Co-Creating Descriptors and a Definition for Person-Centred Coordinated Health Care: An Action Research Study

Abstract

The aim of this study was to co-create a definition and generic descriptors for person-centred coordinated care for Ireland generated from service users’ narratives. An overarching action research approach was used to engage and empower people to tangibly impact health policy and practice. Through focus groups and a qualitative survey, primary data were collected from a national sample of health services users, caregivers and health care service users’ representative groups. Thematic analysis was used to analyse the data. Three major themes were co-produced as essential care elements. These were: ‘My experience of healthcare’, ‘Care that I am confident in’ and ‘My journey through healthcare’. Through an IPPOSI partner project steering group and their membership groups’ contribution, these themes were further refined into a definition of person-centred coordinated care and nineteen related generic descriptors. Key findings demonstrate that within complex, fragmented healthcare systems, the subjective expectations of service users should be integrated into care delivery, with a scaffolding of services to meet service users’ needs between care settings and disciplines and over time.

From People-Centred to People-Driven Care: Can Integrated Care Achieve its Promise without it?

“…Our thinking is derived from the Special Collection on People-Driven Care: Co-Designing for Health and Wellbeing with Individuals and Communities that was commissioned to bring together knowledge and evidence of the potential impact of people-driven care, specifically to describe approaches focusing on empowering and engaging people and the role and impact of co-production and co-design. The call for papers yielded 18 papers, of which 14 have to-date been published comprising 8 research papers [ 3 4 5 6 7 8 9 10 ], 4 case studies [ 11 12 13 14 ], a perspective paper [ 15 ], and a research protocol paper [ 16 ].…”

“…Whilst our special issue cannot claim to offer more than a sparse reflection on the scope of this evidence, the majority of studies only examined the ‘potential’ importance of pursuing co-design principles and participatory activities in different contexts [e.g. 4 5 6 7 13 14 ]. Only two research studies provided evidence for more collaborative and people-centred practices resulting in outcomes such as higher satisfaction levels in service delivery and stronger user-professional collaboration [ 3 8 ].…”

Sårbar sammenheng i helse- og omsorgstjenesten til eldre pasienter

“…Involvering av pasienten og pårørende og deres unike perspektiv på kontinuitet i helse-og omsorgstjenestene har potensial til å spille en viktig rolle i å skape og opprettholde kvalitet og sikkerhet i overganger (Lawless et al, 2020;Shahsavari et al, 2019;Dyrstad et al, 2015;Aase & Waring, 2020;Hansen et al, 2018;Scott, 2017). Forskere etterlyser forskning som setter søkelys på kontinuitet i helse-og omsorgstjenestene for personer som er eldre, kritisk syke eller lider av kroniske sykdommer, for å kunne bidra til bedre kvalitet i helse-og omsorgstjenestene (Gjengedal et al, 2019;Klinga et al, 2020;Czypionka et al, 2020;Stoop et al, 2020;Phelan et al, 2021). Hensikt Prosjektet «A cross sectoral approach to high quality health care transitions for older people» (CrossCare Old) er et tverrfaglig prosjekt som er finansiert av Norges forskningsråd, og som blir avsluttet i 2021.…”

A qualitative study into cancer survivors' relationship with nutrition post‐cancer treatment

“…A patient-centred evaluation is fundamental for developing future nutritional interventions in this population. 19…”

“…Therefore, this study aimed to explore and understand, by qualitative methodology, the relationship cancer survivors' have with nutrition. A patient‐centred evaluation is fundamental for developing future nutritional interventions in this population 19 …”