Keywords• care coordination • caregiver burden • dementia care models • stress According to the Alzheimer's Association, in 2014, caregivers of people with dementia provided an estimated 17.9 billion hours of informal (unpaid) assistance valued at more than US$217.7 billion [1]. The US Census Bureau expects the number of people age 65 years and older to double between 2010 and 2050 [2], and this is expected to dramatically increase the need for caregiving in coming decades. More than one in three caregivers of dementia patients are over age 65 years [1]. Caregiver stress is an under-recognized and undertreated health risk that can lead to poor outcomes for both caregivers and patients with dementia, including higher rates of morbidity and mortality. As we plan for the needs of an aging population with high prevalence of dementia, models of care must include caregivers. We describe our center's approach to this issue in the context of the health risks assumed by caregivers.
Health effects of caregiver stressStress leads to a variety of physiological and psychological responses. Depending on the nature of the stressor [3], the degree of stress [4] and other factors related to the person experiencing the stress, the stressor and the environment, the effects of stress can vary greatly. Acute stress may promote increased vigilance and other appropriate behavioral changes. With chronic exposure to an unresolved stressor or repeat exposure to stressors of sufficient magnitude, responses and adaptations to stress fail and individuals suffer negative resultant consequences [5]. Compared with caregivers of people with nondementing illnesses, caregivers of people with dementia may be less able to cope with increased stressors as they have twice the rates of substantial financial, emotional and physical difficulties associated with caregiving [6].Many studies have shown widespread, direct, deleterious health consequences of caregiver stress. For instance, caregivers have compromised immune function compared with noncaregivers [7]. They have elevated markers of cardiovascular disease and impaired kidney function [8,9].