Communication Behaviors and Patient and Caregiver Emotional Concerns: A Description of Home Hospice Communication

Clayton, Margaret F.; Reblin, Maija; Carlisle, McKenzie; Ellington, Lee

doi:10.1188/14.onf.311-321

Cited by 27 publications

(29 citation statements)

References 67 publications

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“…When cancer patients are told that their disease is terminal and referral to HPC is necessary, they develop an array of more complex emotional states (Kubler-Ross, Wessler, & Avioli, 1972;Yun et al, 2010). Patients and caregivers often express concerns regarding psychological and physical issues, and frequently talk about causes of distress (Clayton, Reblin, Carlisle, & Ellington, 2014 (Chochinov et al, 2009). Patients and caregivers often express concerns regarding psychological and physical issues, and frequently talk about causes of distress (Clayton, Reblin, Carlisle, & Ellington, 2014 (Chochinov et al, 2009).…”

Section: Discussionmentioning

confidence: 99%

“…In particular, there can be a wide range of feelings that may include sadness and depression, grief, denial, anger, stress, fear and worry, guilt and regret, and loneliness (Yun et al, 2010). Patients and caregivers often express concerns regarding psychological and physical issues, and frequently talk about causes of distress (Clayton, Reblin, Carlisle, & Ellington, 2014 The present study indicated that 22 days or more of HPC for a terminal cancer patient can lead to improved existential well-being, better preparation for death and a better sense of control over the future. Patients affected by cancer encounter spiritual distress at the EOL (Chochinov et al, 2009).…”

Section: Discussionmentioning

confidence: 99%

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Effect of the duration of hospice and palliative care on the quality of dying and death in patients with terminal cancer: A nationwide multicentre study

et al. 2017

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Early referral to hospice and palliative care (HPC) has significant benefits, but little is known about the appropriate time for referral. The purpose of this study of terminal cancer patients was to identify the most appropriate time for referral to HPC. Cross-sectional correlation study design was used. Participants were the bereaved relatives, who were the adult primary caregivers of the 1,829 terminal cancer patients who died 2-6 months previously in nationwide centres that provide HPC in Korea. A post-bereavement survey (Good Death Inventory, GDI) of family caregivers was used to assess patients' quality of dying and death. Relative to patients who were in HPC for 3-7 days and HPC for 8-21 days, those in HPC for 22-84 days had significantly higher quality of dying. Propensity score matched comparison between the group hospitalised for 22-84 days (n = 65) and the group hospitalised for 85 days or longer (n = 65) showed no significant differences in all the items on quality of dying and death. Our results suggest that terminal cancer patients who stay in HPC at least for 22 days have improved quality of dying and death.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Effect of the duration of hospice and palliative care on the quality of dying and death in patients with terminal cancer: A nationwide multicentre study

et al. 2017

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“…Research is also needed to examine the family dynamics; their impact on the communication among patients, family members, and providers; and the benefits, challenges, and strategies to facilitate family involvement to enhance healthcare outcomes. Finally, this study focused on the communication behaviors of patients and family members, which may have simplified the interpersonal process in which providers played an extremely important role in eliciting patient and family concerns [49]. Future research is needed to explore the complexity of the communication interactions during treatment consultation visits.…”

Section: Discussionmentioning

confidence: 99%

Patient and family communication during consultation visits: The effects of a decision aid for treatment decision-making for localized prostate cancer

Song

Christina

Clayton

et al. 2017

Patient Education and Counseling

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Objective To analyze the effects of a decision aid on improving patients’ and family members’ information giving and question asking during consultations for prostate cancer treatment decision-making. Methods This study is a secondary analysis of archived audio-recorded real-time consultation visits with participants from a randomized clinical trial. Participants were randomly assigned into three groups: TD—intervention targeted patient-only; TS—intervention targeted patients and family members; and control—a handout on staying healthy during treatment. We conducted content analysis using a researcher-developed communication coding system. Using SAS 9.3, we conducted Chi-square/Fisher’s exact test to examine whether information giving and question asking among patients and family members varied by groups when discussing different content/topics. Results Compared with those in the TS and control groups, significantly higher percentages of participants in the TD group demonstrated information giving in discussing topics about diagnosis, treatment options, risks and benefits, and preferences; and engaged in question asking when discussing diagnosis, watchful waiting/active surveillance, risks and benefits, and preferences for treatment impacts. Conclusion Information support and communication skills training for patients were effective in improving communication during treatment decision-making consultations. Practice implications Providing information about prostate cancer and communication skills training empower patients and their family members.

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“…In this issue of Oncology Nursing Forum, Clayton, Reblin, Carlisle, and Ellington (2014) used the Roter Interaction Analysis System (RIAS) to identify and describe communication behaviors used by hospice nurses when eliciting and addressing patient and caregiver concerns. The RIAS is a coding system that does not transcribe recordings, but performs coding by listening and applying codes for each utterance or thought expressed by a single person, both negative and positive.…”

Section: Applicationmentioning

confidence: 99%

Computer-Assisted Qualitative Data Analysis Software

Cope¹

2014

Oncology Nursing Forum

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Advances in technology have provided new approaches for data collection methods and analysis for researchers. Data collection is no longer limited to paper-and-pencil format, and numerous methods are now available through Internet and electronic resources. With these techniques, researchers are not burdened with entering data manually and data analysis is facilitated by software programs. Quantitative research is supported by the use of computer software and provides ease in the management of large data sets and rapid analysis of numeric statistical methods. New technologies are emerging to support qualitative research with the availability of computer-assisted qualitative data analysis software (CAQDAS).CAQDAS will be presented with a discussion of advantages, limitations, controversial issues, and recommendations for this type of software use.

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Communication Behaviors and Patient and Caregiver Emotional Concerns: A Description of Home Hospice Communication

Abstract: Home hospice provides a venue to examine nurse communication behaviors used to elicit and respond to patient and caregiver distress. These strategies could be taught to nurses who encounter patient distress less frequently or are less comfortable with emotional conversations.

Cited by 27 publications

References 67 publications

Effect of the duration of hospice and palliative care on the quality of dying and death in patients with terminal cancer: A nationwide multicentre study

Effect of the duration of hospice and palliative care on the quality of dying and death in patients with terminal cancer: A nationwide multicentre study

Patient and family communication during consultation visits: The effects of a decision aid for treatment decision-making for localized prostate cancer

Computer-Assisted Qualitative Data Analysis Software

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