Comfort in the last 2 weeks of life: relationship to accessing palliative care services

Currow, David C.; Ward, Alicia; Plummer, John L.; Bruera, Éduardo; Abernethy, Amy P.

doi:10.1007/s00520-008-0424-2

Cited by 33 publications

(23 citation statements)

References 41 publications

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“…The full survey methodology has been detailed elsewhere. 14,17 Previously, we verified the content and construct validity supporting the use of this survey tool in palliative care service planning 14,16 and in assessing the impact of palliative care services on caregiver needs. 15 Setting and subjects A total of 22,700 households across 5 years were selected for the survey, which was conducted annually during September to November in 2001 to 2005.…”

Section: Methodsmentioning

confidence: 99%

Defining distinct caregiver subpopulations by intensity of end-of-life care provided

et al. 2008

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Interventions designed to assist informal caregivers who serve individuals at or near the end of life have predominantly focused on caregiving spouses. Can we define other caregiver subpopulations--by intensity of care provided--so as to enable better a) identification of caregiver needs and b) targeting of support to caregivers? The Health Omnibus Survey, an annual face-to-face survey in South Australia, collects health-related data from a representative sample of 4400 households. Piloted questions included in the 2001-2005 Health Omnibus surveys addressed death of a loved one, caregiving provided, impact of caregiving and caregiver characteristics. Of 18,224 respondents, 5302 reported a loved one's death due to terminal illness in the previous 5 years. In all, 502 (10%) provided daily care [5-7 days/week], 619 (12%) provided intermittent care [2-4 days/week] and 425 (8%) provided rare care. Active (daily plus intermittent) caregivers, compared with non-active (rare) caregivers, were more often women (63% vs 50%; P < 0.0001). Daily caregivers were distinguishable from intermittent; daily caregivers were more often widowed (95% vs 7%; P < 0.0001) and >or=60 years (80% vs 64%; P < 0.0001); intermittent caregivers were more commonly children/parents (35%), other relatives (33%), or friends (26%; P < 0.0001) and were better educated, more active in paid work and wealthier. Financial burden, experience at time of death, ability to move on after the death and need for grief support also differed by intensity of caregiving. Caregiver subpopulations can be defined according to intensity of caregiving with distinct demographic features helping to distinguish them.

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Section: Methodsmentioning

confidence: 99%

Defining distinct caregiver subpopulations by intensity of end-of-life care provided

et al. 2008

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“…One response is to fingerwaggle, and to invoke the Sixth Commandment: "Thou Shalt Not Kill". On the other hand, another important line of research seeks to inquire whether the uptake of specialized palliative care services is associated with perceptions that the patient enjoyed higher levels of comfort and symptom control (Currow et al 2008), as well as improved caregiver outcomes (Abernethy et al 2007).…”

Section: Pain Symptom Relief and Palliative Sedationmentioning

confidence: 99%

The Traditional Account of Ethics and Law at the End of Life—and its Discontents

Magnusson

2009

Bioethical Inquiry

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“…Ursache der Luftnot bzw. der Atemwegsproblematik wohl durchdacht werden [30,35]. Die notfallmedizinische Therapie der Luftnot bei Palliativpatienten unterscheidet sich außer-dem insofern, als dass das Therapieziel des Patienten und seiner Angehörigen oftmals ein anderes ist als das bei "normalen" Notfallpatienten.…”

Section: Symptomkontrollierende Therapien Ohne Kurativen Ansatzunclassified

Präklinische palliative Notfälle - Besonderheiten bei der therapeutischen Entscheidung

Wiese¹,

Ittner²,

Graf³

et al. 2012

Palliativmedizin

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Comfort in the last 2 weeks of life: relationship to accessing palliative care services

Cited by 33 publications

References 41 publications

Defining distinct caregiver subpopulations by intensity of end-of-life care provided

Defining distinct caregiver subpopulations by intensity of end-of-life care provided

The Traditional Account of Ethics and Law at the End of Life—and its Discontents

Präklinische palliative Notfälle - Besonderheiten bei der therapeutischen Entscheidung

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