Collaboration, user involvement and education: a systematic review of the literature and report of an educational initiative

“User Involvement Is a Sine Qua Non, Almost, in Medical Education”: Learning with Rather than Just About Health and Social Care Service Users

“…Participants employed a multiplicity of words for 'service user' including 'patient', 'consumer', 'client' and even 'customer', reflecting much of the diversity of terms found in the literature (Bennett and Baikie, 2003;Langton et al, 2003). Interestingly, in our study it was the service users who employed a greater variety of terms to describe themselves compared to medical students and educators, who commonly referred to service users as 'patients', thus medicalising the care relationship.…”

“…synonymously when employing others' words. As stated by Langton et al (2003), there is much confusion in the literature about appropriate terminology and as can be seen in the results of this current study, there is a lack of consensus regarding preferred terminology. 2 We borrow the concept (and terminology) of learning 'with' rather than just 'about' from the mental health nurse education literature (e.g.…”

Characterising the nature of primary care patient safety incident reports in the England and Wales National Reporting and Learning System: a mixed-methods agenda-setting study for general practice

“…Involvement of patients in training HCPs, to improve management of the vulnerable, has been associated with improvements in patient satisfaction, with no clear detrimental effects. 115,116 Cross-linking electronic guidelines for the management of related disorders, and to aid recognition of red flags to minimise diagnostic overshadowing, is a further proposal for practice-level improvement to mitigate human error.…”

Active patient involvement in the education of health professionals

“…Whereas ‘service user’ is the favoured term in the UK, it is not common in North America, where the term ‘user’ is associated with illicit drug use. Patients disagree about the labels with which they prefer to describe themselves 3,4 and their preferences may change during the trajectory of illness. The terms ‘user involvement’, ‘consumer/lay participation’ or ‘partnership’ and ‘patient participation’ are used interchangeably 4 .…”

“…Patients disagree about the labels with which they prefer to describe themselves 3,4 and their preferences may change during the trajectory of illness. The terms ‘user involvement’, ‘consumer/lay participation’ or ‘partnership’ and ‘patient participation’ are used interchangeably 4 . Besides the confusion of terms used to describe the patient as teacher, educator, instructor, mentor or partner, the actual meaning of these terms is inconsistent and sometimes ill defined.…”