Clinical trial of a formal group fatigue program in multiple sclerosis

Hugos, CL; Copperman, LF; Fuller, BE; Yadav, Vijayshree; Lovera, Jesús; Bourdette, DN

doi:10.1177/1352458510364536

Cited by 48 publications

(63 citation statements)

References 26 publications

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“…In another conservative rehabilitation program designed to improve people's ability to manage fatigue associated with MS, the "Fatigue: Take Control" program, 17 participants reported improvement in fatigue using the MFIS and self-efficacy as assessed with the Multiple Sclerosis Self-Efficacy Scale (MSSE). 33 Although the MSSE was not used to assess self-efficacy in the current study, the FABQ scale could provide insight into how people perceive fear related to performing physical activities, 10 which may be considered a proxy for self-efficacy.…”

Section: Resultsmentioning

confidence: 99%

“…Our findings are consistent with those of other researchers. 17,33 Our group is considering the addition of the MSSE to our list of constructs assessed for future data collection.…”

Section: Resultsmentioning

confidence: 99%

“…Because MS has a profound impact on many aspects of a person's life, the program's content and measures used to examine treatment effectiveness included several constructs, including physical functioning and emotional well-being. The favorable results observed in our study are consistent with the results reported for other conservative intervention programs that used similar treatment content designs for adults with MS. 17,31,32 For example, interventions focusing on either physical exercise 32 or educational programs 17,31 have demonstrated an equally positive impact on fatigue, depression, and/or quality of life issues for people with MS.…”

Section: Discussionmentioning

confidence: 99%

“…For example, most outpatient rehabilitation programs emphasize improvements in functional status, but such improvements may not be the most important sign of the success of an intervention program. Many researchers investigating MS patient population characteristics study constructs such as fatigue, [14][15][16][17] depression, 4,16 somatization, 5,11,13,34 self-efficacy, 17,33 fear, 10 pain, 30 and functional status. However, these constructs should not be considered independent.…”

Section: Discussionmentioning

confidence: 99%

“…The prevalence of somatization is difficult to assess, but it is common in people with MS. 5,13 Likewise, fatigue is common in people with MS. 14 Fatigue is a complex clinical phenomenon, 15 in part because it is associated with depression, 16 physical functioning, and self-efficacy. 17 A rapid screening tool, the Modified Fatigue Impact Scale (MFIS), was selected. 15,18 Finally, although pain may not be as prevalent as fatigue, depression, somatization, and low functional abilities in people with MS, because pain can affect each of these constructs, we felt that the assessment of pain intensity was warranted.…”

Section: Participants and Settingmentioning

confidence: 99%

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Developing a Wellness Program for People with Multiple Sclerosis

Hart¹,

Memoli²,

Mason³

et al. 2011

International Journal of MS Care

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Because multiple sclerosis (MS) is a multidimensional chronic disease, effective management of the illness requires a multidimensional approach. We describe a wellness program that was designed to facilitate positive health choices throughout the course of MS and present initial data analyses. We hypothesized that over the course of the program, participants would demonstrate improvement in the domains assessed. The wellness program included educational sessions in physical, mental, social, intellectual, and spiritual domains specifically targeting improved self-efficacy, physical functioning, coping skills, symptom management, and nutrition. An outcomes data collection software program was adapted to facilitate real-time patient self-report and clinician entry data collection for many domains throughout the wellness program. Initial assessment of serial measures (intake to discharge) from 65 people with MS showed improvement in several domains, including functional status (P < .05), fatigue (P < .05), fear-avoidance beliefs regarding physical activities (P < .05), depression (P < .05), somatization (P < .05), and pain (P < .05). In addition, using a model of risk for interpersonal distress, patients whose risk of elevated depression and anxiety decreased over the course of the program reported greater gains in functional status (P < .05). The results suggest possible future treatment strategies and indicate strengths and weaknesses of the wellness program, which are being used to improve the program. Int J MS Care. 2011;13:154-162.

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Section: Resultsmentioning

confidence: 99%

“…Our findings are consistent with those of other researchers. 17,33 Our group is considering the addition of the MSSE to our list of constructs assessed for future data collection.…”

Section: Resultsmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Section: Participants and Settingmentioning

confidence: 99%

See 3 more Smart Citations

Developing a Wellness Program for People with Multiple Sclerosis

Hart¹,

Memoli²,

Mason³

et al. 2011

International Journal of MS Care

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Parkinson's disease‐related fatigue: A case definition and recommendations for clinical research

et al. 2016

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Fatigue is one of the most common and disabling symptoms in Parkinson's disease (PD). Since fatigue was first described as a common feature of PD 20 years ago, little progress has been made in understanding its causes or treatment. Importantly, PD patients attending the 2013 World Parkinson Congress voted fatigue as the leading symptom in need of further research. In response, the Parkinson Disease Foundation and ProjectSpark assembled an international team of experts to create recommendations for clinical research to advance this field. The working group identified several areas where shared standards would improve research quality and foster progress including terminology, diagnostic criteria, and measurement. Terminology needs to (1) clearly distinguish fatigue from related phenomena (e.g. sleepiness, apathy, depression); (2) differentiate subjective fatigue complaints from objective performance fatigability; and (3) specify domains affected by fatigue and causal factors. We propose diagnostic criteria for PD-related fatigue to guide participant selection for clinical trials and add rigor to mechanistic studies. Recommendations are made for measurement of subjective fatigue complaints, performance fatigability, and neurophysiologic changes. We also suggest areas where future research is needed to address methodological issues and validate or optimize current practices. Many limitations in current PD-related fatigue research may be addressed by improving methodological standards, many of which are already being successfully applied in clinical fatigue research in other medical conditions (e.g. cancer, multiple sclerosis).

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