Collective Sensemaking in Online Health Forums

Abstract

Online health communities collect vast amounts of information and opinions in regards to health and wellness management. However, these opinions are usually stored within lengthy and loosely structured discussion threads; synthesizing information in these threads can be challenging. In this mixed-methods study, grounded in the theoretical perspective of collective sensemaking, we examined patterns of communication within an online diabetes community TuDiabetes. The results of the study suggest that members of TuDiabetes often construct shared meaning through deep discussions, back and forth negotiation of perspectives, and resolution of conflicts in opinions. However, unlike participants of other sensemaking communities, members of TuDiabetes often value multiplicity of opinions rather than consensus. We use study results to draw implications for the design of computing platforms for facilitating collective sensemaking that promote construction of shared knowledge yet embrace diversity of opinions.

Recovery Amid Pro-Anorexia

“…One study suggests that 30% of U.S. Internet users have participated in medical or health-related groups [31]. Besides support, these communities serve a range of purposes that include seeking advice [31], connecting with experts and individuals with similar experiences [14, 58, 22], sharing concerns around treatment options [14], sensemaking [42] and understanding professional diagnoses [53], enabling better management of chronic health conditions [43, 29, 30], and fueling discussions with healthcare providers [14]. In this light, approaches to community building have been proposed [20, 66], and the role of participation in such communities toward promoting ailment recovery and coping has been examined in a number of different domains, such as cancer and diabetes [58, 28, 41].…”

Technology for Self-Management of Rosacea

“…We found three active, webbased community forums and support groups on which rosacea sufferers can read articles on rosacea, follow the latest research news and new treatment methods developed, as well as discuss issues with fellow sufferers. The forums have similar features to those discussed by [13,25] and likely play an important role in social support. We also found seven information sites, created by health providers, pharmaceutical companies, and support organisations.…”

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“…Additionally, these communities serve a range of purposes, including seeking advice [29], connecting with experts and individuals with similar experiences [21, 27], sharing questions and concerns around treatment options [21], sensemaking [33] and understanding professional diagnoses [27], enabling better management of chronic health conditions [34], and fueling discussions with healthcare providers [21]. …”