Cohort Profile of the International Spinal Cord Injury Community Survey Implemented in 22 Countries

Fekete, Christine; Brach, Mirjam; Ehrmann, Cristina; Post, Marcel W M; Middleton, James; Battistella, Linamara Rizzo; Li, Jianan; Perrouin-Verbe, B.; Gütenbrunner, Christoph; Rapidi, Christina-Anastasia; Wahyuni, Luh Karunia; Zampolini, Mauro; Saitoh, Eiichi; Lee, Bum Suk; Juocevičius, Alvydas; Hasnan, Nazirah; Hajjıouı, Abderrazak; Stanghelle, Johan Kvalvik; Tederko, Piotr; Popa, Daiana; Joseph, Conran; Avellanet, M.; Baumberger, Michael; Kovindha, Apichana; Escorpizo, Reuben; Stucki, Gerold

doi:10.1016/j.apmr.2020.01.022

Cited by 54 publications

(80 citation statements)

References 9 publications

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“…InSCI is a multinational community survey based on the International Classification of Functioning, Disability and Health Core Sets for SCI and involves 22 countries from all six WHO regions [6]. First results in international comparison showed that the successful implementation of the InSCI survey enables to compare the lived experience of persons with SCI across the globe [7]. GerSCI was implemented from March until December 2017 for people with SCI treated at eight of 27 specialised SCI rehabilitation centres.…”

Section: Methodsmentioning

confidence: 99%

Promoting factors and barriers to participation in working life for people with spinal cord injury

Sturm

Bökel

Korallus

et al. 2020

J Occup Med Toxicol

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Background It is still difficult for people with physical impairments to be and remain equally integrated into the labour market. For this reason, the question of occupational activity has explicitly been examined by the German Spinal Cord Injury Survey (GerSCI) in order to identify barriers and facilitators for labour market participation. Methods Cross-sectional explorative observational study. The GerSCI survey is the German part of the International Spinal Cord Injury Survey (InSCI). Using survey data from persons recruited at eight specialised SCI-centres in Germany. Participants: 1.479 persons with Spinal Cord Injury (SCI) aged 18 years and older. Results In a self-disclosure questionnaire, persons with SCI show themselves as a professionally well-educated and highly motivated group with most of them aiming at gainful employment and considering themselves fit for work. Many changeable and non-changeable factors have been found, which showed a high correlation with the return to work after acquired SCI. Conclusion Education and pain belong to the most critical factors and thereby possible approaches to increase the level of employment, which is essential and highly relevant not only for earning money but also for self-confidence and social integration. SCI has many dimensions in itself; support also should be multidimensional. Study results might help to improve participation.

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Section: Methodsmentioning

confidence: 99%

Promoting factors and barriers to participation in working life for people with spinal cord injury

Sturm

Bökel

Korallus

et al. 2020

J Occup Med Toxicol

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“…Each participant provided informed consent in accordance with national regulations. Further information on the rationale, methodology, recruitment outcomes, and basic sample characteristics of the InSCI community survey are reported elsewhere [21][22][23].…”

Section: Designmentioning

confidence: 99%

Are Social Relationships an Underestimated Resource for Mental Health in Persons Experiencing Physical Disability? Observational Evidence From 22 Countries

Fekete

Tough

Arora

et al. 2021

Int J Public Health

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Objectives: As advancing evidence on modifiable resources to support mental health in persons experiencing physical disabilities is of particular importance, we investigate whether structural and functional social relationships relate to mental health in people with spinal cord injury (SCI).Methods: Data from 12,330 participants of the International SCI community survey (InSCI) from 22 countries were analyzed. Structural (partnership status, living situation) and functional aspects of social relationships (belongingness, relationship satisfaction, problems with social interactions) were regressed on the SF-36 mental health index (MHI-5), stratified by countries and for the total sample using multilevel models.Results: Functional aspects of social relationships were consistently related to clinically relevant higher MHI-5 scores and lower risk of mental health disorders (MHI-5 >56). Structural social relationships were inconsistently associated with mental health in our sample.Conclusion: This study provides evidence that functional aspects of social relationships are important resources for mental health. Interventions to establish and maintain high quality relationships should be considered in public health interventions and rehabilitation programs to reduce long-term mental health problems in persons experiencing physical disabilities.

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“…The contact rate was 33.5%, the cooperation rate (those who could be contacted and consented to participate) was 68.3% and the gross response rate was 22.1 ( percentage of those surveyed from all attempted to contact). 26 The interviewers in this study were all postgraduates from universities with majors in Rehabilitation, Nursing, or Public Health. Before the start of the survey, the interviewers participated in unified training sessions, which required them to master background, purpose and significance of this study, as well as matters needing attention during interviews, such as avoiding leading questions.…”

Section: Procedures and Participantsmentioning

confidence: 99%

Environmental barriers and participation restrictions in community-dwelling individuals with spinal cord injury in Jiangsu and Sichuan Provinces of China: Results from a cross-sectional survey

Yang

Gong

Reinhardt

et al. 2021

The Journal of Spinal Cord Medicine

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Cohort Profile of the International Spinal Cord Injury Community Survey Implemented in 22 Countries

Cited by 54 publications

References 9 publications

Promoting factors and barriers to participation in working life for people with spinal cord injury

Promoting factors and barriers to participation in working life for people with spinal cord injury

Are Social Relationships an Underestimated Resource for Mental Health in Persons Experiencing Physical Disability? Observational Evidence From 22 Countries

Environmental barriers and participation restrictions in community-dwelling individuals with spinal cord injury in Jiangsu and Sichuan Provinces of China: Results from a cross-sectional survey

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