Co-Producing Narratives on Access to Care in Rural Communities: Using Digital Storytelling to Foster Social Inclusion of Young People Experiencing Psychosis (Dispatch)

Abstract

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Body Mapping in a Drug and Alcohol Treatment Program: Eliciting New Identity and Experience

“…Arts-based methods have been shown to both value and include participants' voices and give them greater agency in the research process including more control over the expression of their experiences and perspectives [32,33]. This has been particularly found for those who are often marginalised or silenced within society [26,27,34,35], as is commonly the case for young people accessing AOD services.…”

Challenging the deportation regime: reflections on the research encounter with undocumented refugee children in Sweden

“…The research used standard ethnographic research techniques and thematic analysis, including longterm fieldwork, participant observation, interviewing and informal conversation. It also used creative research tools such as digital story-telling (Lenette, Cox, and Brough 2015;Boydell et al 2017), taskbased activities (Punch 2002), and children's photography (Jörgensen and Sullivan 2010). The purpose of using a range of research techniques was to adjust the methods to the individual child's preferred way of expressing themselves, and seeking in different ways to inspire and 'empower' the child to articulate their own analysis of their situation.…”

“…As it happened, the Ombudsman was deeply moved by the films, and sent a recorded video response to the children the next day that all participants at the workshop watched together. At that time, I had a strong sense that this gave proper recognition and respect to children's own stories, in a similar way to research on digital stories and photo voice created with young people experiencing psychosis and lone refugee young people (Boydell et al 2017;Lenette, Cox, and Brough 2015;Rogers, Carr, and Hickman 2018). The participating children at the workshop were told that their accounts could be viewed by the general public as well as persons in decision-making and political positions.…”

“…The article builds on ethnographic research with undocumented refugee children in Sweden in 2012Sweden in -2014 showing that when children addressed a public and political audience rather than the researcher alone, children's narratives often changed from unarticulated or reserved outrage to explicit political protest. I argue that ethnographic research plays a role in co-producing children's political assertions (Boydell et al 2017); that the social status and position scholars give to children in research effect children's agency; and that the researcher has moral responsibility to not only analyse and describe children's struggles, but provide opportunities in which they can be heard. I begin by positioning this article within literature on critical migration research and then shed light on scholarship on children's agency that direct attention to their lived rights and politics.…”

The Journey to a Wider Understanding of Ways of Knowing: Knowledge Translation and the Arts

“…A range of artistic genres are employed: performative, visual, and literary, which include photography and other visual arts, theatre, music, poetry and dance, digital storytelling, body mapping, and material objects. The benefits of using the arts in research include increased attention to the meaning and experience of health and illness, inclusion of disenfranchised and marginalized communities, and the heightened ability to convey research findings in a way that engages target audiences and facilitates change in health care knowledge, attitudes, and practice (Boydell, Solimine, & Jackson, 2015;Boydell et al, 2018a;Boydell, Gladstone, Stasiulis, Nodin, & Cheng, 2018b;Gray & Kontos, 2015;Cole & Knowles, 2008). On a global level, there has been a continual increase in the number and variety of health research projects adopting an arts-based approach to creating research knowledge and/or disseminating empirical research findings.…”