Cognitive and functional outcome in spina bifida–Chiari II malformation

Jenkinson, Michael D.; Campbell, Sophie; Hayhurst, Caroline; Clark, Simon; Kandasamy, Jothy; Lee, Maggie K.; Flynn, Ann Marie; Murphy, Peter; Mallucci, Conor

doi:10.1007/s00381-010-1368-7

Cited by 41 publications

(27 citation statements)

References 30 publications

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“…These studies suggest that physical problems may negatively affect physicosocial status. Some studies showed lower scores in the physical domain of the HRQOL measure in individuals with SB in comparison to healthy children (31)(32)(33). At the end of our study, we observed that there was no improvement in sphincter control, mobility, transfers, and other physical function problems with increasing age, but there was significant progress in the SE, REB, BE, and MH sub-scales.…”

Section: Discussionsupporting

confidence: 41%

Assessment of Functional Status and Quality of Life in Children with Spina Bifida

Şahin¹,

Albayrak²,

Durmuş³

et al. 2014

Turk J Phys Med Rehab

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Objective: The aim of this study was to determine functional status and QoL of children with spina bifida (SB) by using the Functional Independence Measure for Children (WeeFIM) and the Child Health Questionnaire PF-50 (CHQPF-50) and to compare the functional status data of pediatric SB patients with those of healthy children. Material and Methods: Forty children with SB and 40 healthy children aged between 36 and 143 months were enrolled in the study. Both pediatric SB patients and healthy children were divided into three age groups: Group 1: 36-71 months, Group 2: 72-107 months, and Group 3: 108-143 months. The WeeFIM and CHQPF-50 were completed for children with SB, whereas the WeeFIM was completed only for healthy children. Results: In both assessments, the total score and subscale scores were lower than normal values in children with SB. However, improvement was found in self-care; communication; social, emotional, and mental status; and family factors with increasing age. On the other hand, there was no improvement in physical score, transfer, mobility, and sphincter control with increasing age. Functional status of children with SB was significantly lower compared to healthy children. Conclusion: There was progress in self-care, communication, family factors, and social, emotional and mental status in children with SB with increasing age.

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Section: Discussionsupporting

confidence: 41%

Assessment of Functional Status and Quality of Life in Children with Spina Bifida

Şahin¹,

Albayrak²,

Durmuş³

et al. 2014

Turk J Phys Med Rehab

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“…Furthermore, our previous study only showed association with continence to shunt and level of the lesion; effect on QoL was not investigated. The significant physical impairment associated with spina bifida, hydrocephalus and shunts is often associated with cognitive defects and learning disabilities (24,25). This has been extrapolated to suggest that these patients are less 'bothered' by their incontinence (20).…”

Section: Discussionmentioning

confidence: 99%

The association between urinary continence and quality of life in paediatric patients with spina bifida and tethered cord

Olesen

Kiddoo

Metcalfe

2013

Paediatrics and Child Health

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“…Moreover, in our small adult follow-up sample, parent-and self-reports continued to result in higher T-score means (relative to normative values), suggesting persistence of some aspects of executive dysfunction as youth with MMH transition into adulthood. These findings thus have relevance for transition-aged youth with MMH, particularly within the context of other research suggesting persisting learning and cognitive deficits into adulthood (Jenkinson et al, 2011). We have proposed that, when combined with other cognitive and psychosocial variables, executive dysfunction may further detract from the ability of young adults to become independent in managing aspects of their own self-care and medical self-management (Tarazi et al, 2007).…”

Section: Discussionmentioning

confidence: 87%

Parent- and Self-Ratings of Executive Functions in Adolescents and Young Adults With Spina Bifida

Zabel

Jacobson

Zachik

et al. 2011

The Clinical Neuropsychologist

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This study examined the agreement and consistency of parent- and self-report of executive functioning (EF) (Behavior Rating Inventory of Executive Functions; BRIEF) in an adolescent cohort of youth with myelomeningocele and shunted hydrocephalus (MMH). A total of 30 youth participants with MMH and their parents were recruited during adolescence (age 11-18, mean age 14), and a smaller sample (n = 13) was re-evaluated during young adulthood (age 18-26, mean age 22). Parent- and self-report T-scores were moderately correlated during adolescence (General Executive Composite, GEC, r = .504, p = .007) and adulthood (GEC, r = .571, p = .041). Compared to adolescent self-ratings, parent-ratings suggested higher levels of overall executive dysfunction and problems with metacognitive abilities during adolescence. Preliminary results from a small follow up sample, however, suggest that self- and parent-report of executive functioning may become more comparable during young adulthood. These preliminary data also suggest stability of deficit and/or possible improvement in executive presentation during the transition from adolescence to adulthood in this clinical population. Implications of these findings are discussed.

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Cognitive and functional outcome in spina bifida–Chiari II malformation

Cited by 41 publications

References 30 publications

Assessment of Functional Status and Quality of Life in Children with Spina Bifida

Assessment of Functional Status and Quality of Life in Children with Spina Bifida

The association between urinary continence and quality of life in paediatric patients with spina bifida and tethered cord

Parent- and Self-Ratings of Executive Functions in Adolescents and Young Adults With Spina Bifida

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