Co-construction of an Internet-based intervention for older assistive technology users and their family caregivers: stakeholders’ perceptions

Gélinas-Bronsard, Dominique; Mortenson, W. Ben; Ahmed, Sara; Guay, Cassioppée; Auger, Claudine

doi:10.1080/17483107.2018.1499138

Cited by 19 publications

(32 citation statements)

References 42 publications

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“…With regard to the former, the design process plays an important role in ICT use, acting as a barrier or a facilitator [ 39 ]. Many informal caregivers experience difficulties in navigating ICT solutions, due to the complexity of the design of technology [ 58 ]. This is partly due to the fact that informal caregivers are not included in the design of ICT-based support solutions even though these solutions should be co-designed with end users [ 58 ].…”

Section: Resultsmentioning

confidence: 99%

“…Many informal caregivers experience difficulties in navigating ICT solutions, due to the complexity of the design of technology [ 58 ]. This is partly due to the fact that informal caregivers are not included in the design of ICT-based support solutions even though these solutions should be co-designed with end users [ 58 ]. Gélinas-Bronsard et al [ 58 ] reported that this type of design may constrain informal caregiver behavior accordingly and inadequately reflect their needs as users of ICT solutions.…”

Section: Resultsmentioning

confidence: 99%

“…The literature identifies digital illiteracy as a major challenge for informal caregivers as it increases the need for additional time and effort to adopt a new technology [ 26 - 29 , 36 , 44 , 52 , 58 ]. Lack of digital skills is found to be a main barrier for informal caregivers in using ICT solutions in many studies analyzed in this review [ 26 , 28 , 29 , 31 , 37 , 48 ].…”

Section: Resultsmentioning

confidence: 99%

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Challenges and Recommendations for the Deployment of Information and Communication Technology Solutions for Informal Caregivers: Scoping Review

Hassan¹

2020

JMIR Aging

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Background Information and communication technology (ICT)–based solutions have the potential to support informal caregivers in home care delivery. However, there are many challenges to the deployment of these solutions. Objective The aim of this study was to review literature to explore the challenges of the deployment of ICT-based support solutions for informal caregivers and provide relevant recommendations on how to overcome these challenges. Methods A scoping review methodology was used following the Arksey and O’Malley methodological framework to map the relevant literature. A search was conducted using PubMed, IEEE library, and Scopus. Publication screening and scrutiny were conducted following inclusion criteria based on inductive thematic analysis to gain insight into patterns of challenges rising from deploying ICT-based support solutions for informal caregivers. The analysis took place through an iterative process of combining, categorizing, summarizing, and comparing information across studies. Through this iterative process, relevant information was identified and coded under emergent broader themes as they pertain to each of the research questions. Results The analysis identified 18 common challenges using a coding scheme grouping them under four thematic categories: technology-related, organizational, socioeconomic, and ethical challenges. These range from specific challenges related to the technological component of the ICT-based service such as design and usability of technology, to organizational challenges such as fragmentation of support solutions to socioeconomic challenges such as funding of technology and sustainability of solutions to ethical challenges around autonomy and privacy of data. For each identified challenge, recommendations were created on how to overcome it. The recommendations from this study can provide guidance for the deployment of ICT-based support solutions for informal caregivers. Conclusions Despite a growing interest in the potential offered by ICT solutions for informal caregiving, diverse and overlapping challenges to their deployment still remain. Designers for ICTs for informal caregivers should follow participatory design and involve older informal caregivers in the design process as much as possible. A collaboration between designers and academic researchers is also needed to ensure ICT solutions are designed with the current empirical evidence in mind. Taking actions to build the digital skills of informal caregivers early in the caregiving process is crucial for optimal use of available ICT solutions. Moreover, the lack of awareness of the potential added-value and trust toward ICT-based support solutions requires strategies to raise awareness among all stakeholders—including policy makers, health care professionals, informal caregivers, and care recipients—about support opportunities offered by ICT. On the macro-level, policies to fund ICT solutions that have been shown to be effective at supporting and improving informal caregiver health outcomes via subsidies or other incentives should be considered.

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Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

Section: Resultsmentioning

confidence: 99%

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Challenges and Recommendations for the Deployment of Information and Communication Technology Solutions for Informal Caregivers: Scoping Review

Hassan¹

2020

JMIR Aging

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“…According to Gélinas-Bronsard and colleagues, accessing AT is a matter of resources. 30 While it is obvious that factors outside finance play a role in the access and utilisation of AT, its pivotal role in low-and middleincome countries (LMICs), where healthcare insurance and social welfare packages are absent, is a key issue that the action research approach must explicitly address.…”

Section: Discussionmentioning

confidence: 99%

“…28 29 In this case, we envision coconstruction of leadership and shared responsibility by different stakeholders involved in AT in Malawi. 30 According to De Brún et al, collective leadership was associated with improved communication and role clarity, greater willingness to adopt leadership roles and 'give and take' by leaders, who became more willing to share leadership responsibilities. 28 Also, Michaud-Létourneau et al suggest that the approach is useful for changing policy where many stakeholders exist.…”

Section: Methods and Analysis Approachmentioning

confidence: 99%

Implementation of the Assistive Product List (APL) in Malawi through development of appropriate policy and systems: an action research protocol

et al. 2020

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IntroductionAssistive technology (AT) is important for the achievement of the sustainable development goals (SDGs) for persons with disabilities (PWD). Increasingly, studies suggest a significant gap between the need for and demand for and provisions of AT for PWD in low-income and middle-income settings. Evidence from high income countries highlights the importance of robust AT policies to the achievement of the recommendations of the World Health Assembly on AT. In Malawi, there is no standalone AT policy. The objectives of the Assistive Product List Implementation Creating Enablement of inclusive SDGs (APPLICABLE) project, are to propose and facilitate the development of a framework for creating effective national AT policy and specify a system capable of implementing such policies in low-income countries such as Malawi.Method and analysisWe propose an action research process with stakeholders in AT in Malawi. APPLICABLE will adopt an action research paradigm, through developing a shared research agenda with stakeholders and including users of AT. This involves the formation of an Action Research Group that will specify the priorities for practice—and policy-based evidence, in order to facilitate the development of contextually realistic and achievable policy aspirations on AT in Malawi and provide system strengthening recommendations that will ensure that the policy is implementable for their realisation. We will undertake an evaluation of this policy by measuring supply and support for specific AT prior to, and following the implementation of the policy recommendations.Ethics and disseminationThe study protocol was approved by Maynooth University Research Ethics Committee (SRESC-2019-2378566) and University of Malawi Research Ethics Committee (P.01/20/10). Findings from the study will be disseminated by publication in peer-reviewed journals, presentations to stakeholders in Malawi, Ireland and international audiences at international conferences.

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Factors that influence the provision of home-based rehabilitation services for people needing rehabilitation: a qualitative evidence synthesis

Vélez

Lugo-Agudelo

Lugo

et al. 2023

Cochrane Database of Systematic Reviews

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Co-construction of an Internet-based intervention for older assistive technology users and their family caregivers: stakeholders’ perceptions

Cited by 19 publications

References 42 publications

Challenges and Recommendations for the Deployment of Information and Communication Technology Solutions for Informal Caregivers: Scoping Review

Challenges and Recommendations for the Deployment of Information and Communication Technology Solutions for Informal Caregivers: Scoping Review

Implementation of the Assistive Product List (APL) in Malawi through development of appropriate policy and systems: an action research protocol

Factors that influence the provision of home-based rehabilitation services for people needing rehabilitation: a qualitative evidence synthesis

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