Cognitive Mechanisms in Adolescent and Young Adult Cancer Patients and Survivors: Feasibility and Preliminary Insights from the Cognitions and Affect in Cancer Resiliency Study

Košir, Urška; Wiedemann, Milan; Wild, Jennifer; Bowes, Lucy

doi:10.1089/jayao.2019.0127

Cited by 7 publications

(8 citation statements)

References 22 publications

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“…As previously reported (Kosir et al., 2019a; Wang et al., 2015), cancer‐related worries remain highly prevalent among the AYAs, with 85% worrying about at least one aspect of their cancer illness. Interestingly, even though worry has been identified as a predictor of anxiety and even depression (Muris, Roelofs, Rassin, Franken, & Mayer, 2005; Segerstrom, Tsao, Alden, & Craske, 2000), the association between cancer‐related worry and symptoms of anxiety and depression in our study remains weak.…”

Section: Discussionsupporting

confidence: 60%

“…As previously reported (Kosir et al, 2019a;Wang et al, 2015), cancer-related worries remain highly prevalent among the AYAs, with 85% worrying about at least one aspect of their cancer illness.…”

Section: Discussionsupporting

confidence: 55%

“…Mental defeat, which has been proposed as a potential cognitive mechanism contributing to psychological distress in a pilot phase of this study (Kosir, Wiedemann, Wild, & Bowes, 2019a), shows strong association with both anxiety and depression; however, due to the cross‐sectional nature we did not assess the causal mechanisms.…”

Section: Discussionmentioning

confidence: 97%

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Mapping the needs and psychological outcomes of Slovenian adolescent and young adult cancer patients: An exploratory mixed‐method study

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creasing survival rates, there remain large discrepancies in outcomes between countries across Europe (Allemani et al., 2018). As the number of cancer survivors increases, so does the need to attend to the patients' needs beyond treatment. A particularly vulnerable group of patients are adolescent and young adults (AYA), who have traditionally been overlooked, either placed together with children, or much older adults based on arbitrary age cutoffs, which vary between regions (Kosir, 2019). It has now been well established that the needs of AYA patients are different and unique to this age group (Barnett et al.,

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Section: Discussionsupporting

confidence: 60%

Section: Discussionsupporting

confidence: 55%

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Mapping the needs and psychological outcomes of Slovenian adolescent and young adult cancer patients: An exploratory mixed‐method study

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“…Individuals undergoing active treatment or taking immunosuppressive medication are known to be at higher risk for viral infections, 5 whereas those in survivorship might experience distress because of changes in their follow-up care. Most young people living beyond cancer worry about cancer recurrence 6,7 and resultantly the disrupted follow-up care, which includes physical examinations, and screening may lead to heightened anxiety. As such, adolescent and young adult (AYA) patients with cancer and survivors remain a group with unique needs during a pandemic outbreak such as the current COVID-19 outbreak, even though the relative risks of infection and mortality for this population have not yet been established.…”

Section: Introductionmentioning

confidence: 99%

The impact of COVID‐19 on the cancer care of adolescents and young adults and their well‐being: Results from an online survey conducted in the early stages of the pandemic

Košir

Loades

Wild

et al. 2020

Cancer

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Background Because of the global spread of coronavirus disease 2019 (COVID‐19), oncology departments across the world have rapidly adapted their cancer care protocols to balance the risk of delaying cancer treatments and the risk of COVID‐19 exposure. COVID‐19 and associated changes may have an impact on the psychosocial functioning of patients with cancer and survivors. This study was designed to determine the impact of the COVID‐19 pandemic on young people living with and beyond cancer. Methods In this cross‐sectional study, 177 individuals, aged 18 to 39 years, were surveyed about the impact of COVID‐19 on their cancer care and psychological well‐being. Participants also reported their information needs with respect to COVID‐19. Responses were summarized with a content analysis approach. Results This was the first study to examine the psychological functioning of young patients and survivors during the first weeks of the COVID‐19 pandemic. A third of the respondents reported increased levels of psychological distress, and as many as 60% reported feeling more anxious than they did before COVID‐19. More than half also wanted more information tailored to them as young patients with cancer. Conclusions The COVID‐19 pandemic is rapidly evolving and changing the landscape of cancer care. Young people living with cancer are a unique population and might be more vulnerable during this time in comparison with their healthy peers. There is a need to screen for psychological distress and attend to young people whose cancer care has been delayed. As the lockdown begins to ease, the guidelines about cancer care should be updated according to this population's needs.

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“…Mental defeat, which has been proposed as a potential cognitive mechanism contributing to psychological distress in a pilot phase of this study (Kosir, Wiedemann, Wild, & Bowes, 2019a) shows strong association with both anxiety and depression, however due to the cross-sectional nature we did not assess the causal mechanisms.…”

Section: Discussionmentioning

confidence: 98%

Mapping the needs and psychological outcomes of Slovenian adolescent and young adult cancer patients: An exploratory mixed-methods study

Košir

Roškar

Wild

et al. 2020

Preprint

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Objectives: Baseline data from an ongoing online longitudinal survey were analysed. Three objectives guided our analyses: 1) to describe the self-reported levels of psychological distress among young Slovenian cancer patients and compare it to an international sample, 2) to describe the subjective illness experience of young Slovenian patients, and 3) to highlight areas for improvement in holistic care. Method: Seventy-nine participants, aged 19 - 39 years, answered questionnaires about anxiety, depression, mental defeat, cancer worry, and their experience of learning the diagnosis and being treated. We used visualizations to demonstrate the relationship between anxiety and depression. The qualitative responses were analysed using an inductive thematic approach. Results: Twenty-eight (35%) participants scored in the clinical range for anxiety and fifteen (19%) for depression. Cancer-related worry was common (85% reported at least one worry). Mental defeat was positively associated with measures of psychological distress. Those who felt negative about learning their diagnosis emphasized the need for more time, empathy, and dignity. Psychological support during illness was seen as crucial. Conclusion: Anxiety and depression remain a problem for a subset of patients. Medical professionals working with young people with cancer should encourage a warm atmosphere as they attend to patients needs and concerns.

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Cognitive Mechanisms in Adolescent and Young Adult Cancer Patients and Survivors: Feasibility and Preliminary Insights from the Cognitions and Affect in Cancer Resiliency Study

Cited by 7 publications

References 22 publications

Mapping the needs and psychological outcomes of Slovenian adolescent and young adult cancer patients: An exploratory mixed‐method study

Mapping the needs and psychological outcomes of Slovenian adolescent and young adult cancer patients: An exploratory mixed‐method study

The impact of COVID‐19 on the cancer care of adolescents and young adults and their well‐being: Results from an online survey conducted in the early stages of the pandemic

Mapping the needs and psychological outcomes of Slovenian adolescent and young adult cancer patients: An exploratory mixed-methods study

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