Cognitive behavioural therapy for chronic pain in people with an intellectual disability: a case series using components of the <i><scp>F</scp>eeling <scp>B</scp>etter</i> programme

McManus, Shauna; Treacy, Margaret; McGuire, Brian E.

doi:10.1111/jir.12018

Cited by 18 publications

(27 citation statements)

References 30 publications

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“…The Pain Coping Strategies Questionnaire [ 27 ] and the Pain Coping Scenarios Questionnaire (modified from McManus, [ 27 ]) were used to measure pain coping. These measures were previously compared pre-intervention, post-intervention and at 1-month follow-up, in a pilot study examining the feasibility and clinical utility of CBT for people with an intellectual disability [ 27 ]. On the Pain Coping Strategies Questionnaire, all participants showed an increase in wellness-focused coping strategies from pre-intervention to post-intervention assessment, however, these were generally not maintained at follow-up.…”

Section: Methodsmentioning

confidence: 99%

“…Again, coping strategies were coded as wellness-focused or illness-focused and as behavioural or cognitive in orientation. The Pain Knowledge Questionnaire [ 27 ] assessed knowledge of pain coping strategies using a seven item multiple choice questionnaire. Response options were “yes”, “no” and “don’t know”.…”

Section: Methodsmentioning

confidence: 99%

“…This modularised programme uses cognitive behavioural principles to teach individuals with intellectual disabilities a range of strategies to manage chronic pain more effectively. In a case series study by McManus and McGuire [ 21 ], some preliminary evidence was provided for the effectiveness of the programme with increases in participant scores on pain management knowledge, wellness-focused coping and effectiveness of coping following the intervention.…”

Section: Introductionmentioning

confidence: 99%

“…In view of the ample evidence that CBT can be used for chronic pain management including the management of dysmenorrhea in the general population, and the preliminary evidence for effectiveness in people with intellectual disability [ 21 ], there is a rationale for evaluating a CBT-based pain management programme for menstrual pain in women with an intellectual disability. This study will be the first controlled clinical trial to address the issue of menstrual pain management with individuals with intellectual disabilities.…”

Section: Introductionmentioning

confidence: 99%

“…Burkitt et al [ 24 ] found that greater developmental level (rather than chronological age) was associated with the use of more cognitively demanding strategies as may be used in cognitive behavioural therapy treatment approaches. McManus and McGuire [ 21 ] also reported a marked absence of the use of cognitive coping skills. Participants were more likely to use behavioural strategies such as exercise and relaxation.…”

Section: Introductionmentioning

confidence: 99%

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Evaluation of a group based cognitive behavioural therapy programme for menstrual pain management in young women with intellectual disabilities: protocol for a mixed methods controlled clinical trial

et al. 2014

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BackgroundMenstrual pain which is severe enough to impact on daily activities is very common amongst menstruating females. Research suggests that menstrual pain which impacts on daily functioning may be even more prevalent amongst those with intellectual disabilities. Despite this, little research attention has focused on pain management programmes for those with intellectual disabilities.The aims of this pilot study were to develop and evaluate a theory-based cognitive behavioural therapy (CBT) programme for menstrual pain management in young women with intellectual disabilities.Methods/DesignThe study utilised a mixed methods controlled clinical trial to evaluate elements from a CBT programme called Feeling Better (McGuire & McManus, 2010). The Feeling Better programme is a modular, manualised intervention designed for people with an intellectual disability and their carers. The programme was delivered to 36 young women aged 12 – 30 years who have a Mild - Moderate Intellectual Disability, split between two conditions. The treatment group received the Feeling Better intervention and the control group received treatment as usual. To evaluate the effectiveness of the programme, measures were taken of key pain variables including impact, knowledge, self-efficacy and coping. Process evaluation was conducted to examine which elements of the programme were most successful in promoting change.DiscussionParticipants in the intervention group were expected to report the use of a greater number of coping strategies and have greater knowledge of pain management strategies following participation in the intervention and at three month follow-up, when compared to control group participants. A significant advantage of the study was the use of mixed methods and inclusion of process evaluation to determine which elements of a cognitive behavioural therapy programme work best for individuals with intellectual disabilities.Trial registrationCurrent Controlled Trials ISRCTN75567759

