Cohort Profile: The Swiss Childhood Cancer Survivor Study

Abstract

The names of the members of the SPOG are provided in the Acknowledgements section. Who is in the sample? The Swiss Childhood Cancer Survivor Study is closely linked with the Swiss Childhood Cancer Registry (SCCR; www.childhoodcancerregistry.ch), including all children registered in the SCCR who survived 55 years.

Privacy‐preserving record linkage

“…Since strings encoded in binary vectors are a flexible data structure for PPRL string similarity computations, several modifications of the basic idea have been suggested (see section 7). Bloom filter-based record linkage has been used in real-world medical applications, such as in Brazil (Napoleão Rocha 2013), Germany (Schnell 2014) and Switzerland (Kuehni et al 2011). The largest application so far has been an Australian study (Randall et al 2014).…”

Fertility Among Female Survivors of Childhood, Adolescent, and Young Adult Cancer: Protocol for Two Pan-European Studies (PanCareLIFE) (Preprint)

“…These institutions, referred to as data providers (DPs), provide data from 16 different institutional cohorts in total. Some of these DPs have previously collected their data, as part of a local fertility study [3,8,[17][18][19][20][21], while other DPs collect their data specifically during the PanCareLIFE project. All survivors included in the PanCareLIFE female fertility cohort study are treated between 1963 and 2014.…”

Le registre suisse du cancer de l'enfant: expériences comme Registre national du cancer

“…Les données de base sur la maladie et son traite ment par rapport sont fournies peu après le diagnos [7]. Protection des données: à l'instar des registres can tonaux, le RSCE possède une autorisation générale pour les Registres, donnée par la Commission fédé rale d'experts du secret professionnel en matière de recherche médicale [2].…”