Collecting patients’ views and perceptions of continence services: the development of research instruments

Clayton, Jane; Smith, Kirsteen; Qureshi, Hazel; Ferguson, Brian

doi:10.1046/j.1365-2648.1998.00689.x

Cited by 8 publications

(3 citation statements)

References 6 publications

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“…Historically, treatment outcomes for patients with urinary incontinence, pelvic organ prolapse, and anal incontinence have been defined in procedural, diagnostic, or symptom-based terms. More recently, efforts have focused on treatment dependant patient satisfaction, quality of life (QOL), and goal attainment (2)(3)(4)(5)(6)(7)(8)(9)(10)(11)(12).…”

Section: Introductionmentioning

confidence: 99%

Surgical Versus Nonsurgical Treatment of Women With Pelvic Floor Dysfunction: Patient Centered Goals at 1 Year

et al. 2008

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Objective-In women with pelvic floor dysfunction (PFD), we assessed the degree to which treatment (surgical vs. non-surgical) was associated with achievement of patient-centered goals, satisfaction with care, and quality of life. Study design-Prospective cohort. Between September 2003 and December 2004we recruited women during their first referral visit for PFD treatment at our outpatient Urogynecology Clinic. At the first visit, women enumerated up to five personal treatment goals, and "anchored" each goal by anticipating best and worst possible outcomes. At 12 month follow-up, women were asked to indicate their level of goal attainment (−2, worst outcome; +2, best outcome). At baseline and follow-up, women completed short forms of the Incontinence Impact Questionnaire (IIQ-7) and Urogenital Distress Inventory (UDI-6) (range 0-100, high scores indicating greater impact or distress). Patients indicated level of treatment satisfaction on a 4 level ordinal scale.Results-Of the 127 study participants with complete data, 46 (36.2 %) were managed surgically and 81 (63.8%) non surgically. There were no major demographic differences between the two groups in terms of age, race, weight, prior PFD surgery, and vaginal parity. The surgical group was more likely to have received baseline diagnosis of pelvic organ prolapse (80 % vs 60 %, p = 0.0259), and be post-menopausal (89 % vs 72 %, p = 0.0261). There were no significant differences in the distribution of goal type (symptom relief, activity, self image, general health) by treatment status (p = 0.1074). Using logistic regression to adjust for age and baseline diagnosis, surgically managed patients at one year were significantly more likely to report complete primary goal attainment (odds ratio (OR) = 4.42; p = 0.0154) and complete treatment satisfaction (OR = 6.12; p = 0.0109). For all participants, one-year IIQ-7 and UDI-6 scores were significantly correlated with primary goal attainment scores.Correspondence: Kathie L. Hullfish, MD, Associate Professor, Department OB/GYN and Urology, PO Box 800726, UVA Health System, Charlottesville, VA 22908, O: 434-924-2103, Fax: 434-982-1841, Email: khullfish@virginia.edu. Condensation: self-described patient treatment goals are similar in surgical and non-surgical patients with pelvic floor dysfunction, but are more likely to be completely achieved in the surgical group one year later Publisher's Disclaimer: This is a PDF file of an unedited manuscript that has been accepted for publication. As a service to our customers we are providing this early version of the manuscript. The manuscript will undergo copyediting, typesetting, and review of the resulting proof before it is published in its final citable form. Please note that during the production process errors may be discovered which could affect the content, and all legal disclaimers that apply to the journal pertain. Conclusions-In this non-randomized, prospective analysis, surgically managed patients with PFD had higher one-year self-described complete goal attainmen...

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Section: Introductionmentioning

confidence: 99%

Surgical Versus Nonsurgical Treatment of Women With Pelvic Floor Dysfunction: Patient Centered Goals at 1 Year

et al. 2008

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“…However, this study only focused on NHS costs and did not include costs borne by individuals. There have also been UK estimates published that focus on particular aspects of costs, such as equipment, pads and appliances [4,5] or the resources used by a sample of individuals [6,7].…”

Section: Introductionmentioning

confidence: 99%

The cost of clinically significant urinary storage symptoms for community dwelling adults in the UK

et al. 2004

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OBJECTIVES To estimate the cost of clinically significant urinary storage symptoms (CSUSS), including costs borne by the National Health Service (NHS) and individuals, in terms of the use of goods and services in community‐dwelling adults. SUBJECTS AND METHODS The subjects were community‐dwelling adults aged ≥ 40 years and living in Leicestershire. The prevalence of CSUSS was estimated using a postal questionnaire with a randomly selected sample of 23 182 respondents. The costs associated with CSUSS were estimated using home interviews with 613 cases with and 523 subjects without CSUSS. Cases were defined on the basis of urinary symptoms of leakage, urgency, frequency and nocturia. Willingness‐to‐pay was used to measure intangible costs as an indicator of the value of alleviating symptoms. RESULTS The estimated total annual cost to the NHS for treating CSUSS cases in community‐dwelling adults was £536 million at 1999/2000 prices (£303 million and £233 million for men and women, respectively). The total value of costs borne by individuals was estimated to be £207 million (£29 million and £178 million for men and women, respectively). This gives total annual costs related to the use of services of £743 million. There were large intangible costs borne by individuals estimated to be £669 million (£301 and £368 million for men and women) for the UK in terms of willingness‐to‐pay. CONCLUSIONS The costs of CSUSS in the community amounted to ≈ 1.1% of overall NHS spending for 1999/2000. Personally borne and intangible costs are also large and important components of the costs of CSUSS. There are large gender differences in the proportion of costs borne by the NHS, i.e. 91% of male and 57% of female costs.

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“…41,89 -92 This category has clearly overtaken and overlapped with self-care management. 93 It also has the widest variety of health problems represented, including, among others cancer, 94 dementia mapping, 95 dying, 96 continence care, 97 and HIV care. 98 Although the conferees noted that the Outcome Assessment Information Set (OASIS) was a good start for consistent functional status and health-related quality-of-life (HRQOL) measures that could be linked to organizational factors in home care, 99 the subsequent turmoil in the industry with mandatory introduction of OASIS and financing concerns appears to have derailed any realization of this potential.…”

Section: Further Development Of Indicator Categories and Methodologicmentioning

confidence: 99%

Framing the Problem of Measuring and Improving Healthcare Quality

Mitchell¹,

Lang²

2004

Medical Care

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This model and others like it are increasingly forming the conceptual framework for studies that evaluate quality and system interventions to improve care. However, the available data continue to require the linking of negative outcomes (adverse events, complications) to structural and process inputs that reflect nursing care. An urgent need remains to incorporate this broader range of outcomes into available databases.

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Collecting patients’ views and perceptions of continence services: the development of research instruments

Cited by 8 publications

References 6 publications

Surgical Versus Nonsurgical Treatment of Women With Pelvic Floor Dysfunction: Patient Centered Goals at 1 Year

Surgical Versus Nonsurgical Treatment of Women With Pelvic Floor Dysfunction: Patient Centered Goals at 1 Year

The cost of clinically significant urinary storage symptoms for community dwelling adults in the UK

Framing the Problem of Measuring and Improving Healthcare Quality

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