Co‐sleeping in school‐aged children with a motor disability: a comparative population‐based study

Jacquier, David; Newman, Christopher J.

doi:10.1111/dmcn.13300

Cited by 13 publications

(6 citation statements)

References 26 publications

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“…Many families already attend to medical needs of their children with neurodisability overnight or choose to co-sleep due to these needs 38. In patients who are fully care dependent, NIV may add to the burden of care, causing further sleep disruption and stress for parents/carers.…”

Section: Practical Considerationsmentioning

confidence: 99%

Use of non-invasive ventilation in cerebral palsy

Grychtol

Chan

2018

Arch Dis Child

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Patients with cerebral palsy (CP), especially those at the severe end of the spectrum (Gross Motor Function Classification System levels IV-V equivalent), frequently suffer from sleep disturbance and sleep-disordered breathing (SDB). Non-invasive ventilation (NIV) is increasingly used in this patient group, albeit with little published evidence of its effectiveness in CP. This article aims to review the current evidence in the use of NIV in children with CP, highlighting areas of uncertainties, as well as the balance of potential risks, challenges and benefits. We would also share our experience and practical considerations in using NIV to manage SDB in this group of patients. Between January 2010 and December 2016, 21 patients (median age 11.1 (range 1.7-16.1) years) with CP were initiated on NIV at Great Ormond Street Hospital for Children following diagnosis of moderate to severe SDB on cardiorespiratory polygraphy. Over half of our patients with CP (n=11) failed to establish on NIV either due to intolerance of mask and/or ventilation pressure at the initial trial in hospital, or poor adherence during follow-up, in contrast to the overall failure rate of 8.7% among total patient population commenced on NIV. Children with CP constitute a relatively small but challenging group of patients. Decision to undertake NIV should be individualised, based on benefit outweighing the risk and burden of the treatment.

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Section: Practical Considerationsmentioning

confidence: 99%

Use of non-invasive ventilation in cerebral palsy

Grychtol

Chan

2018

Arch Dis Child

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“…24 Cosleeping has previously been reported in associated with visual impairment in children. 25 The lack of many parents mentioning light therapy as an effective intervention is consistent with the limited and thus far negative published data in children with visual impairment. 9,26 Additional frequently reported helpful measures included relaxation exercises, soothing music, and ensuring a cool/dark sleep environment.…”

Section: Discussionmentioning

confidence: 53%

Sleep Challenges and Interventions in Children With Visual Impairment

Ingram¹,

Cruz²,

Stahl³

et al. 2022

J Pediatr Ophthalmol Strabismus

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Purpose: To examine sleep patterns in a large and heterogeneous group of children with visual impairment. Methods:A cross-sectional survey of parents of children with visual impairment was offered via the National Federation of the Blind and the National Organization for Albinism and Hypopigmentation.Results: Complete survey results were available for 72 participants, aged 1 to 16 years. Parents of 52 (72%) children reported that their child had cycles of good sleep and bad sleep, and 50 (69%) reported that their child' s sleep patterns caused significant stress for them or their family. Scores on the Childhood Sleep Habits Questionnaire (CSHQ) increased (> 41) in 64 (89%) children, indicating a likely clinically significant sleep problem. When compared to normative data from children aged 4 to 10 years, children in the current sample scored higher (more sleep problems) on all eight subscales on the CSHQ. The presence of comorbid developmental delay was most strongly associated with sleep problems. Supplemental melatonin and improving daytime and nighttime schedules or routines were reported as the most helpful for sleep. Many families reported a need for further information regarding melatonin use as a supplement. Conclusions:A high proportion of children with visual impairment experience clinically meaningful sleep problems, regardless of degree of light perception or visual acuity. There is a strong need for increased awareness and screening for sleep problems in this population. Potential treatment modalities, including supplemental melatonin, should be discussed with families.

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“…Según la mayoría de los padres de niños y niñas con alguna minusvalía, lo que causa el colecho son los cuidados especiales que precisan de noche, sobre todo en casos de di$cultades severas o cuando además tienen enfermedades como epilepsia o serios problemas visuales. La investigación evidencia que también deciden dormir juntos por los temores de que algo malo pueda suceder con relación a la condición de su hijo; si bien los ritmos de sueño de los padres no son buenos, son peores cuando duermen en habitaciones independientes (Jacquier & Newman, 2017). Concomitantemente, una mejor calidad de sueño debido al colecho y temores también fueron registrados en casos en que no hay ningún tipo de discapacidad (Gozzo-Perretti & Oliveira, 2017).…”

Section: La Propensión Al Colecho En Un Espacio Multidimensionalunclassified

Infancias y colecho en la Argentina: factores sociodemográficos, socioeconómicos y de salud familiar

Tuñón

Sánchez

2021

Rev.latinoam.cienc.soc.niñez juv

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(analítico)Se caracteriza el fenómeno del colecho en términos sociodemográficos, socioeconómicos y en relación con las vulnerabilidades específicas de los hogares, tales como la violencia intrafamiliar y los consumos nocivos. A través de la Encuesta de la Deuda Social Argentina y un análisis multivariado cuantitativo, se abordan los siguientes interrogantes: ¿el colecho es una práctica asociada únicamente a los bebés?, ¿resulta más frecuente en contextos de pobreza o se trata de una práctica que atraviesa a diferentes infancias? Se concluye que el colecho no es un fenómeno exclusivo de los y las bebés; que en la adolescencia es más regresivo para las mujeres y que el factor socioeconómico remite a un «colecho forzoso» que se especifica en interacción con el hacinamiento, la monoparentalidad, los consumos nocivos y la violencia intrafamiliar. Palabras clave: Infancia, desarrollo del niño, relación padres-hijos, crianza del niño, bienestar de la infancia, desigualdad social, familia monoparental, demografía, salud.

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Co‐sleeping in school‐aged children with a motor disability: a comparative population‐based study

Abstract: Co-sleeping is common among children with motor disability. It is influenced by personal and medical factors, as well as the requirements for special care at night. Therefore, health professionals should explore sleeping arrangements in families of children with motor disability.

Cited by 13 publications

References 26 publications

Use of non-invasive ventilation in cerebral palsy

Use of non-invasive ventilation in cerebral palsy

Sleep Challenges and Interventions in Children With Visual Impairment

Infancias y colecho en la Argentina: factores sociodemográficos, socioeconómicos y de salud familiar

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