Cohort study of informal carers of first-time stroke survivors: Profile of health and social changes in the first year of caregiving

Simon, Chantal; Kumar, Satinder; Kendrick, Tony

doi:10.1016/j.socscimed.2009.04.007

Cited by 45 publications

(37 citation statements)

References 27 publications

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“…A qualitative study of caregivers of stroke survivors found caregiver distress to begin soon after the initiation of caregiving and to last for more than a year after the stroke. In addition, they found caregivers to report psychological distress 2.5 times more than non-caregivers (Simon, Kumar, & Kendrick, 2009). Stress is more often studied and reported on for caregivers than for stroke survivors.…”

Section: Introductionmentioning

confidence: 99%

The longitudinal and dyadic effects of mutuality on perceived stress for stroke survivors and their spousal caregivers

Godwin

Swank

Vaeth

et al. 2013

Aging & Mental Health

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Objective Functional impairment resulting from a stroke frequently requires the care of a family caregiver, often the spouse. This change in the relationship can be stressful for the couple. Thus, this study examined the longitudinal, dyadic relationship between caregivers’ and stroke survivors’ mutuality and caregivers’ and stroke survivors’ perceived stress. Method This secondary data analysis of 159 stroke survivors and their spousal caregivers utilized a cross-lagged, mixed models analysis with the Actor-Partner Interdependence Model (APIM) to examine the dyadic relationship between mutuality and perceived stress over the first year post discharge from inpatient rehabilitation. Results Caregivers’ mutuality showed an actor effect (β = −3.82, p < .0001) but not a partner effect. Thus, caregivers’ mutuality influenced one’s own perceived stress but not the stroke survivors’ perceived stress. Stroke survivors’ perceived stress showed a partner effect and affected caregivers’ perceived stress (β=.13, p=.047). Caregivers’ perceived stress did not show a partner effect and did not significantly affect stroke survivors’ perceived stress. Conclusion These findings highlight the interpersonal nature of stress in the context of caregiving for a spouse. Caregivers are especially influenced by perceived stress in the spousal relationship. Couples should be encouraged to focus on positive aspects of the caregiving relationship to mitigate stress.

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Section: Introductionmentioning

confidence: 99%

The longitudinal and dyadic effects of mutuality on perceived stress for stroke survivors and their spousal caregivers

Godwin

Swank

Vaeth

et al. 2013

Aging & Mental Health

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“…Caregivers of stroke survivors experience an increase in their physical demands [10] along with a decrease in health-related quality of life [11,12]. Furthermore, caregivers have a 2.5 times greater risk of experiencing psychological distress [13,14], with as many as 50% of chronic stroke patients reporting long-term symptoms of depression [15,16]. The impact of stroke on stroke survivors and their families is a critical topic in stroke management [17], whose impact over the long term is well recognized [18], but often underestimated.…”

Section: Abstract: Acute Care • Prevention • Rehabilitation • Strokementioning

confidence: 99%

The next revolution in stroke care

Teasell

Rice

Richardson

et al. 2014

Expert Review of Neurotherapeutics

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Stroke is the second leading cause of death and disability worldwide. Initiatives to decrease the burden of stroke have largely focused on prevention and acute care strategies. Despite considerable resources and attention, the focus on prevention and acute care has not been successful in changing the clinical trajectory for the majority of stroke patients. While efforts to prevent strokes will continue to have an impact, the total burden of stroke will increase due to the aging population and decreased mortality rates. There is strong evidence for the effectiveness of rehabilitation in better managing stroke and its related disabilities. The time has come to shift the attention in stroke care and research from prevention and cure to a greater focus and investment in the rehabilitation and quality of life of stroke survivors. The rebalancing of stroke care and research initiatives requires a reinvestment in rehabilitation and community reintegration of stroke survivors.

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“…A plethora of empirical studies showed that informal care is a major component of societal costs in many chronic conditions such as stroke, multiple sclerosis, mental diseases (Anderson, 1988;Andersson et al, 2003;Clark et al, 2001;Hickenbottom et al, 2002;Kerr and Smith, 2001;Lanska, 2002;Nordberg et al, 2005;Wimo et al, 2002). Contributions from other disciplines investigated physical and psychological health, and social wellbeing of caregivers (Jaracz et al, 2012;Simon et al, 2009;van Campen et al, 2012).…”

Section: Introductionmentioning

confidence: 99%

Does informal care impact utilization of healthcare services? Evidence from a longitudinal study of stroke patients

Torbica

Calciolari

Fattore

2015

Social Science & Medicine

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Cohort study of informal carers of first-time stroke survivors: Profile of health and social changes in the first year of caregiving

Cited by 45 publications

References 27 publications

The longitudinal and dyadic effects of mutuality on perceived stress for stroke survivors and their spousal caregivers

The longitudinal and dyadic effects of mutuality on perceived stress for stroke survivors and their spousal caregivers

The next revolution in stroke care

Does informal care impact utilization of healthcare services? Evidence from a longitudinal study of stroke patients

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