Abstract:Background: Medicare spends about 20% more on the last year of life for Black and Hispanic people than White people. With lower hospice utilization rates, racial/ethnic minorities receive fewer hospice-related benefits such as lesser symptoms, lower costs, and improved quality of life. For-profit hospices have higher dropout rates than nonprofit hospices, yet target racial/ethnic minority communities more through community outreach. This analysis examined the relationship between hospice utilization and for-pr… Show more
“…In addition to evidence of hospice patients living longer than similarly ill patients who do not receive hospice (39,40), hospice has been found to be associated with patients having fewer unmet needs, higher quality of care, better quality of dying, improved emotional support for patient or family, and better overall satisfaction among families (3,(41)(42)(43). Hospice also benefits health systems and payers by reducing unnecessary acute care use and related costs (2,44). Palliative care consultations to discuss goals-of-care are similarly associated with cost reductions (2,19,45), likely partly due in part to increased use of hospice.…”
Context-African Americans are less likely to receive hospice care and more likely to receive aggressive end-of-life care than Whites. Little is known about how palliative care consultation to discuss goals-of-care (hereafter "PCC") is associated with hospice enrollment by race.Objectives-To compare enrollment in hospice at discharge between propensity-matched cohorts of African Americans with and without PCC, and Whites with and without PCC.Methods-Secondary analysis of a retrospective cohort study at a high-acuity hospital; employing stratified propensity-score matching for 35,154 African Americans and Whites age 18+ admitted for conditions other than childbirth or rehabilitation, who were not hospitalized at end of study, and didn't die during index hospitalization (hospitalization during which first PCC occurred).
“…In addition to evidence of hospice patients living longer than similarly ill patients who do not receive hospice (39,40), hospice has been found to be associated with patients having fewer unmet needs, higher quality of care, better quality of dying, improved emotional support for patient or family, and better overall satisfaction among families (3,(41)(42)(43). Hospice also benefits health systems and payers by reducing unnecessary acute care use and related costs (2,44). Palliative care consultations to discuss goals-of-care are similarly associated with cost reductions (2,19,45), likely partly due in part to increased use of hospice.…”
Context-African Americans are less likely to receive hospice care and more likely to receive aggressive end-of-life care than Whites. Little is known about how palliative care consultation to discuss goals-of-care (hereafter "PCC") is associated with hospice enrollment by race.Objectives-To compare enrollment in hospice at discharge between propensity-matched cohorts of African Americans with and without PCC, and Whites with and without PCC.Methods-Secondary analysis of a retrospective cohort study at a high-acuity hospital; employing stratified propensity-score matching for 35,154 African Americans and Whites age 18+ admitted for conditions other than childbirth or rehabilitation, who were not hospitalized at end of study, and didn't die during index hospitalization (hospitalization during which first PCC occurred).
“…In addition, racial and ethnic minority individuals are less likely to be involved in end-of-life planning and more likely to die in hospitals as opposed to at home (Orlovic et al, 2019). Furthermore, ethnic minority individuals with low incomes reported using hospice care services less (Hughes & Vernon, 2019), which might result in additional physical, psychological, and financial burdens to the caregivers (Born et al, 2004).…”
End-of-life care is a form of unpaid care work that is primarily the responsibility of women and can affect their career development, employment, finances, and vocational success. This paper provides a review of the literature on the career and economic effects of providing unpaid end-of-life care for women caregivers. Illustrative reflections from women caregivers highlight challenging and positive aspects of providing end-of-life care. Challenges identified by the women caregivers included managing conflicting demands among work, home and caregiving as well as experiencing emotional strain, financial burden and economic instability. In addition, work schedules had to be altered and career trajectories were interrupted. Interestingly, caregivers reported receiving support from their employers and co-workers and few work-related benefits were used. Despite the many challenges in managing work and end-of-life care, many participants felt positively about their ability to provide a caring environment for a loved one at the time of their death. Recommendations for individual, familial, workplace, and societal changes related to unpaid end-of-life care will be provided.
“…Historically marginalized racial/ethnic populations in the United Sates are less likely to enroll onto hospice services ( Hughes & Vernon, 2019 ), yet when they do enroll, they are more likely to be discharged alive ( Russell et al, 2017 ). Commonly reported challenges to hospice care which may contribute to disparities in live discharges for racial/ethnic individuals include cultural incongruities, less knowledge about hospice services, and lower completion and/or discussion of directives and end-of-life wishes ( Russell et al, 2020 ).…”
Every aspect of the United States healthcare industry presents transitions in care—hospitalizations, rehabilitation, long-term care placement—each requiring careful attention. With a goal of maintaining safety during a known point of vulnerability for patients, discharge planning is required in hospitals, skilled nursing facilities, and home health agencies under Medicare guidelines. Yet, no required discharge planning or clear guidelines are available for a discharge from hospice; it is a forgotten care transition in our healthcare system. Of the 1.6 million Medicare recipients hospices serve each year, hospices discharge 17.4% alive. Under Medicare regulations, if clinicians cannot document acceptable patient decline, then patients are decertified from hospice categorized as “no longer terminally ill”, otherwise known as a live discharge. These patients are often referred to as “not dying fast enough,” or “failure to die on time,” as ultimately, they are still dying, and they are still terminally ill, just not within the prescribed 6-month framework. This paper outlines what is known about the occurrences and experiences of live discharge from hospice care and provides suggestions for improving both practice and policy.
scite is a Brooklyn-based organization that helps researchers better discover and understand research articles through Smart Citations–citations that display the context of the citation and describe whether the article provides supporting or contrasting evidence. scite is used by students and researchers from around the world and is funded in part by the National Science Foundation and the National Institute on Drug Abuse of the National Institutes of Health.