that home-based services are cheaper than and as effective as hospital services [2,[12][13][14].…”

Section: Introductionmentioning

confidence: 98%

Factors that influence physicians in providing palliative care in rural communities in Taiwan

Liu

Chiu³

et al. 2005

Support Care Cancer

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“…This includes 64% of interviewees in Italy [1], 53-67% in England [2][3][4], 89% in Israel [5], 70% in Japan [6], and 84% in Taiwan [7]. Over the past century, however, dying has become increasingly institutionalized.…”

Section: Introductionmentioning

confidence: 99%

Factors influencing preferences for place of terminal care and of death among cancer patients and their families in Korea

Choi

Chae

Lee

et al. 2005

Support Care Cancer

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Communication between patients and physicians about terminal care: A survey in Japan

Cited by 94 publications

References 29 publications

Life expectancy discussions in a multisite sample of Australian medical oncology outpatients

Life expectancy discussions in a multisite sample of Australian medical oncology outpatients

Factors that influence physicians in providing palliative care in rural communities in Taiwan

Factors influencing preferences for place of terminal care and of death among cancer patients and their families in Korea

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