Cognitive, emotional, and behavioral profile in children and adolescents with chronic pain associated with rheumatic diseases: A case-control study

Pascali, Maria Paola; Matera, Emilia; Craig, Francesco; Torre, Francesco La; Giordano, Paola; Margari, Francesco; Zagaria, Giuseppina; Margari, Mariella; Margari, Lucia

doi:10.1177/1359104518805800

Cited by 5 publications

(2 citation statements)

References 49 publications

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“…Emotional vulnerability in young children with chronic illness has been previously documented (Bell, Bayliss, Glauert, Harrison, & Ohan, ). Patients with pediatric chronic pain more frequently miss school or other academic activities because of their symptoms (Kahn et al, ) and are more likely to show signs of withdrawal and other internalizing tendencies (Pascali et al, ). Thus, while the sample as a whole does not appear to have significant psychological difficulties, it will be important for clinicians to identify those children who might be at risk for psychosocial difficulties and who would benefit from intervention services.…”

Section: Discussionmentioning

confidence: 99%

Quality of life and psychological functioning of pediatric and young adult patients with Gaucher disease, type 1

Alioto

Gomez

Moses

et al. 2020

American J of Med Genetics Pt A

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This study examined the health-related quality of life (HRQoL) and psychological functioning of children and young adults with Gaucher disease, type 1 (GD1). Thirty-two (17 pediatric, 15 young adult) patients with GD1 and one parent completed ageappropriate assessments of HRQoL, emotional, and behavioral health. The HRQoL of children with GD1 was compared with a healthy sample and to children diagnosed with Fabry disease (FD; another lysosomal storage disease), while young adults were compared to a healthy sample and to patients with self-reported chronic illnesses. Children with GD1 reported significantly lower HRQoL across all domains relative to healthy counterparts yet comparable HRQoL compared to children with FD. Young adults reported mildly lower physical functioning than healthy peers, but no differences in HRQoL relative to the chronic illness sample. Parent-reported symptom severity was associated with poorer HRQOL in children but not young adults. Few group differences in psychological functioning were observed, except young children showed more school problems than the normative average and there was a trend toward internalizing symptoms. Overall, results consistently identified younger patients with GD1 as more affected than older patients in HRQoL and psychological domains. Implementation of psychosocial interventions may be particularly beneficial during early childhood. K E Y W O R D SGaucher disease, health-related quality of life, inborn error of metabolism, pediatric, psychological functioning

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Section: Discussionmentioning

confidence: 99%

Quality of life and psychological functioning of pediatric and young adult patients with Gaucher disease, type 1

Alioto

Gomez

Moses

et al. 2020

American J of Med Genetics Pt A

View full text Add to dashboard Cite

show abstract

“…Such frequent and long-term visits can worsen the psychological status of children with rheumatic diseases and lead to complications of the underlying disease. [ 17 18 ] Based on this, it is necessary to reduce the number of visits and optimize assistance for such children. As a solution to this problem, we suggest using a silicone key method (SKM).…”

Section: Introductionmentioning

confidence: 99%