Co-Occurring Physical Health Challenges in Neurodivergent Children and Young People: A Topical Review and Recommendation

Donaghy, Bethany; Moore, David; Green, Jane

doi:10.1080/13575279.2022.2149471

Cited by 7 publications

(2 citation statements)

References 93 publications

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“…Research has revealed that barriers faced by autistic individuals in accessing healthcare include challenges with health anxiety, communication under stress, and a lack of autism awareness in staff ( Hampton et al, 2022 ). Autistic populations are also at greater risk of contact with health services due to co-occurring mental and physical health conditions ( Donaghy et al, 2022 ; Hanlon et al, 2022 ).…”

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confidence: 99%

Understanding the impacts of chronic pain on autistic adolescents and effective pain management: a reflexive thematic analysis adolescent–maternal dyadic study

Jordan,

Parchment,

Gauntlett-Gilbert

et al. 2024

Journal of Pediatric Psychology

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Objective Sensory elements are core features in chronic pain and autism, yet knowledge of the pain experience in autistic adolescents is limited. Little is known regarding how autistic adolescents experience chronic pain, manage their pain and perceive psychological treatment for their chronic pain. Methods Ten autistic adolescents (6 female, 3 male, and 1 self-identified as agender) with chronic pain and their mothers (n = 10) participated in semistructured interviews concerning their perceptions of living with chronic pain. Participants were recruited from U.K. pain management services. According to preference, interviews were conducted individually (n = 10) or dyadically (n = 10 participants across 5 dyads). Data were analyzed using inductive reflexive thematic analysis. Results Two themes were generated. Theme 1, “overstimulated and striving for control” described how adolescents’ experience of heightened sensitivity enhanced adolescents’ levels of anxiety and subsequent pain, illustrating a reciprocal relationship between anxiety, pain, and sensory elements. Theme 2, “not everyone fits the mold” captured how autistic adolescents positioned themselves as distinct from others due to the unique nature of being autistic and living with pain. This sense of difference negatively impacted adolescents’ ability to engage with and benefit from the standard treatment for chronic pain. Conclusions Findings suggest that autistic adolescents living with pain experience pain and face barriers to effective pain treatment. Our results identify the need for educational resources to facilitate clinicians to better understand the experience of autistic adolescents living with pain. In turn, such understanding may improve treatment and outcomes in this population.

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Understanding the impacts of chronic pain on autistic adolescents and effective pain management: a reflexive thematic analysis adolescent–maternal dyadic study

Jordan,

Parchment,

Gauntlett-Gilbert

et al. 2024

Journal of Pediatric Psychology

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“…9,14 Higher levels of pain in these populations might be a result of a predisposition to particular conditions, 15 motor changes that leave individuals at greater risk of injury, 12 and differences in access to the healthcare systems. 4,5,13 Further there may be differences in cognitive processing styles, emotional regulation, and the development of social relationships which might leave these populations especially vulnerable within the healthcare system. 7,8 The accurate measurement of pain is critical to ensure that the appropriate treatment can be obtained by these populations.…”

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confidence: 99%

Commentary on: A systematic review of self and observer assessment of pain and related functioning in youth with brain-based developmental disabilities

Moore

2023

Pain

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Sensory Profiles and Technological Deficits: Classification, Relevance, and Gaps

Hutson,

Harper-Nichols

2024

Sensemaking and Neuroaesthetics

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Co-Occurring Physical Health Challenges in Neurodivergent Children and Young People: A Topical Review and Recommendation

Cited by 7 publications

References 93 publications

Understanding the impacts of chronic pain on autistic adolescents and effective pain management: a reflexive thematic analysis adolescent–maternal dyadic study

Understanding the impacts of chronic pain on autistic adolescents and effective pain management: a reflexive thematic analysis adolescent–maternal dyadic study

Commentary on: A systematic review of self and observer assessment of pain and related functioning in youth with brain-based developmental disabilities

Sensory Profiles and Technological Deficits: Classification, Relevance, and Gaps

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