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Section: Methodsmentioning

confidence: 99%

Section: Methodsmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

See 3 more Smart Citations

Evaluation of a group based cognitive behavioural therapy programme for menstrual pain management in young women with intellectual disabilities: protocol for a mixed methods controlled clinical trial

et al. 2014

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Pain interventions in adults with intellectual disability: A scoping review and pharmacological considerations

Lonchampt

Gerber²,

Aubry³

et al. 2020

European Journal of Pain

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Background and Objective Having to deal on a daily routine with prescriptions in adults with intellectual disability (ID), we systematically reviewed the literature on the specificities of pain interventions in that population, focusing on medication and trying to gather practical information on appropriate pain treatments. Given the scarcity of the literature on the topic, we also discussed the pharmacological considerations to be taken into account when prescribing analgesic drugs in that vulnerable population. Databases and Data Treatment Articles on pain and ID were searched in the Medline and Google scholar electronic databases using the key words "Intellectual Disability," "Developmental Disability" and specific keywords for pharmacological and non‐pharmacological pain interventions. Preset outcomes about pharmacological treatment specificity, efficacy and safety were then collected. Results One hundred and fifty‐two articles were found and 16 were retained based on our inclusion and exclusion criteria. Of the 16 articles, five were topical reviews. Among the 11 remaining articles, five discussed pharmacological interventions, four considered non‐pharmacological interventions and two discussed both. As anticipated, the literature matching our specific outcomes about the pharmacological treatment of pain was scarce and for the most part not designed to answer the questions of specificity, efficacy and safety of pain treatment in adults with ID. Conclusion The specificity of analgesic treatments in adults with ID is a totally unexplored domain. In the absence of clinical guidelines, pharmacological facts—such as inter‐individual variability in drug response, pharmacokinetic and pharmacodynamic interactions, frequent co‐morbidities and ease of administration—must be systematically integrated, when prescribing in the population of adults with ID. Significance This review synthesizes the state of research on pain interventions in adults with ID and is one of the rare articles addressing the specificities of analgesic prescriptions in this population.

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Improving pain‐related communication in children with autism spectrum disorder and intellectual disability

Fitzpatrick

McGuire

Lydon

2022

Paediatric and Neonatal Pain

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The communication of pain in individuals with co‐morbid Autism Spectrum Disorder and intellectual disability (ASD‐ID) is largely unexplored. The communication deficits associated with ASD‐ID can result in nonverbal behavior such as self‐injurious behavior, aggression, irritability, and reduced activity as a means to communicate that pain is present. The objective of this study was to determine whether a behavioral‐based educational intervention could increase the pain‐related communication of children with ASD‐ID who experience pain frequently. Specifically, the study aimed to determine if children with ASD‐ID can label the location of their pain or quantify pain severity and request pain relief. The sample included three children with ASD‐ID who experienced pain frequently. The intervention utilized educational materials and behavioral reinforcements and the intervention was conducted using a series of case studies. Pain was assessed daily by caregivers using the Non‐Communicating Children's Pain Checklist—Postoperative (NCCPC‐PV) and the ability of the individual to identify and express pain was recorded using the Wong Baker FACES Pain (WBFPS) Scale. Challenging behavior was recorded based on frequency count. The results indicated that all participants displayed the ability to independently respond to a question about how they were feeling by vocalizing the location of pain or indicating their level of pain on the WBFPS and requesting pain relief. The results suggest a role for behavioral‐based educational interventions to promote communication of pain in people with ASD‐ID.

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Cognitive behavioural therapy for chronic pain in people with an intellectual disability: a case series using components of the Feeling Better programme

Abstract: We concluded that CBT has potential utility for pain management in people with an ID, but that it requires a trial of a more intensive and prolonged intervention with the systematic involvement of care givers.

Cited by 18 publications

References 30 publications

Evaluation of a group based cognitive behavioural therapy programme for menstrual pain management in young women with intellectual disabilities: protocol for a mixed methods controlled clinical trial

Evaluation of a group based cognitive behavioural therapy programme for menstrual pain management in young women with intellectual disabilities: protocol for a mixed methods controlled clinical trial

Pain interventions in adults with intellectual disability: A scoping review and pharmacological considerations

Improving pain‐related communication in children with autism spectrum disorder and intellectual disability

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